Idiopathic angioedema

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What is idiopathic angioedema?

Idiopathic angioedema is a reaction similar to hives. It affects deeper layers of the skin, and the cause is unknown. Angioedema often appears around the eyes, cheeks and/or lips. Symptoms include, swelling of the skin, pain or warmth in the affected areas, and large welts.

Common symptoms reported by people with idiopathic angioedema

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with idiopathic angioedema

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Allegra)
Type
Prescription Drug
How many have tried
7
Tried for
idiopathic angioedema (7)
Treatment name(s)

(Zyrtec)
Type
Over the Counter Drug
How many have tried
6
Tried for
idiopathic angioedema (6)
Treatment name(s)

(Benadryl)
Type
Over the Counter Drug
How many have tried
4
Tried for
idiopathic angioedema (4)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(Solu-Medrol Infusion)
Type
Prescription Drug
How many have tried
2
Tried for
idiopathic angioedema (2)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Cannabidiol oil)
Type
Other
How many have tried
1
Tried for
anxious mood (1) pain (1)

Data from patients with idiopathic angioedema, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with idiopathic angioedema

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Allegra)
Perceived effectiveness
for idiopathic angioedema (5 evaluations)
Side effects
grogginess idiopathic angioedema 1 more
Total evaluations
5
Tried for
idiopathic angioedema (7)
Treatment name(s)

(Zyrtec)
Perceived effectiveness
for idiopathic angioedema (4 evaluations)
Side effects
brain fog excessive daytime sleepiness (somnolence) 1 more
Total evaluations
4
Tried for
idiopathic angioedema (6)
Treatment name(s)

(Benadryl)
Perceived effectiveness
for idiopathic angioedema (3 evaluations)
Side effects
excessive daytime sleepiness (somnolence) sedation
Total evaluations
3
Tried for
idiopathic angioedema (4)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (1 evaluation)
Side effects
idiopathic angioedema
Total evaluations
1
Tried for
pain (3)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
suicidal thoughts or urges
Total evaluations
1
Tried for
depressed mood (2)
Treatment name(s)

(Vistaril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Solu-Medrol Infusion)
Perceived effectiveness
for idiopathic angioedema (2 evaluations)
Side effects
fluid retention weight gain weight gain
Total evaluations
2
Tried for
idiopathic angioedema (2)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
sleepiness
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Cannabidiol oil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1) pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with idiopathic angioedema, who reported starting treatments within the last 5 years.
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Who has idiopathic angioedema on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 21
30s 24
40s 48
50s 31
60s 21
70+ 13
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 19
20-29 years 8
30-39 years 16
40-49 years 14
50-59 years 10
60-69 years 1
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 31
Female 138

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 80
Not Diagnosed 6

These charts show data from idiopathic angioedema patients who have completed their condition history
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