Central sensitivity syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is central sensitivity syndrome?

Central Sensitivity Syndrome is a hypersensitivity of the central nervous system.

Common symptoms reported by people with central sensitivity syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with central sensitivity syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
3
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2) depressed mood (1)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (1) pain (1)
Treatment name(s)

(Pamelor)
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(Spinal Chiropractic Therapy)
Type
Physical Therapy
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Forearm/Elbow crutches)
Type
Equipment
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Homeopathy Fibromyalgia Relief)
Type
Complementary and Alternative Medicine
How many have tried
1
Treatment name(s)

(Indocin)
Type
Prescription Drug
How many have tried
1

Data from patients with central sensitivity syndrome, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with central sensitivity syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (3 evaluations)
Side effects
brain fog confusion 2 more
Total evaluations
5
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
sleepiness
Total evaluations
2
Tried for
anxious mood (2) depressed mood (1)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1) pain (1)
Treatment name(s)

(Pamelor)
Perceived effectiveness
for central sensitivity syndrome (3 evaluations)
Side effects
dry mouth fatigue 2 more
Total evaluations
4
Treatment name(s)

(Spinal Chiropractic Therapy)
Perceived effectiveness
No evaluations
Side effects
nausea
Total evaluations
2
Tried for
pain (1)
Treatment name(s)

(Celexa)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
sleepiness
Total evaluations
2
Tried for
depressed mood (1)
Treatment name(s)

(Forearm/Elbow crutches)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Homeopathy Fibromyalgia Relief)
Perceived effectiveness
No evaluations
Side effects
hunger occasional flu like symptoms
Total evaluations
1
Treatment name(s)

(Indocin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with central sensitivity syndrome, who reported starting treatments within the last 5 years.
Last updated:

Who has central sensitivity syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 6
30s 30
40s 45
50s 50
60s 13
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 15
20-29 years 7
30-39 years 26
40-49 years 17
50-59 years 9
60-69 years 1
70+ years 0

Sex

Distribution of sex

87% Female
13% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 73
Not Diagnosed 17

These charts show data from central sensitivity syndrome patients who have completed their condition history
Last updated: