Thalassemia

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What is thalassemia?

Thalassemia anemia is a genetic condition where your body has problems making (hemoglobin) the protein in red blood cells that carries oxygen through your body. This type of anemia is usually affects people with Mediterranean and Asian ancestry.

Common symptoms reported by people with thalassemia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with thalassemia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1) pain (1)
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Naprosyn)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Seroquel)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)

Data from patients with thalassemia, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with thalassemia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Elavil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1) pain (1)
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Vistaril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Naprosyn)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (1)
Treatment name(s)

(Deltasone)
Perceived effectiveness
for pain (1 evaluation)
Side effects
manic behaviors unrefreshing or poor sleep
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Seroquel)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Topamax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with thalassemia, who reported starting treatments within the last 5 years.
Last updated:

Who has thalassemia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 12
30s 17
40s 13
50s 8
60s 6
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 11
20-29 years 4
30-39 years 3
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

78% Female
22% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 23
Not Diagnosed 6

These charts show data from thalassemia patients who have completed their condition history
Last updated: