Paramyotonia congenita

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What is paramyotonia congenita?

Paramyotonia congenita is a disorder that affects muscles used for movement. It is characterized by bouts of sustained muscle tensing (myotonia) that prevent muscles from relaxing and causing muscle stiffness. It tends to worsen with repeated movements and can be induced by muscle cooling.

Common symptoms reported by people with paramyotonia congenita

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with paramyotonia congenita

No data

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Compare treatments taken by people with paramyotonia congenita

No data

Let’s build this page together! When you share what it’s like to have paramyotonia congenita through your profile, those stories and data appear here too.

Got a question about living with paramyotonia congenita? Members in the forum might have the answers.

Who has paramyotonia congenita on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 2
30s 2
40s 4
50s 0
60s 2
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 1
Female 10

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6
Not Diagnosed 0

These charts show data from paramyotonia congenita patients who have completed their condition history
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