Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
823
Tried for
Multiple Sclerosis (823)
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
643
Tried for
Multiple Sclerosis (643) Stiffness/Spasticity (5)
1 more
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Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
441
Tried for
Multiple Sclerosis (441) Depressed mood (1)
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Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
390
Tried for
Multiple Sclerosis (306) Stiffness/Spasticity (209)
2 more
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Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
366
Tried for
Multiple Sclerosis (366) Fatigue (1)
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Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
233
Tried for
Multiple Sclerosis (233) Fatigue (2)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
209
Tried for
Multiple Sclerosis (207) Fatigue (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
208
Tried for
Multiple Sclerosis (208) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
195
Tried for
Multiple Sclerosis (195) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
139
Tried for
Multiple Sclerosis (100) Fatigue (80)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (676 evaluations)
Side effects
Flushing Facial flushing 191 more
How many evaluations
674
Tried for
Multiple Sclerosis (823)
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (441 evaluations)
Side effects
Injection site pain Injection site itching 143 more
How many evaluations
442
Tried for
Multiple Sclerosis (643) Stiffness/Spasticity (5)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (300 evaluations)
Side effects
Headaches Elevated liver enzymes 116 more
How many evaluations
304
Tried for
Multiple Sclerosis (441) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for Multiple Sclerosis (154 evaluations)
Side effects
Drowsiness Fatigue 53 more
How many evaluations
234
Tried for
Multiple Sclerosis (306) Stiffness/Spasticity (209)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (275 evaluations)
Side effects
Fatigue Headaches 93 more
How many evaluations
278
Tried for
Multiple Sclerosis (366) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (146 evaluations)
Side effects
Flu like symptoms Headaches 94 more
How many evaluations
146
Tried for
Multiple Sclerosis (233) Fatigue (2)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (144 evaluations)
Side effects
Insomnia Dizziness 42 more
How many evaluations
168
Tried for
Multiple Sclerosis (207) Fatigue (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (157 evaluations)
Side effects
Flu like symptoms Fever/chills 89 more
How many evaluations
157
Tried for
Multiple Sclerosis (208) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Perceived effectiveness
for Multiple Sclerosis (155 evaluations)
Side effects
Hair loss Diarrhea 57 more
How many evaluations
158
Tried for
Multiple Sclerosis (195) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Multiple Sclerosis (48 evaluations)
Side effects
Anxious mood Dizziness 31 more
How many evaluations
86
Tried for
Multiple Sclerosis (100) Fatigue (80)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 39
20s 1,519
30s 7,485
40s 13,952
50s 13,510
60s 6,705
70+ 1,104

Sex

Distribution of sex

82% Female
18% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,699
20-29 years 8,815
30-39 years 9,226
40-49 years 5,505
50-59 years 1,344
60-69 years 115
70+ years 16

Types
Condition Types Proportion # of patients
Primary Progressive 3,152
Progressive Relapsing 1,862
Relapsing-Remitting 30,182
Secondary Progressive 4,711
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 30,826
Not Diagnosed 1,312

These charts show data from MS patients who have completed their condition history
Last updated: