Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
785
Tried for
Multiple Sclerosis (785) Stiffness/Spasticity (5)
1 more
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Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
631
Tried for
Multiple Sclerosis (631)
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Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
596
Tried for
Multiple Sclerosis (596)
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Treatment name(s)

(Mylan Baclofen)
Type
Prescription Drug
How many have tried
533
Tried for
Multiple Sclerosis (460) Stiffness/Spasticity (228)
2 more
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Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
466
Tried for
Multiple Sclerosis (466) Fatigue (1)
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Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
342
Tried for
Multiple Sclerosis (342) Stiffness/Spasticity (4)
1 more
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Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
337
Tried for
Multiple Sclerosis (334) Stiffness/Spasticity (4)
2 more
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Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
270
Tried for
Multiple Sclerosis (270) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
193
Tried for
Multiple Sclerosis (157) Fatigue (88)
3 more
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Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
137
Tried for
Multiple Sclerosis (137)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (434 evaluations)
Side effects
Injection site pain Injection site itching 136 more
How many evaluations
435
Tried for
Multiple Sclerosis (785) Stiffness/Spasticity (5)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (479 evaluations)
Side effects
Flushing Facial flushing 171 more
How many evaluations
477
Tried for
Multiple Sclerosis (631)
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (354 evaluations)
Side effects
Headaches Elevated liver enzymes 147 more
How many evaluations
358
Tried for
Multiple Sclerosis (596)
Check to add this treatment to your profile
Treatment name(s)

(Mylan Baclofen)
Perceived effectiveness
for Multiple Sclerosis (164 evaluations)
Side effects
Drowsiness Tiredness 62 more
How many evaluations
216
Tried for
Multiple Sclerosis (460) Stiffness/Spasticity (228)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (301 evaluations)
Side effects
Fatigue Headaches 109 more
How many evaluations
303
Tried for
Multiple Sclerosis (466) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (200 evaluations)
Side effects
Flu like symptoms Headaches 113 more
How many evaluations
201
Tried for
Multiple Sclerosis (342) Stiffness/Spasticity (4)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (168 evaluations)
Side effects
Insomnia Nausea 49 more
How many evaluations
189
Tried for
Multiple Sclerosis (334) Stiffness/Spasticity (4)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (171 evaluations)
Side effects
Flu like symptoms Fever/chills 94 more
How many evaluations
171
Tried for
Multiple Sclerosis (270) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Multiple Sclerosis (54 evaluations)
Side effects
Anxious mood Difficulty sleeping through night 30 more
How many evaluations
89
Tried for
Multiple Sclerosis (157) Fatigue (88)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Perceived effectiveness
for Multiple Sclerosis (96 evaluations)
Side effects
Hair loss Diarrhea 39 more
How many evaluations
96
Tried for
Multiple Sclerosis (137)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 50
20s 1,547
30s 7,141
40s 12,772
50s 11,966
60s 5,614
70+ 833

Sex

Distribution of sex

81% Female
19% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,515
20-29 years 8,319
30-39 years 8,638
40-49 years 5,206
50-59 years 1,260
60-69 years 108
70+ years 16

Types
Condition Types Proportion # of patients
Primary Progressive 2,890
Progressive Relapsing 1,595
Relapsing-Remitting 27,239
Secondary Progressive 4,411
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 29,047
Not Diagnosed 1,228

These charts show data from MS patients who have completed their condition history
Last updated: