Chronic idiopathic axonal polyneuropathy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is chronic idiopathic axonal polyneuropathy?

Chronic idiopathic axonal polyneuropathy is an insidiously progressive sensory or sensorimotor polyneuropathy (a neurological disorder that occurs when many peripheral nerves throughout the body malfunction simultaneously).

Common symptoms reported by people with chronic idiopathic axonal polyneuropathy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with chronic idiopathic axonal polyneuropathy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Treatment name(s)

(Percocet)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
2
Tried for
Insomnia (2)
Treatment name(s)

(Plus CBD Oil)
Type
Over the Counter Drug
How many have tried
1
Tried for
Anxious mood (1) Insomnia (1)
Type
Procedures
How many have tried
1
Tried for
Pain (1)
Treatment name(s)
Type
Other
How many have tried
1
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
1
Tried for
Insomnia (1)
Treatment name(s)

(Nature's Bounty Melatonin)
Type
Supplement
How many have tried
1
Tried for
Insomnia (1)
Treatment name(s)

(Relafen)
Type
Prescription Drug
How many have tried
1

Data from patients with chronic idiopathic axonal polyneuropathy, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with chronic idiopathic axonal polyneuropathy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Elavil)
Perceived effectiveness
for Pain (4 evaluations)
Side effects
Dizziness with hypotension upon standing
Total evaluations
4
Tried for
Pain (2)
Treatment name(s)

(Percocet)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
Incoherent sense of self
Total evaluations
2
Tried for
Pain (2)
Treatment name(s)

(Lyrica)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Desyrel)
Perceived effectiveness
for Insomnia (1 evaluation)
Side effects
Total evaluations
1
Tried for
Insomnia (2)
Treatment name(s)

(Plus CBD Oil)
Perceived effectiveness
for Anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
Anxious mood (1) Insomnia (1)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Nerve pain (neuralgia)
Total evaluations
1
Tried for
Pain (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Vistaril)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
Insomnia (1)
Treatment name(s)

(Nature's Bounty Melatonin)
Perceived effectiveness
for Insomnia (1 evaluation)
Side effects
Total evaluations
1
Tried for
Insomnia (1)
Treatment name(s)

(Relafen)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with chronic idiopathic axonal polyneuropathy, who reported starting treatments within the last 5 years.
Last updated:

Who has chronic idiopathic axonal polyneuropathy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 3
40s 13
50s 33
60s 27
70+ 19
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 1
30-39 years 5
40-49 years 15
50-59 years 10
60-69 years 7
70+ years 1

Sex

Distribution of sex

62% Female
38% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 50
Not Diagnosed 1

These charts show data from chronic idiopathic axonal polyneuropathy patients who have completed their condition history
Last updated: