Adenomyosis

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  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is adenomyosis?

Adenomyosis is the uterine thickening that occurs when endometrial tissue, which normally lines the uterus, grows into the outer muscular walls of the uterus. Some women may have no symptoms and others may experience pain in the pelvic area.

Common symptoms reported by people with adenomyosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with adenomyosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Radical hysterectomy)
Type
Surgery
How many have tried
5
Tried for
adenomyosis (5) pain (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(Pamelor)
Type
Prescription Drug
How many have tried
3
Tried for
depressed mood (2) pain (2)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
2
Tried for
adenomyosis (1) pain (1)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Celebrex)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Spinal Chiropractic Therapy)
Type
Physical Therapy
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Tylenol with Codeine #3)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with adenomyosis, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with adenomyosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Radical hysterectomy)
Perceived effectiveness
for adenomyosis (1 evaluation)
Side effects
Total evaluations
1
Tried for
adenomyosis (5) pain (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (5 evaluations)
Side effects
drowsiness excessive dry mouth
Total evaluations
4
Tried for
pain (4)
Treatment name(s)

(Pamelor)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
agitation with irritability excessive thirst (polydipsia) 2 more
Total evaluations
2
Tried for
depressed mood (2) pain (2)
Treatment name(s)

(Norco)
Perceived effectiveness
for adenomyosis (1 evaluation)
Side effects
better sleep loopy feeling 2 more
Total evaluations
2
Tried for
adenomyosis (1) pain (1)
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Symmetrel)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
irregular menstrual periods mood swings
Total evaluations
3
Tried for
depressed mood (1)
Treatment name(s)

(Celebrex)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Spinal Chiropractic Therapy)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Tylenol with Codeine #3)
Perceived effectiveness
for pain (2 evaluations)
Side effects
constipation
Total evaluations
2
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with adenomyosis, who reported starting treatments within the last 5 years.
Last updated:

Who has adenomyosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 6
30s 39
40s 67
50s 21
60s 6
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 18
20-29 years 23
30-39 years 39
40-49 years 16
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 0
Female 144

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 113
Not Diagnosed 0

These charts show data from adenomyosis patients who have completed their condition history
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