Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
753
Tried for
Multiple Sclerosis (753)
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
708
Tried for
Multiple Sclerosis (708) Stiffness/Spasticity (5)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
495
Tried for
Multiple Sclerosis (495) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
436
Tried for
Multiple Sclerosis (367) Stiffness/Spasticity (213)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
397
Tried for
Multiple Sclerosis (397) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
275
Tried for
Multiple Sclerosis (275) Fatigue (3)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
245
Tried for
Multiple Sclerosis (243) Fatigue (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
237
Tried for
Multiple Sclerosis (237) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
169
Tried for
Multiple Sclerosis (169) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
153
Tried for
Multiple Sclerosis (114) Fatigue (83)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (597 evaluations)
Side effects
Flushing Facial flushing 189 more
How many evaluations
595
Tried for
Multiple Sclerosis (753)
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (437 evaluations)
Side effects
Injection site pain Injection site itching 147 more
How many evaluations
438
Tried for
Multiple Sclerosis (708) Stiffness/Spasticity (5)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (326 evaluations)
Side effects
Headaches Elevated liver enzymes 128 more
How many evaluations
332
Tried for
Multiple Sclerosis (495) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for Multiple Sclerosis (154 evaluations)
Side effects
Drowsiness Tiredness 62 more
How many evaluations
215
Tried for
Multiple Sclerosis (367) Stiffness/Spasticity (213)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (281 evaluations)
Side effects
Fatigue Headaches 102 more
How many evaluations
283
Tried for
Multiple Sclerosis (397) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (174 evaluations)
Side effects
Flu like symptoms Headaches 95 more
How many evaluations
174
Tried for
Multiple Sclerosis (275) Fatigue (3)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (151 evaluations)
Side effects
Insomnia Nausea 46 more
How many evaluations
172
Tried for
Multiple Sclerosis (243) Fatigue (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (168 evaluations)
Side effects
Flu like symptoms Fever/chills 91 more
How many evaluations
168
Tried for
Multiple Sclerosis (237) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Perceived effectiveness
for Multiple Sclerosis (131 evaluations)
Side effects
Hair loss Diarrhea 51 more
How many evaluations
132
Tried for
Multiple Sclerosis (169) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Multiple Sclerosis (51 evaluations)
Side effects
Anxious mood Dizziness 33 more
How many evaluations
83
Tried for
Multiple Sclerosis (114) Fatigue (83)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 43
20s 1,507
30s 7,381
40s 13,552
50s 13,060
60s 6,418
70+ 1,012

Sex

Distribution of sex

82% Female
18% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,638
20-29 years 8,713
30-39 years 9,031
40-49 years 5,442
50-59 years 1,320
60-69 years 116
70+ years 17

Types
Condition Types Proportion # of patients
Primary Progressive 3,064
Progressive Relapsing 1,788
Relapsing-Remitting 29,310
Secondary Progressive 4,609
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 30,353
Not Diagnosed 1,291

These charts show data from MS patients who have completed their condition history
Last updated: