Pheochromocytoma

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What is pheochromocytoma?

Pheochromocytoma is a rare tumor of the adrenal gland (triangle shape glands located on top of the kidneys). The tumor increases the hormones (epinephrine and norepinephrine) that regulate the heart rate, metabolism, and blood pressure. Some symptoms include: headaches, sweating,and heart pounding.

Common symptoms reported by people with pheochromocytoma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with pheochromocytoma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
Treatment name(s)

(Cardura)
Type
Prescription Drug
How many have tried
1
Tried for
pheochromocytoma (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Minipress)
Type
Prescription Drug
How many have tried
1
Tried for
pheochromocytoma (1)
Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
Treatment name(s)

(Seroquel)
Type
Prescription Drug
How many have tried
1
Tried for
Insomnia (1)

Data from patients with pheochromocytoma, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with pheochromocytoma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Abilify)
Perceived effectiveness
for Depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
Depressed mood (1)
Treatment name(s)

(Valium)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Anxious mood (1)
Treatment name(s)

(Cardura)
Perceived effectiveness
for pheochromocytoma (1 evaluation)
Side effects
Drowsiness
Total evaluations
1
Tried for
pheochromocytoma (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
Pain (1)
Treatment name(s)

(Minipress)
Perceived effectiveness
No evaluations
Side effects
Lightheadedness
Total evaluations
1
Tried for
pheochromocytoma (1)
Treatment name(s)

(Inderal)
Perceived effectiveness
for Anxious mood (1 evaluation)
Side effects
Suicidal thoughts or urges
Total evaluations
1
Tried for
Anxious mood (1)
Treatment name(s)

(Seroquel)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Insomnia (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with pheochromocytoma, who reported starting treatments within the last 5 years.
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Who has pheochromocytoma on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 3
40s 12
50s 16
60s 7
70+ 2
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 0
30-39 years 1
40-49 years 3
50-59 years 2
60-69 years 0
70+ years 0

Sex

Distribution of sex

65% Female
35% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 13
Not Diagnosed 3

These charts show data from pheochromocytoma patients who have completed their condition history
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