Keratoconus

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What is keratoconus?

A noninflammatory, usually bilateral cone-shaped protrusion of the cornea of the eye. It occurs most commonly in females at about the time of puberty. The cause is unknown but hereditary factors may play a role.

Common symptoms reported by people with keratoconus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with keratoconus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)
Type
Equipment
How many have tried
2
Tried for
keratoconus (2)
Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Restasis)
Type
Prescription Drug
How many have tried
1
Tried for
keratoconus (1)
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Chihuahua)
Type
Other
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)
Type
Procedures
How many have tried
1
Tried for
keratoconus (1)
Treatment name(s)

(Serzone)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with keratoconus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with keratoconus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (2)
Treatment name(s)
Perceived effectiveness
for keratoconus (1 evaluation)
Side effects
burning sensation in eyes
Total evaluations
1
Tried for
keratoconus (2)
Treatment name(s)

(Nuvigil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Restasis)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
keratoconus (1)
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (1)
Treatment name(s)

(Chihuahua)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)
Perceived effectiveness
for keratoconus (1 evaluation)
Side effects
visual disturbances (peripheral)
Total evaluations
1
Tried for
keratoconus (1)
Treatment name(s)

(Serzone)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
3
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with keratoconus, who reported starting treatments within the last 5 years.
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Who has keratoconus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 10
30s 41
40s 15
50s 25
60s 9
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 15
20-29 years 20
30-39 years 8
40-49 years 2
50-59 years 1
60-69 years 0
70+ years 0

Sex

Distribution of sex

47% Female
53% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 52
Not Diagnosed 1

These charts show data from keratoconus patients who have completed their condition history
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