X-linked hypophosphatemia

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What is X-linked hypophosphatemia?

X linked hypophosphatemia is a disorder of low levels of phosphate in the blood. Phosphate is an essential mineral for formation of bones and teeth and helps with bone strength. This is a gene mutation in the PHEX gene.

Common symptoms reported by people with X-linked hypophosphatemia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with X-linked hypophosphatemia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(NatureMade Vitamin D3)
Type
Prescription Drug
How many have tried
1

Data from patients with X-linked hypophosphatemia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with X-linked hypophosphatemia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(NatureMade Vitamin D3)
Perceived effectiveness
for X-linked hypophosphatemia (3 evaluations)
Side effects
Total evaluations
3
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with X-linked hypophosphatemia, who reported starting treatments within the last 5 years.
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Who has X-linked hypophosphatemia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 3
30s 2
40s 3
50s 4
60s 2
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 4
Female 11

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6
Not Diagnosed 3

These charts show data from X-linked hypophosphatemia patients who have completed their condition history
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