Chronic pelvic pain syndrome

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What is chronic pelvic pain syndrome?

Chronic pelvic pain is pain to the area below the belly button encompassing the sex organs. The cause of the pain is varied and can be related to injury to the nerves and muscles in the area or related to underlying conditions such as endometriosis, ovarian cysts, urinary tract infections, etc.

Common symptoms reported by people with chronic pelvic pain syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with chronic pelvic pain syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
4
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
3
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
2
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
2
Tried for
Pain (2)
Treatment name(s)

(Tylenol with Codeine #3)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
2
Tried for
fatigue (2)

Data from patients with chronic pelvic pain syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with chronic pelvic pain syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
drowsiness
Total evaluations
1
Treatment name(s)

(Norco)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Tylenol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Elavil)
Perceived effectiveness
for chronic pelvic pain syndrome (1 evaluation)
Side effects
dizziness dry mouth 2 more
Total evaluations
2
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
No evaluations
Side effects
bad taste in mouth weight gain
Total evaluations
3
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Marijuana)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (2)
Treatment name(s)

(Tylenol with Codeine #3)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
constipation
Total evaluations
2
Tried for
Pain (2)
Treatment name(s)

(Valium)
Perceived effectiveness
for anxious mood (3 evaluations)
Side effects
tiredness
Total evaluations
3
Tried for
anxious mood (2)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (2)
Treatment name(s)

(Provigil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with chronic pelvic pain syndrome, who reported starting treatments within the last 5 years.
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Who has chronic pelvic pain syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 16
30s 53
40s 58
50s 68
60s 25
70+ 10
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 20
20-29 years 29
30-39 years 30
40-49 years 17
50-59 years 10
60-69 years 4
70+ years 0

Sex

Distribution of sex

74% Female
26% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 107
Not Diagnosed 32

These charts show data from chronic pelvic pain syndrome patients who have completed their condition history
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