Kearns-Sayre syndrome

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What is Kearns-Sayre syndrome?

is a rare neuromuscular disorder with onset usually before the age of 20. It is the result of abnormalities in the DNA of mitochondria - small rod-like structures found in every cell of the body that produce the energy that drives cellular functions.

Common symptoms reported by people with Kearns-Sayre syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Kearns-Sayre syndrome

No data

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Compare treatments taken by people with Kearns-Sayre syndrome

No data

Let’s build this page together! When you share what it’s like to have Kearns-Sayre syndrome through your profile, those stories and data appear here too.

Got a question about living with Kearns-Sayre syndrome? Members in the forum might have the answers.

Who has Kearns-Sayre syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 0
40s 1
50s 1
60s 1
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 1
Female 4

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2
Not Diagnosed 0

These charts show data from Kearns-Sayre syndrome patients who have completed their condition history
Last updated:
No data

Let’s build this page together! When you share what it’s like to have Kearns-Sayre syndrome through your profile, those stories and data appear here too.

Got a question about living with Kearns-Sayre syndrome? Members in the forum might have the answers.