Osteoporosis

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is osteoporosis?

Osteoporosis is a disease of bone that leads to an increased risk of fracture. In osteoporosis the bone density is reduced leading to deterioration of bone structure.

Common symptoms reported by people with osteoporosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with osteoporosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Fosamax)
Type
Prescription Drug
How many have tried
47
Tried for
osteoporosis (47)
Treatment name(s)

(Calcium 600 plus D)
Type
Supplement
How many have tried
21
Tried for
osteoporosis (21)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
17
Tried for
pain (17)
Treatment name(s)

(Cal-600)
Type
Supplement
How many have tried
16
Tried for
osteoporosis (16)
Treatment name(s)

(Prolia)
Type
Prescription Drug
How many have tried
14
Tried for
osteoporosis (14)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
11
Tried for
depressed mood (10) pain (3)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
11
Tried for
pain (11)
Treatment name(s)

(Forteo)
Type
Prescription Drug
How many have tried
11
Tried for
osteoporosis (11)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
11
Tried for
pain (11)
Treatment name(s)

(Zometa)
Type
Prescription Drug
How many have tried
11
Tried for
osteoporosis (11)

Data from patients with osteoporosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with osteoporosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Fosamax)
Perceived effectiveness
for osteoporosis (60 evaluations)
Side effects
bone pain constipation 15 more
Total evaluations
65
Tried for
osteoporosis (47)
Treatment name(s)

(Calcium 600 plus D)
Perceived effectiveness
for osteoporosis (5 evaluations)
Side effects
Total evaluations
5
Tried for
osteoporosis (21)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (25 evaluations)
Side effects
burning sensation in mouth dizziness 5 more
Total evaluations
27
Tried for
pain (17)
Treatment name(s)

(Cal-600)
Perceived effectiveness
for osteoporosis (4 evaluations)
Side effects
nausea
Total evaluations
4
Tried for
osteoporosis (16)
Treatment name(s)

(Prolia)
Perceived effectiveness
for osteoporosis (12 evaluations)
Side effects
heartburn bone pain 4 more
Total evaluations
12
Tried for
osteoporosis (14)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (24 evaluations)
Side effects
chronic fatigue diarrhea 3 more
Total evaluations
25
Tried for
depressed mood (10) pain (3)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (2 evaluations)
Side effects
drowsiness sleepiness
Total evaluations
3
Tried for
pain (11)
Treatment name(s)

(Forteo)
Perceived effectiveness
for osteoporosis (12 evaluations)
Side effects
muscle pain nausea
Total evaluations
12
Tried for
osteoporosis (11)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (24 evaluations)
Side effects
sleepiness
Total evaluations
24
Tried for
pain (11)
Treatment name(s)

(Zometa)
Perceived effectiveness
for osteoporosis (2 evaluations)
Side effects
allergic reaction flu like symptoms
Total evaluations
3
Tried for
osteoporosis (11)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with osteoporosis, who reported starting treatments within the last 5 years.
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Who has osteoporosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 25
30s 105
40s 276
50s 638
60s 754
70+ 300
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 23
20-29 years 54
30-39 years 119
40-49 years 172
50-59 years 175
60-69 years 48
70+ years 9

Distribution of sex

Sex
Sex Proportion # of patients
Male 245
Female 1,865

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,159
Not Diagnosed 57

These charts show data from osteoporosis patients who have completed their condition history
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