Hereditary angioedema

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What is hereditary angioedema?

Hereditary angioedema is a condition of the immune system. It causes severe swelling, in the face, arms, legs, lips, eyes, tongue, throat, airway, and abdominal cramping. The trigger of the episode can be unknown or related to stress or trauma.

Common symptoms reported by people with hereditary angioedema

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with hereditary angioedema

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Toradol)
Type
Prescription Drug
How many have tried
1
Tried for
hereditary angioedema (1) pain (1)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
1
Tried for
hereditary angioedema (1) pain (1)

Data from patients with hereditary angioedema, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with hereditary angioedema

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Toradol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
hereditary angioedema (1) pain (1)
Treatment name(s)

(Ultram)
Perceived effectiveness
for hereditary angioedema (1 evaluation)
Side effects
Total evaluations
1
Tried for
hereditary angioedema (1) pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hereditary angioedema, who reported starting treatments within the last 5 years.
Last updated:

Who has hereditary angioedema on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 5
30s 11
40s 8
50s 7
60s 3
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 7
20-29 years 5
30-39 years 1
40-49 years 1
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 6
Female 31

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 17
Not Diagnosed 2

These charts show data from hereditary angioedema patients who have completed their condition history
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