Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
16721
Tried for
multiple sclerosis (201)
Treatment name(s)

(Ocrevus)
Type
Prescription Drug
How many have tried
1507
Tried for
multiple sclerosis (174)
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
7073
Tried for
multiple sclerosis (161)
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
1933
Tried for
multiple sclerosis (142)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
6503
Tried for
multiple sclerosis (84)
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
4565
Tried for
multiple sclerosis (70)
Treatment name(s)

(Rituxan)
Type
Prescription Drug
How many have tried
191
Tried for
multiple sclerosis (39)
Treatment name(s)

(Lemtrada)
Type
Prescription Drug
How many have tried
513
Tried for
multiple sclerosis (33)
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
9318
Tried for
multiple sclerosis (31)
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
11126
Tried for
multiple sclerosis (27)

Data from patients with multiple sclerosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (155 evaluations)
Side effects
injection site pain injection site bumps 68 more
Total evaluations
155
Tried for
multiple sclerosis (201)
Treatment name(s)

(Ocrevus)
Perceived effectiveness
for multiple sclerosis (116 evaluations)
Side effects
fatigue headaches 38 more
Total evaluations
117
Tried for
multiple sclerosis (174)
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (113 evaluations)
Side effects
flushing facial flushing 58 more
Total evaluations
114
Tried for
multiple sclerosis (161)
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (96 evaluations)
Side effects
hair loss diarrhea 43 more
Total evaluations
102
Tried for
multiple sclerosis (142)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (65 evaluations)
Side effects
fatigue headaches 21 more
Total evaluations
66
Tried for
multiple sclerosis (84)
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (66 evaluations)
Side effects
headaches hair loss 22 more
Total evaluations
66
Tried for
multiple sclerosis (70)
Treatment name(s)

(Rituxan)
Perceived effectiveness
for multiple sclerosis (25 evaluations)
Side effects
fatigue hair loss 17 more
Total evaluations
25
Tried for
multiple sclerosis (39)
Treatment name(s)

(Lemtrada)
Perceived effectiveness
for multiple sclerosis (44 evaluations)
Side effects
fatigue headaches 28 more
Total evaluations
44
Tried for
multiple sclerosis (33)
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (28 evaluations)
Side effects
headaches injection site pain 33 more
Total evaluations
28
Tried for
multiple sclerosis (31)
Treatment name(s)

(Avonex)
Perceived effectiveness
for multiple sclerosis (25 evaluations)
Side effects
flu like symptoms headaches 13 more
Total evaluations
26
Tried for
multiple sclerosis (27)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Who has multiple sclerosis on PatientsLikeMe?

  • 95 new patients joined this month
  • 68810 say MS is their primary condition

Age
Age Proportion # of patients
<20 28
20s 976
30s 6464
40s 15548
50s 19855
60s 13089
70+ 3552
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2897
20-29 years 9458
30-39 years 9943
40-49 years 6073
50-59 years 1547
60-69 years 152
70+ years 18

Distribution of sex

Sex
Sex Proportion # of patients
Male 10879
Female 49264

Types
Condition Types Proportion # of patients
Primary progressive multiple sclerosis 4568
Relapsing-remitting multiple sclerosis 38989
Secondary progressive multiple sclerosis 5890
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33695
Not Diagnosed 1358

These charts show data from MS patients who have completed their condition history
Last updated: