Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
867
Tried for
Multiple Sclerosis (867) Fatigue (1)
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Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
636
Tried for
Multiple Sclerosis (636) Stiffness/Spasticity (5)
1 more
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Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
418
Tried for
Multiple Sclerosis (418) Depressed mood (1)
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Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
362
Tried for
Multiple Sclerosis (274) Stiffness/Spasticity (197)
2 more
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Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
343
Tried for
Multiple Sclerosis (343) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
219
Tried for
Multiple Sclerosis (219) Fatigue (3)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
208
Tried for
Multiple Sclerosis (208) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
198
Tried for
Multiple Sclerosis (198) Fatigue (3)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
188
Tried for
Multiple Sclerosis (186) Stiffness/Spasticity (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
127
Tried for
Multiple Sclerosis (90) Fatigue (75)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (734 evaluations)
Side effects
Flushing Facial flushing 213 more
How many evaluations
732
Tried for
Multiple Sclerosis (867) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (462 evaluations)
Side effects
Injection site pain Injection site itching 142 more
How many evaluations
463
Tried for
Multiple Sclerosis (636) Stiffness/Spasticity (5)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (292 evaluations)
Side effects
Fatigue Headaches 103 more
How many evaluations
296
Tried for
Multiple Sclerosis (418) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for Multiple Sclerosis (158 evaluations)
Side effects
Drowsiness Fatigue 51 more
How many evaluations
243
Tried for
Multiple Sclerosis (274) Stiffness/Spasticity (197)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (246 evaluations)
Side effects
Fatigue Headaches 89 more
How many evaluations
249
Tried for
Multiple Sclerosis (343) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (141 evaluations)
Side effects
Flu like symptoms Headaches 92 more
How many evaluations
141
Tried for
Multiple Sclerosis (219) Fatigue (3)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Perceived effectiveness
for Multiple Sclerosis (167 evaluations)
Side effects
Hair loss Diarrhea 59 more
How many evaluations
170
Tried for
Multiple Sclerosis (208) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (158 evaluations)
Side effects
Flu like symptoms Fever/chills 84 more
How many evaluations
158
Tried for
Multiple Sclerosis (198) Fatigue (3)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (136 evaluations)
Side effects
Insomnia Anxious mood 41 more
How many evaluations
159
Tried for
Multiple Sclerosis (186) Stiffness/Spasticity (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Multiple Sclerosis (46 evaluations)
Side effects
Anxious mood Dizziness 30 more
How many evaluations
82
Tried for
Multiple Sclerosis (90) Fatigue (75)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 38
20s 1,509
30s 7,528
40s 14,104
50s 13,922
60s 6,989
70+ 1,178

Sex

Distribution of sex

82% Female
18% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,729
20-29 years 8,900
30-39 years 9,317
40-49 years 5,578
50-59 years 1,372
60-69 years 121
70+ years 16

Types
Condition Types Proportion # of patients
Primary Progressive 3,220
Progressive Relapsing 1,904
Relapsing-Remitting 30,751
Secondary Progressive 4,792
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 31,133
Not Diagnosed 1,329

These charts show data from MS patients who have completed their condition history
Last updated: