Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
433
Tried for
multiple sclerosis (433)
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
364
Tried for
multiple sclerosis (364) stiffness/spasticity (4)
2 more
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
215
Tried for
multiple sclerosis (215)
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
168
Tried for
multiple sclerosis (168)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
161
Tried for
multiple sclerosis (161) fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
141
Tried for
stiffness/spasticity (103) multiple sclerosis (86)
1 more
Treatment name(s)

(Ocrevus)
Type
Prescription Drug
How many have tried
114
Tried for
multiple sclerosis (114)
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
69
Tried for
multiple sclerosis (69) fatigue (1)
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
65
Tried for
multiple sclerosis (65) fatigue (1)
Treatment name(s)

(Lemtrada)
Type
Prescription Drug
How many have tried
60
Tried for
multiple sclerosis (60)

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (363 evaluations)
Side effects
flushing diarrhea 148 more
Total evaluations
364
Tried for
multiple sclerosis (433)
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (336 evaluations)
Side effects
injection site pain injection site bumps 118 more
Total evaluations
337
Tried for
multiple sclerosis (364) stiffness/spasticity (4)
2 more
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (174 evaluations)
Side effects
hair loss diarrhea 61 more
Total evaluations
182
Tried for
multiple sclerosis (215)
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (131 evaluations)
Side effects
headaches fatigue 55 more
Total evaluations
135
Tried for
multiple sclerosis (168)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (113 evaluations)
Side effects
fatigue headaches 42 more
Total evaluations
115
Tried for
multiple sclerosis (161) fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for stiffness/spasticity (89 evaluations)
Side effects
drowsiness fatigue 11 more
Total evaluations
114
Tried for
stiffness/spasticity (103) multiple sclerosis (86)
1 more
Treatment name(s)

(Ocrevus)
Perceived effectiveness
for multiple sclerosis (66 evaluations)
Side effects
fatigue headaches 27 more
Total evaluations
67
Tried for
multiple sclerosis (114)
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (59 evaluations)
Side effects
headaches flu like symptoms 56 more
Total evaluations
59
Tried for
multiple sclerosis (69) fatigue (1)
Treatment name(s)

(Avonex)
Perceived effectiveness
for multiple sclerosis (44 evaluations)
Side effects
flu like symptoms headaches 23 more
Total evaluations
45
Tried for
multiple sclerosis (65) fatigue (1)
Treatment name(s)

(Lemtrada)
Perceived effectiveness
for multiple sclerosis (67 evaluations)
Side effects
fatigue headaches 58 more
Total evaluations
67
Tried for
multiple sclerosis (60)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
Last updated:

Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 42
20s 1268
30s 7386
40s 16249
50s 18466
60s 11135
70+ 2520
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2899
20-29 years 9456
30-39 years 9928
40-49 years 6072
50-59 years 1544
60-69 years 152
70+ years 18

Distribution of sex

Sex
Sex Proportion # of patients
Male 10402
Female 47263

Types
Condition Types Proportion # of patients
Primary progressive multiple sclerosis 4316
Relapsing-remitting multiple sclerosis 37879
Secondary progressive multiple sclerosis 5672
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33663
Not Diagnosed 1357

These charts show data from MS patients who have completed their condition history
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