Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
16680
Tried for
multiple sclerosis (230)
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
7051
Tried for
multiple sclerosis (193)
Treatment name(s)

(Ocrevus)
Type
Prescription Drug
How many have tried
1479
Tried for
multiple sclerosis (164)
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
1916
Tried for
multiple sclerosis (152)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
6488
Tried for
multiple sclerosis (92)
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
4553
Tried for
multiple sclerosis (76)
Treatment name(s)

(Rituxan)
Type
Prescription Drug
How many have tried
189
Tried for
multiple sclerosis (45)
Treatment name(s)

(Lemtrada)
Type
Prescription Drug
How many have tried
511
Tried for
multiple sclerosis (39)
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
9302
Tried for
multiple sclerosis (39)
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
11105
Tried for
multiple sclerosis (32)

Data from patients with multiple sclerosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (182 evaluations)
Side effects
injection site pain injection site bumps 84 more
Total evaluations
182
Tried for
multiple sclerosis (230)
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (142 evaluations)
Side effects
flushing diarrhea 67 more
Total evaluations
143
Tried for
multiple sclerosis (193)
Treatment name(s)

(Ocrevus)
Perceived effectiveness
for multiple sclerosis (107 evaluations)
Side effects
fatigue headaches 38 more
Total evaluations
108
Tried for
multiple sclerosis (164)
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (104 evaluations)
Side effects
hair loss diarrhea 50 more
Total evaluations
111
Tried for
multiple sclerosis (152)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (73 evaluations)
Side effects
fatigue headaches 26 more
Total evaluations
73
Tried for
multiple sclerosis (92)
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (69 evaluations)
Side effects
headaches hair loss 24 more
Total evaluations
69
Tried for
multiple sclerosis (76)
Treatment name(s)

(Rituxan)
Perceived effectiveness
for multiple sclerosis (28 evaluations)
Side effects
fatigue hair loss 19 more
Total evaluations
28
Tried for
multiple sclerosis (45)
Treatment name(s)

(Lemtrada)
Perceived effectiveness
for multiple sclerosis (48 evaluations)
Side effects
fatigue headaches 37 more
Total evaluations
48
Tried for
multiple sclerosis (39)
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (36 evaluations)
Side effects
headaches flu like symptoms 38 more
Total evaluations
36
Tried for
multiple sclerosis (39)
Treatment name(s)

(Avonex)
Perceived effectiveness
for multiple sclerosis (32 evaluations)
Side effects
flu like symptoms headaches 16 more
Total evaluations
33
Tried for
multiple sclerosis (32)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has multiple sclerosis on PatientsLikeMe?

  • 87 new patients joined this month
  • 68563 say MS is their primary condition

Age
Age Proportion # of patients
<20 28
20s 1003
30s 6564
40s 15721
50s 19739
60s 12852
70+ 3411
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2896
20-29 years 9458
30-39 years 9944
40-49 years 6075
50-59 years 1545
60-69 years 152
70+ years 18

Distribution of sex

Sex
Sex Proportion # of patients
Male 10832
Female 49112

Types
Condition Types Proportion # of patients
Primary progressive multiple sclerosis 4542
Relapsing-remitting multiple sclerosis 38909
Secondary progressive multiple sclerosis 5879
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33696
Not Diagnosed 1354

These charts show data from MS patients who have completed their condition history
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