Pulmonary hypertension

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is pulmonary hypertension?

Pulmonary hypertension is abnormally high blood pressure in the blood vessels of the lungs making the right side of the heart need to work harder than normal. Causes include autoimmune diseases, blood clots, congestive heart failure, heart valve disease, lung diseases, certain medications.

Common symptoms reported by people with pulmonary hypertension

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with pulmonary hypertension

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Prescription Drug
How many have tried
76
Treatment name(s)

(Cartia XT)
Type
Prescription Drug
How many have tried
6
Tried for
pulmonary hypertension (6)
Treatment name(s)

(Lasix)
Type
Prescription Drug
How many have tried
5
Treatment name(s)
Type
Equipment
How many have tried
5
Treatment name(s)

(Cialis)
Type
Prescription Drug
How many have tried
5
Tried for
pulmonary hypertension (5)
Treatment name(s)

(Letairis)
Type
Prescription Drug
How many have tried
4
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(Procardia XL)
Type
Prescription Drug
How many have tried
4
Tried for
pulmonary hypertension (4)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Viagra)
Type
Prescription Drug
How many have tried
3
Tried for
pulmonary hypertension (3)

Data from patients with pulmonary hypertension, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with pulmonary hypertension

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for pulmonary hypertension (33 evaluations)
Side effects
dry nose runny nose (rhinorrhea) 7 more
Total evaluations
43
Treatment name(s)

(Cartia XT)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pulmonary hypertension (6)
Treatment name(s)

(Lasix)
Perceived effectiveness
for swelling in lower extremities (1 evaluation)
Side effects
increased urination
Total evaluations
2
Treatment name(s)
Perceived effectiveness
for shortness of breath (dyspnea) (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Cialis)
Perceived effectiveness
for pulmonary hypertension (1 evaluation)
Side effects
abdominal bloating gas pain 1 more
Total evaluations
2
Tried for
pulmonary hypertension (5)
Treatment name(s)

(Letairis)
Perceived effectiveness
for pulmonary hypertension (3 evaluations)
Side effects
iron deficiency anemia sinus congestion
Total evaluations
3
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (3 evaluations)
Side effects
slurred speech stumbling
Total evaluations
3
Tried for
pain (4)
Treatment name(s)

(Procardia XL)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pulmonary hypertension (4)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for pain (2 evaluations)
Side effects
neuropathy in feet
Total evaluations
2
Tried for
pain (3)
Treatment name(s)

(Viagra)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pulmonary hypertension (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with pulmonary hypertension, who reported starting treatments within the last 5 years.
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Who has pulmonary hypertension on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 22
30s 77
40s 128
50s 206
60s 237
70+ 303
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 15
20-29 years 24
30-39 years 35
40-49 years 56
50-59 years 58
60-69 years 24
70+ years 17

Distribution of sex

Sex
Sex Proportion # of patients
Male 350
Female 629

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 756
Not Diagnosed 24

These charts show data from pulmonary hypertension patients who have completed their condition history
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