Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
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Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
973
Tried for
Multiple Sclerosis (971) Stiffness/Spasticity (6)
2 more
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Treatment name(s)

(Mylan Baclofen)
Type
Prescription Drug
How many have tried
665
Tried for
Multiple Sclerosis (586) Stiffness/Spasticity (258)
2 more
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Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
604
Tried for
Multiple Sclerosis (604)
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Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
574
Tried for
Multiple Sclerosis (568) Stiffness/Spasticity (6)
2 more
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Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
568
Tried for
Multiple Sclerosis (566) Stiffness/Spasticity (4)
1 more
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Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
492
Tried for
Multiple Sclerosis (492)
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Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
440
Tried for
Multiple Sclerosis (440) Stiffness/Spasticity (5)
1 more
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Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
323
Tried for
Multiple Sclerosis (323) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
272
Tried for
Multiple Sclerosis (239) Fatigue (115)
2 more
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Treatment name(s)

(Betaseron)
Type
Prescription Drug
How many have tried
193
Tried for
Multiple Sclerosis (193) Fatigue (1)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (523 evaluations)
Side effects
Injection site reaction Injection site pain 146 more
How many evaluations
526
Tried for
Multiple Sclerosis (971) Stiffness/Spasticity (6)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Mylan Baclofen)
Perceived effectiveness
for Multiple Sclerosis (167 evaluations)
Side effects
Drowsiness Tiredness 73 more
How many evaluations
240
Tried for
Multiple Sclerosis (586) Stiffness/Spasticity (258)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (372 evaluations)
Side effects
Headaches Elevated liver enzymes 152 more
How many evaluations
376
Tried for
Multiple Sclerosis (604)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (256 evaluations)
Side effects
Insomnia Dizziness 69 more
How many evaluations
339
Tried for
Multiple Sclerosis (568) Stiffness/Spasticity (6)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (401 evaluations)
Side effects
Headaches Fatigue 111 more
How many evaluations
405
Tried for
Multiple Sclerosis (566) Stiffness/Spasticity (4)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (338 evaluations)
Side effects
Flushing Facial flushing 148 more
How many evaluations
336
Tried for
Multiple Sclerosis (492)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (242 evaluations)
Side effects
Flu like symptoms Headaches 126 more
How many evaluations
243
Tried for
Multiple Sclerosis (440) Stiffness/Spasticity (5)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (215 evaluations)
Side effects
Flu like symptoms Fever/chills 107 more
How many evaluations
215
Tried for
Multiple Sclerosis (323) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Multiple Sclerosis (65 evaluations)
Side effects
Anxious mood Insomnia 32 more
How many evaluations
111
Tried for
Multiple Sclerosis (239) Fatigue (115)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Betaseron)
Perceived effectiveness
for Multiple Sclerosis (116 evaluations)
Side effects
Flu like symptoms Injection site reaction 53 more
How many evaluations
116
Tried for
Multiple Sclerosis (193) Fatigue (1)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 32
20s 1,204
30s 5,599
40s 9,905
50s 9,467
60s 4,223
70+ 608

Gender

Distribution of females vs. males

80% Females
20% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,206
20-29 years 7,505
30-39 years 7,824
40-49 years 4,708
50-59 years 1,135
60-69 years 96
70+ years 12

Types
Condition Types Proportion # of patients
Primary Progressive 2,329
Progressive Relapsing 1,152
Relapsing-Remitting 21,423
Secondary Progressive 3,658
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 26,118
Not Diagnosed 1,105

These charts show data from MS patients who have completed their condition history
Last updated: