Osteoporosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is osteoporosis?

Osteoporosis is a disease of bone that leads to an increased risk of fracture. In osteoporosis the bone density is reduced leading to deterioration of bone structure.

Common symptoms reported by people with osteoporosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with osteoporosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Fosamax)
Type
Prescription Drug
How many have tried
42
Tried for
osteoporosis (42)
Treatment name(s)

(Calcium 600 plus D)
Type
Supplement
How many have tried
18
Tried for
osteoporosis (18)
Treatment name(s)

(Cal-600)
Type
Supplement
How many have tried
16
Tried for
osteoporosis (16)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
16
Tried for
Pain (16)
Treatment name(s)

(Actonel)
Type
Prescription Drug
How many have tried
12
Tried for
osteoporosis (12)
Treatment name(s)

(Forteo)
Type
Prescription Drug
How many have tried
12
Tried for
osteoporosis (12)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
12
Tried for
Pain (12)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
11
Tried for
Insomnia (9) Pain (5)
1 more
Treatment name(s)

(Prolia)
Type
Prescription Drug
How many have tried
11
Tried for
osteoporosis (11)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
11
Tried for
Pain (11)

Data from patients with osteoporosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with osteoporosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Fosamax)
Perceived effectiveness
for osteoporosis (51 evaluations)
Side effects
Constipation Diarrhea 14 more
Total evaluations
56
Tried for
osteoporosis (42)
Treatment name(s)

(Calcium 600 plus D)
Perceived effectiveness
for osteoporosis (5 evaluations)
Side effects
Total evaluations
5
Tried for
osteoporosis (18)
Treatment name(s)

(Cal-600)
Perceived effectiveness
for osteoporosis (3 evaluations)
Side effects
Total evaluations
3
Tried for
osteoporosis (16)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (14 evaluations)
Side effects
Burning sensation in mouth Drowsiness 4 more
Total evaluations
16
Tried for
Pain (16)
Treatment name(s)

(Actonel)
Perceived effectiveness
for osteoporosis (11 evaluations)
Side effects
Aching hands and arms Aching in wrists 15 more
Total evaluations
11
Tried for
osteoporosis (12)
Treatment name(s)

(Forteo)
Perceived effectiveness
for osteoporosis (10 evaluations)
Side effects
Total evaluations
10
Tried for
osteoporosis (12)
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (22 evaluations)
Side effects
Sleepiness Drowsiness
Total evaluations
22
Tried for
Pain (12)
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (10 evaluations)
Side effects
Agitation Anger 4 more
Total evaluations
11
Tried for
Insomnia (9) Pain (5)
1 more
Treatment name(s)

(Prolia)
Perceived effectiveness
for osteoporosis (11 evaluations)
Side effects
Heartburn Nausea 1 more
Total evaluations
11
Tried for
osteoporosis (11)
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (3 evaluations)
Side effects
Drowsiness Cognitive confusion 2 more
Total evaluations
4
Tried for
Pain (11)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with osteoporosis, who reported starting treatments within the last 5 years.
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Who has osteoporosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 23
30s 106
40s 275
50s 610
60s 662
70+ 249
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 22
20-29 years 52
30-39 years 114
40-49 years 169
50-59 years 163
60-69 years 43
70+ years 9

Sex

Distribution of sex

89% Female
11% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,066
Not Diagnosed 55

These charts show data from osteoporosis patients who have completed their condition history
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