Noonan syndrome

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What is Noonan syndrome?

Noonan syndrome is a genetic disorder that causes abnormal development of multiple parts of the body. Symptoms include, congenital heart defects, delayed puberty, webbed neck, abnormally shaped ears, short stature, and sagging eyelids.

Common symptoms reported by people with Noonan syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Noonan syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Manual fold up)
Type
Equipment
How many have tried
1
Tried for
fatigue (1)

Data from patients with Noonan syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Noonan syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tylenol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for pain (1 evaluation)
Side effects
weight gain
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Ultram)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Manual fold up)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Noonan syndrome, who reported starting treatments within the last 5 years.
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Who has Noonan syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 1
30s 4
40s 1
50s 0
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

91% Female
9% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6
Not Diagnosed 0

These charts show data from Noonan syndrome patients who have completed their condition history
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