Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
738
Tried for
Multiple Sclerosis (738) Stiffness/Spasticity (5)
1 more
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Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
713
Tried for
Multiple Sclerosis (713)
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Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
534
Tried for
Multiple Sclerosis (534)
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Treatment name(s)

(Mylan Baclofen)
Type
Prescription Drug
How many have tried
493
Tried for
Multiple Sclerosis (426) Stiffness/Spasticity (219)
2 more
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Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
421
Tried for
Multiple Sclerosis (421) Fatigue (1)
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Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
302
Tried for
Multiple Sclerosis (302) Fatigue (3)
1 more
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Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
294
Tried for
Multiple Sclerosis (292) Fatigue (3)
3 more
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Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
250
Tried for
Multiple Sclerosis (250) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
180
Tried for
Multiple Sclerosis (139) Fatigue (86)
3 more
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Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
161
Tried for
Multiple Sclerosis (161) Depressed mood (1)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (439 evaluations)
Side effects
Injection site pain Injection site itching 142 more
How many evaluations
440
Tried for
Multiple Sclerosis (738) Stiffness/Spasticity (5)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (556 evaluations)
Side effects
Flushing Facial flushing 180 more
How many evaluations
554
Tried for
Multiple Sclerosis (713)
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (343 evaluations)
Side effects
Headaches Elevated liver enzymes 143 more
How many evaluations
348
Tried for
Multiple Sclerosis (534)
Check to add this treatment to your profile
Treatment name(s)

(Mylan Baclofen)
Perceived effectiveness
for Multiple Sclerosis (170 evaluations)
Side effects
Drowsiness Tiredness 63 more
How many evaluations
226
Tried for
Multiple Sclerosis (426) Stiffness/Spasticity (219)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (280 evaluations)
Side effects
Fatigue Headaches 106 more
How many evaluations
282
Tried for
Multiple Sclerosis (421) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (183 evaluations)
Side effects
Flu like symptoms Headaches 104 more
How many evaluations
184
Tried for
Multiple Sclerosis (302) Fatigue (3)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (165 evaluations)
Side effects
Insomnia Nausea 48 more
How many evaluations
187
Tried for
Multiple Sclerosis (292) Fatigue (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (168 evaluations)
Side effects
Flu like symptoms Fever/chills 92 more
How many evaluations
168
Tried for
Multiple Sclerosis (250) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Multiple Sclerosis (51 evaluations)
Side effects
Anxious mood Dizziness 31 more
How many evaluations
86
Tried for
Multiple Sclerosis (139) Fatigue (86)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Perceived effectiveness
for Multiple Sclerosis (120 evaluations)
Side effects
Hair loss Diarrhea 48 more
How many evaluations
120
Tried for
Multiple Sclerosis (161) Depressed mood (1)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 59
20s 1,634
30s 7,544
40s 13,526
50s 12,638
60s 5,991
70+ 889

Sex

Distribution of sex

82% Female
18% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,611
20-29 years 8,643
30-39 years 8,960
40-49 years 5,387
50-59 years 1,305
60-69 years 117
70+ years 17

Types
Condition Types Proportion # of patients
Primary Progressive 3,025
Progressive Relapsing 1,740
Relapsing-Remitting 28,893
Secondary Progressive 4,553
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 30,102
Not Diagnosed 1,276

These charts show data from MS patients who have completed their condition history
Last updated: