Inflammatory Bowel Disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Inflammatory Bowel Disease?

Inflammatory bowel disease (IBD) is a group of disorders in which the gut (small and large intestines) become red and swollen. It is characterized by abdominal pain, diarrhea, bleeding from the rectum. The most common forms of IBD are ulcerative colitis and Crohn’s disease.

Common symptoms reported by people with Inflammatory Bowel Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with Inflammatory Bowel Disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
4
Tried for
Pain (4)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
2
Tried for
Insomnia (2) Pain (2)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2
Tried for
Depressed mood (2)
Treatment name(s)

(Pentasa)
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Tylenol with Codeine #3)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Arthrotec)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Bentyl)
Type
Prescription Drug
How many have tried
1

Data from patients with Inflammatory Bowel Disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Inflammatory Bowel Disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (5 evaluations)
Side effects
Balance problems Brain fog 6 more
Total evaluations
4
Tried for
Pain (4)
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (3 evaluations)
Side effects
Dry mouth Grogginess 1 more
Total evaluations
3
Tried for
Insomnia (2) Pain (2)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Depressed mood (3 evaluations)
Side effects
Difficulty with orgasm Muscle and joint pain
Total evaluations
3
Tried for
Depressed mood (2)
Treatment name(s)

(Pentasa)
Perceived effectiveness
for Inflammatory Bowel Disease (2 evaluations)
Side effects
Bad taste in mouth Fever 5 more
Total evaluations
2
Treatment name(s)

(Deltasone)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Pain (4 evaluations)
Side effects
Suicidal thoughts or urges Weight gain
Total evaluations
4
Tried for
Pain (2)
Treatment name(s)

(Imuran)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Tylenol with Codeine #3)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Treatment name(s)

(Arthrotec)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Treatment name(s)

(Bentyl)
Perceived effectiveness
for Inflammatory Bowel Disease (2 evaluations)
Side effects
Total evaluations
2
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Inflammatory Bowel Disease, who reported starting treatments within the last 5 years.
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Who has Inflammatory Bowel Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 12
30s 22
40s 22
50s 29
60s 15
70+ 5
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 11
20-29 years 12
30-39 years 8
40-49 years 12
50-59 years 5
60-69 years 0
70+ years 0

Sex

Distribution of sex

79% Female
21% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 59
Not Diagnosed 9

These charts show data from Inflammatory Bowel Disease patients who have completed their condition history
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