Central centrifugal cicatricial alopecia (CCCA)

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is central centrifugal cicatricial alopecia (CCCA)?

CCCA is a type of secondary scarring alopecia where hair follicles are destroyed due to external injury and replaced by scarring. It is also known as hot comb alopecia, follicular degeneration syndrome, pseudopelade in African Americans, and central elliptical pseudopelade in whites.

Common symptoms reported by people with central centrifugal cicatricial alopecia (CCCA)

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with central centrifugal cicatricial alopecia (CCCA)

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Doxylin)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Cortizone-10)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Elidel)
Type
Prescription Drug
How many have tried
1

Data from patients with central centrifugal cicatricial alopecia (CCCA), who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with central centrifugal cicatricial alopecia (CCCA)

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Doxylin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Cortizone-10)
Perceived effectiveness
for central centrifugal cicatricial alopecia (CCCA) (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Elidel)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with central centrifugal cicatricial alopecia (CCCA), who reported starting treatments within the last 5 years.
Last updated:

Who has central centrifugal cicatricial alopecia (CCCA) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 2
30s 4
40s 9
50s 7
60s 3
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 2
30-39 years 2
40-49 years 0
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 1
Female 24

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 8
Not Diagnosed 1

These charts show data from central centrifugal cicatricial alopecia (CCCA) patients who have completed their condition history
Last updated: