Phantosmia

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  • help researchers shorten the path to new treatments tomorrow

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What is phantosmia?

Phantosmia, or olfactory hallucinations, involves smelling odors that are not derived from any physical stimulus. The odors detected in phantosmia vary from person to person and may be foul or pleasant.

Common symptoms reported by people with phantosmia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with phantosmia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Type
Procedures
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Chest X-ray)
Type
Procedures
How many have tried
1
Tried for
pain (1)

Data from patients with phantosmia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with phantosmia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Vistaril)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Chest X-ray)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with phantosmia, who reported starting treatments within the last 5 years.
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Who has phantosmia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 4
30s 9
40s 17
50s 21
60s 17
70+ 6
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 3
30-39 years 3
40-49 years 4
50-59 years 9
60-69 years 2
70+ years 2

Sex

Distribution of sex

80% Female
20% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 13
Not Diagnosed 13

These charts show data from phantosmia patients who have completed their condition history
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