Pineal gland cyst

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What is pineal gland cyst?

A pineal cyst is a fluid-filled mass that can occur in the pineal gland located in the brain. The cause of these cystic masses are not known. Most do not cause any symptoms however when large cysts may cause pressure on nearby brain structures and functions resulting in neurological symptoms.

Common symptoms reported by people with pineal gland cyst

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with pineal gland cyst

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(MRI Brain)
Type
Procedures
How many have tried
8
Tried for
pineal gland cyst (8)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
4
Tried for
Pain (4)
Treatment name(s)

(CT Scan Head)
Type
Procedures
How many have tried
2
Tried for
pineal gland cyst (2)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Sympathetic nerve blocks)
Type
Procedures
How many have tried
2
Tried for
Pain (2)
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Left Temporal Lobectomy)
Type
Surgery
How many have tried
1
Tried for
pineal gland cyst (1)

Data from patients with pineal gland cyst, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with pineal gland cyst

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(MRI Brain)
Perceived effectiveness
for pineal gland cyst (4 evaluations)
Side effects
Total evaluations
4
Tried for
pineal gland cyst (8)
Treatment name(s)

(Elavil)
Perceived effectiveness
for Pain (3 evaluations)
Side effects
dry mouth grogginess 1 more
Total evaluations
3
Tried for
Pain (4)
Treatment name(s)

(CT Scan Head)
Perceived effectiveness
for pineal gland cyst (1 evaluation)
Side effects
Total evaluations
1
Tried for
pineal gland cyst (2)
Treatment name(s)

(Vistaril)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (2)
Treatment name(s)

(Sympathetic nerve blocks)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
injection site pain
Total evaluations
1
Tried for
Pain (2)
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
withdrawal effects
Total evaluations
1
Tried for
Pain (2)
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
nausea speedy feeling
Total evaluations
1
Tried for
Pain (2)
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
constant tiredness mobility decreased
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Nuvigil)
Perceived effectiveness
for fatigue (2 evaluations)
Side effects
Total evaluations
2
Tried for
fatigue (1)
Treatment name(s)

(Left Temporal Lobectomy)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pineal gland cyst (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with pineal gland cyst, who reported starting treatments within the last 5 years.
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Who has pineal gland cyst on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 29
30s 61
40s 69
50s 33
60s 9
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 17
20-29 years 13
30-39 years 23
40-49 years 17
50-59 years 8
60-69 years 0
70+ years 0

Sex

Distribution of sex

93% Female
7% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 99
Not Diagnosed 3

These charts show data from pineal gland cyst patients who have completed their condition history
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