Vision loss

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is vision loss?

Vision loss or visual loss is the absence of vision where it existed before, which can happen either acutely (i.e. abruptly) or chronically (i.e. over a long period of time).

Common symptoms reported by people with vision loss

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with vision loss

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2)
Treatment name(s)

(Tylenol PM)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)

Data from patients with vision loss, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with vision loss

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
daytime tiredness
Total evaluations
2
Tried for
anxious mood (3)
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (2)
Treatment name(s)

(Vistaril)
Perceived effectiveness
for anxious mood (4 evaluations)
Side effects
dizziness panic attacks 3 more
Total evaluations
4
Tried for
anxious mood (2)
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
for pain (1 evaluation)
Side effects
withdrawal effects
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
acute renal failure blurry vision 4 more
Total evaluations
2
Tried for
depressed mood (2)
Treatment name(s)

(Tylenol PM)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Symmetrel)
Perceived effectiveness
No evaluations
Side effects
insomnia
Total evaluations
1
Tried for
fatigue (1)
Treatment name(s)

(Adderall)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Abilify)
Perceived effectiveness
No evaluations
Side effects
drowsiness
Total evaluations
2
Tried for
depressed mood (1)
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
Total evaluations
2
Tried for
anxious mood (1) depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with vision loss, who reported starting treatments within the last 5 years.
Last updated:

Who has vision loss on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 5
30s 23
40s 42
50s 44
60s 28
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 23
20-29 years 7
30-39 years 9
40-49 years 11
50-59 years 4
60-69 years 3
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 32
Female 116

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 88
Not Diagnosed 10

These charts show data from vision loss patients who have completed their condition history
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