What is CHARGE syndrome?
CHARGE syndrome is a combination of malformations, it stands for coloboma, heart defect, choanal atresia, retarded growth and development, genital abnormality, and ear abnormality. The malformations of this syndrome varies among individuals with this disorder.
How do members experience CHARGE syndrome?
Top 5 symptoms reported by people with CHARGE syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for CHARGE syndrome*
Who has CHARGE syndrome on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 1 | |
| 30s | 2 | |
| 40s | 1 | |
| 50s | 0 | |
| 60s | 0 | |
| 70+ | 1 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 0 | |
| Female | 5 |