Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
653
Tried for
multiple sclerosis (653) fatigue (1)
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
441
Tried for
multiple sclerosis (441) stiffness/spasticity (4)
2 more
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
243
Tried for
multiple sclerosis (243)
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
239
Tried for
multiple sclerosis (239)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
221
Tried for
multiple sclerosis (221) fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
201
Tried for
stiffness/spasticity (150) multiple sclerosis (117)
1 more
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
96
Tried for
multiple sclerosis (92) balance problems (3)
2 more
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
95
Tried for
multiple sclerosis (95) fatigue (2)
Treatment name(s)

(Ocrevus)
Type
Prescription Drug
How many have tried
95
Tried for
multiple sclerosis (95)
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
92
Tried for
multiple sclerosis (92) fatigue (1)

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (531 evaluations)
Side effects
flushing stomach pain 169 more
Total evaluations
532
Tried for
multiple sclerosis (653) fatigue (1)
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (402 evaluations)
Side effects
injection site pain injection site bumps 130 more
Total evaluations
403
Tried for
multiple sclerosis (441) stiffness/spasticity (4)
2 more
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (193 evaluations)
Side effects
hair loss diarrhea 64 more
Total evaluations
201
Tried for
multiple sclerosis (243)
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (175 evaluations)
Side effects
headaches fatigue 63 more
Total evaluations
179
Tried for
multiple sclerosis (239)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (164 evaluations)
Side effects
fatigue headaches 53 more
Total evaluations
166
Tried for
multiple sclerosis (221) fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for stiffness/spasticity (167 evaluations)
Side effects
fatigue drowsiness 27 more
Total evaluations
203
Tried for
stiffness/spasticity (150) multiple sclerosis (117)
1 more
Treatment name(s)

(Ampyra)
Perceived effectiveness
for multiple sclerosis (73 evaluations)
Side effects
insomnia sleeplessness 26 more
Total evaluations
86
Tried for
multiple sclerosis (92) balance problems (3)
2 more
Treatment name(s)

(Avonex)
Perceived effectiveness
for multiple sclerosis (64 evaluations)
Side effects
flu like symptoms headaches 33 more
Total evaluations
65
Tried for
multiple sclerosis (95) fatigue (2)
Treatment name(s)

(Ocrevus)
Perceived effectiveness
for multiple sclerosis (54 evaluations)
Side effects
fatigue nausea 17 more
Total evaluations
55
Tried for
multiple sclerosis (95)
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (84 evaluations)
Side effects
headaches fatigue 67 more
Total evaluations
84
Tried for
multiple sclerosis (92) fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 45
20s 1387
30s 7508
40s 15908
50s 17289
60s 9982
70+ 2080
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2903
20-29 years 9457
30-39 years 9936
40-49 years 6078
50-59 years 1547
60-69 years 152
70+ years 17

Distribution of sex

Sex
Sex Proportion # of patients
Male 9873
Female 44867

Types
Condition Types Proportion # of patients
Primary progressive multiple sclerosis 4019
Relapsing-remitting multiple sclerosis 36214
Secondary progressive multiple sclerosis 5436
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33680
Not Diagnosed 1353

These charts show data from MS patients who have completed their condition history
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