Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
770
Tried for
Multiple Sclerosis (770)
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
688
Tried for
Multiple Sclerosis (688) Stiffness/Spasticity (5)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
483
Tried for
Multiple Sclerosis (483) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
424
Tried for
Multiple Sclerosis (352) Stiffness/Spasticity (212)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
386
Tried for
Multiple Sclerosis (386) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
264
Tried for
Multiple Sclerosis (264) Fatigue (3)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
232
Tried for
Multiple Sclerosis (232) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
229
Tried for
Multiple Sclerosis (227) Fatigue (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
172
Tried for
Multiple Sclerosis (172) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
150
Tried for
Multiple Sclerosis (111) Fatigue (83)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (618 evaluations)
Side effects
Flushing Facial flushing 191 more
How many evaluations
616
Tried for
Multiple Sclerosis (770)
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (440 evaluations)
Side effects
Injection site pain Injection site itching 144 more
How many evaluations
441
Tried for
Multiple Sclerosis (688) Stiffness/Spasticity (5)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (321 evaluations)
Side effects
Headaches Elevated liver enzymes 127 more
How many evaluations
327
Tried for
Multiple Sclerosis (483) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for Multiple Sclerosis (154 evaluations)
Side effects
Drowsiness Tiredness 61 more
How many evaluations
220
Tried for
Multiple Sclerosis (352) Stiffness/Spasticity (212)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (266 evaluations)
Side effects
Fatigue Headaches 95 more
How many evaluations
268
Tried for
Multiple Sclerosis (386) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (164 evaluations)
Side effects
Flu like symptoms Headaches 97 more
How many evaluations
164
Tried for
Multiple Sclerosis (264) Fatigue (3)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (169 evaluations)
Side effects
Flu like symptoms Fever/chills 91 more
How many evaluations
169
Tried for
Multiple Sclerosis (232) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (148 evaluations)
Side effects
Insomnia Nausea 44 more
How many evaluations
169
Tried for
Multiple Sclerosis (227) Fatigue (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Perceived effectiveness
for Multiple Sclerosis (135 evaluations)
Side effects
Hair loss Diarrhea 51 more
How many evaluations
136
Tried for
Multiple Sclerosis (172) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Multiple Sclerosis (52 evaluations)
Side effects
Anxious mood Dizziness 33 more
How many evaluations
89
Tried for
Multiple Sclerosis (111) Fatigue (83)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 40
20s 1,503
30s 7,419
40s 13,628
50s 13,178
60s 6,491
70+ 1,027

Sex

Distribution of sex

82% Female
18% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,646
20-29 years 8,751
30-39 years 9,071
40-49 years 5,472
50-59 years 1,325
60-69 years 116
70+ years 17

Types
Condition Types Proportion # of patients
Primary Progressive 3,083
Progressive Relapsing 1,805
Relapsing-Remitting 29,509
Secondary Progressive 4,628
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 30,480
Not Diagnosed 1,299

These charts show data from MS patients who have completed their condition history
Last updated: