Idiopathic angioedema

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What is idiopathic angioedema?

Idiopathic angioedema is a reaction similar to hives, it affects deeper layers of the skin, and the cause is unknown. Angioedema often appears around the eyes, cheeks and/or lips. Symptoms include, swelling of the skin, pain or warmth in the affected areas, and large welts.

Common symptoms reported by people with idiopathic angioedema

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with idiopathic angioedema

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Zyrtec)
Type
Over the Counter Drug
How many have tried
9
Tried for
idiopathic angioedema (9)
Treatment name(s)

(Allegra)
Type
Prescription Drug
How many have tried
8
Tried for
idiopathic angioedema (8)
Treatment name(s)

(Benadryl)
Type
Over the Counter Drug
How many have tried
5
Tried for
idiopathic angioedema (5)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(Motrin Prescription)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Solu-Medrol Infusion)
Type
Prescription Drug
How many have tried
2
Tried for
idiopathic angioedema (2)
Treatment name(s)

(Percocet)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)

Data from patients with idiopathic angioedema, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with idiopathic angioedema

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Zyrtec)
Perceived effectiveness
for idiopathic angioedema (5 evaluations)
Side effects
brain fog excessive daytime sleepiness (somnolence) 2 more
Total evaluations
6
Tried for
idiopathic angioedema (9)
Treatment name(s)

(Allegra)
Perceived effectiveness
for idiopathic angioedema (5 evaluations)
Side effects
grogginess idiopathic angioedema 1 more
Total evaluations
5
Tried for
idiopathic angioedema (8)
Treatment name(s)

(Benadryl)
Perceived effectiveness
for idiopathic angioedema (3 evaluations)
Side effects
excessive daytime sleepiness (somnolence) sedation
Total evaluations
3
Tried for
idiopathic angioedema (5)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (1 evaluation)
Side effects
idiopathic angioedema
Total evaluations
1
Tried for
pain (3)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
suicidal thoughts or urges
Total evaluations
1
Tried for
depressed mood (2)
Treatment name(s)

(Vistaril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Motrin Prescription)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (2)
Treatment name(s)

(Solu-Medrol Infusion)
Perceived effectiveness
for idiopathic angioedema (2 evaluations)
Side effects
fluid retention weight gain weight gain
Total evaluations
2
Tried for
idiopathic angioedema (2)
Treatment name(s)

(Percocet)
Perceived effectiveness
for pain (1 evaluation)
Side effects
incoherent sense of self
Total evaluations
1
Tried for
pain (2)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with idiopathic angioedema, who reported starting treatments within the last 5 years.
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Who has idiopathic angioedema on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 15
30s 18
40s 33
50s 19
60s 16
70+ 10
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 17
20-29 years 7
30-39 years 15
40-49 years 13
50-59 years 10
60-69 years 1
70+ years 1

Sex

Distribution of sex

84% Female
16% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 72
Not Diagnosed 5

These charts show data from idiopathic angioedema patients who have completed their condition history
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