Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
886
Tried for
Multiple Sclerosis (885) Stiffness/Spasticity (5)
2 more
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Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
609
Tried for
Multiple Sclerosis (609)
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Treatment name(s)

(Mylan Baclofen)
Type
Prescription Drug
How many have tried
602
Tried for
Multiple Sclerosis (530) Stiffness/Spasticity (242)
2 more
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Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
524
Tried for
Multiple Sclerosis (524) Fatigue (1)
1 more
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Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
511
Tried for
Multiple Sclerosis (511)
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Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
454
Tried for
Multiple Sclerosis (449) Stiffness/Spasticity (5)
2 more
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Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
401
Tried for
Multiple Sclerosis (401) Stiffness/Spasticity (5)
1 more
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Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
292
Tried for
Multiple Sclerosis (292) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
241
Tried for
Multiple Sclerosis (211) Fatigue (105)
2 more
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Treatment name(s)

(Solu-Medrol Infusion)
Type
Prescription Drug
How many have tried
166
Tried for
Multiple Sclerosis (159) Pain (5)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (479 evaluations)
Side effects
Injection site reaction Injection site pain 142 more
How many evaluations
479
Tried for
Multiple Sclerosis (885) Stiffness/Spasticity (5)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (380 evaluations)
Side effects
Headaches Elevated liver enzymes 154 more
How many evaluations
384
Tried for
Multiple Sclerosis (609)
Check to add this treatment to your profile
Treatment name(s)

(Mylan Baclofen)
Perceived effectiveness
for Multiple Sclerosis (161 evaluations)
Side effects
Drowsiness Tiredness 65 more
How many evaluations
226
Tried for
Multiple Sclerosis (530) Stiffness/Spasticity (242)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (353 evaluations)
Side effects
Headaches Fatigue 105 more
How many evaluations
355
Tried for
Multiple Sclerosis (524) Fatigue (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (366 evaluations)
Side effects
Flushing Facial flushing 152 more
How many evaluations
364
Tried for
Multiple Sclerosis (511)
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (210 evaluations)
Side effects
Insomnia Dizziness 55 more
How many evaluations
259
Tried for
Multiple Sclerosis (449) Stiffness/Spasticity (5)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (225 evaluations)
Side effects
Flu like symptoms Headaches 125 more
How many evaluations
226
Tried for
Multiple Sclerosis (401) Stiffness/Spasticity (5)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (190 evaluations)
Side effects
Flu like symptoms Fever/chills 99 more
How many evaluations
190
Tried for
Multiple Sclerosis (292) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Multiple Sclerosis (63 evaluations)
Side effects
Anxious mood Insomnia 32 more
How many evaluations
102
Tried for
Multiple Sclerosis (211) Fatigue (105)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Solu-Medrol Infusion)
Perceived effectiveness
for Multiple Sclerosis (134 evaluations)
Side effects
Metallic taste in mouth Insomnia 120 more
How many evaluations
153
Tried for
Multiple Sclerosis (159) Pain (5)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 27
20s 1,221
30s 5,730
40s 10,293
50s 9,872
60s 4,574
70+ 684

Sex

Distribution of sex

80% Female
20% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,248
20-29 years 7,615
30-39 years 7,929
40-49 years 4,770
50-59 years 1,153
60-69 years 97
70+ years 14

Types
Condition Types Proportion # of patients
Primary Progressive 2,473
Progressive Relapsing 1,206
Relapsing-Remitting 22,154
Secondary Progressive 3,889
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 26,526
Not Diagnosed 1,125

These charts show data from MS patients who have completed their condition history
Last updated: