Langerhans cell histiocytosis

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What is Langerhans cell histiocytosis?

Langerhans cell histiocytosis, which is also called histiocytosis X, is a condition in which there is an abnormal increase in the number of immune cells called histiocytes. It often affects the whole body. When isolated to the lungs it is known as pulmonary histiocytosis X.

Common symptoms reported by people with Langerhans cell histiocytosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Langerhans cell histiocytosis

No data

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Compare treatments taken by people with Langerhans cell histiocytosis

No data

Let’s build this page together! When you share what it’s like to have Langerhans cell histiocytosis through your profile, those stories and data appear here too.

Got a question about living with Langerhans cell histiocytosis? Members in the forum might have the answers.

Who has Langerhans cell histiocytosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 5
30s 6
40s 7
50s 4
60s 5
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 0
30-39 years 2
40-49 years 2
50-59 years 1
60-69 years 0
70+ years 0

Sex

Distribution of sex

63% Female
37% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 16
Not Diagnosed 0

These charts show data from Langerhans cell histiocytosis patients who have completed their condition history
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