Pulmonary sarcoidosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is pulmonary sarcoidosis?

Pulmonary sarcoidosis is a disorder that results in the collection of inflammatory cells, called granulomas, in the lungs. Granulomas may be present in other organs as well.

Common symptoms reported by people with pulmonary sarcoidosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with pulmonary sarcoidosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
4
Tried for
pulmonary sarcoidosis (4)
Treatment name(s)

(Symbicort)
Type
Prescription Drug
How many have tried
2
Tried for
pulmonary sarcoidosis (2)
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Alvesco HFA)
Type
Prescription Drug
How many have tried
1
Tried for
pulmonary sarcoidosis (1)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Flonase Nasal Spray)
Type
Prescription Drug
How many have tried
1
Tried for
pulmonary sarcoidosis (1)

Data from patients with pulmonary sarcoidosis, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with pulmonary sarcoidosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Deltasone)
Perceived effectiveness
for pulmonary sarcoidosis (2 evaluations)
Side effects
heart palpitations insomnia 3 more
Total evaluations
2
Tried for
pulmonary sarcoidosis (4)
Treatment name(s)

(Symbicort)
Perceived effectiveness
for pulmonary sarcoidosis (1 evaluation)
Side effects
headaches
Total evaluations
1
Tried for
pulmonary sarcoidosis (2)
Treatment name(s)

(Abilify)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Alvesco HFA)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pulmonary sarcoidosis (1)
Treatment name(s)

(Valium)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Lexapro)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Flonase Nasal Spray)
Perceived effectiveness
for pulmonary sarcoidosis (1 evaluation)
Side effects
eyes watering (tearing)
Total evaluations
1
Tried for
pulmonary sarcoidosis (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with pulmonary sarcoidosis, who reported starting treatments within the last 5 years.
Last updated:

Who has pulmonary sarcoidosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 3
30s 20
40s 36
50s 69
60s 54
70+ 12
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 11
30-39 years 20
40-49 years 29
50-59 years 13
60-69 years 5
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 50
Female 140

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 108
Not Diagnosed 2

These charts show data from pulmonary sarcoidosis patients who have completed their condition history
Last updated: