Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
746
Tried for
Multiple Sclerosis (746) Stiffness/Spasticity (6)
1 more
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Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
694
Tried for
Multiple Sclerosis (694)
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Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
543
Tried for
Multiple Sclerosis (543)
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Treatment name(s)

(Mylan Baclofen)
Type
Prescription Drug
How many have tried
498
Tried for
Multiple Sclerosis (431) Stiffness/Spasticity (220)
2 more
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Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
434
Tried for
Multiple Sclerosis (434) Fatigue (1)
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Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
310
Tried for
Multiple Sclerosis (310) Fatigue (3)
1 more
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Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
298
Tried for
Multiple Sclerosis (296) Fatigue (3)
3 more
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Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
256
Tried for
Multiple Sclerosis (256) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
183
Tried for
Multiple Sclerosis (144) Fatigue (86)
3 more
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Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
155
Tried for
Multiple Sclerosis (155) Depressed mood (1)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (437 evaluations)
Side effects
Injection site pain Injection site reaction 142 more
How many evaluations
438
Tried for
Multiple Sclerosis (746) Stiffness/Spasticity (6)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (537 evaluations)
Side effects
Flushing Facial flushing 177 more
How many evaluations
535
Tried for
Multiple Sclerosis (694)
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (342 evaluations)
Side effects
Headaches Elevated liver enzymes 145 more
How many evaluations
347
Tried for
Multiple Sclerosis (543)
Check to add this treatment to your profile
Treatment name(s)

(Mylan Baclofen)
Perceived effectiveness
for Multiple Sclerosis (171 evaluations)
Side effects
Drowsiness Tiredness 63 more
How many evaluations
224
Tried for
Multiple Sclerosis (431) Stiffness/Spasticity (220)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (281 evaluations)
Side effects
Headaches Fatigue 108 more
How many evaluations
283
Tried for
Multiple Sclerosis (434) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (189 evaluations)
Side effects
Flu like symptoms Headaches 105 more
How many evaluations
190
Tried for
Multiple Sclerosis (310) Fatigue (3)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (164 evaluations)
Side effects
Insomnia Nausea 48 more
How many evaluations
186
Tried for
Multiple Sclerosis (296) Fatigue (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (168 evaluations)
Side effects
Flu like symptoms Fever/chills 93 more
How many evaluations
168
Tried for
Multiple Sclerosis (256) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Multiple Sclerosis (51 evaluations)
Side effects
Anxious mood Dizziness 30 more
How many evaluations
88
Tried for
Multiple Sclerosis (144) Fatigue (86)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Perceived effectiveness
for Multiple Sclerosis (114 evaluations)
Side effects
Hair loss Diarrhea 44 more
How many evaluations
114
Tried for
Multiple Sclerosis (155) Depressed mood (1)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 58
20s 1,636
30s 7,518
40s 13,467
50s 12,548
60s 5,935
70+ 874

Sex

Distribution of sex

82% Female
18% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,602
20-29 years 8,620
30-39 years 8,925
40-49 years 5,363
50-59 years 1,300
60-69 years 115
70+ years 16

Types
Condition Types Proportion # of patients
Primary Progressive 3,005
Progressive Relapsing 1,723
Relapsing-Remitting 28,724
Secondary Progressive 4,532
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 29,993
Not Diagnosed 1,273

These charts show data from MS patients who have completed their condition history
Last updated: