Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
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Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
928
Tried for
Multiple Sclerosis (927) Stiffness/Spasticity (6)
2 more
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Treatment name(s)

(Mylan Baclofen)
Type
Prescription Drug
How many have tried
637
Tried for
Multiple Sclerosis (563) Stiffness/Spasticity (251)
2 more
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Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
611
Tried for
Multiple Sclerosis (611)
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Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
547
Tried for
Multiple Sclerosis (546) Stiffness/Spasticity (2)
1 more
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Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
507
Tried for
Multiple Sclerosis (502) Stiffness/Spasticity (5)
2 more
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Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
501
Tried for
Multiple Sclerosis (501)
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Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
415
Tried for
Multiple Sclerosis (415) Stiffness/Spasticity (5)
1 more
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Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
309
Tried for
Multiple Sclerosis (309) Fatigue (1)
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Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
259
Tried for
Multiple Sclerosis (228) Fatigue (109)
2 more
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Treatment name(s)

(Betaseron)
Type
Prescription Drug
How many have tried
181
Tried for
Multiple Sclerosis (181) Fatigue (1)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (502 evaluations)
Side effects
Injection site reaction Injection site pain 141 more
How many evaluations
502
Tried for
Multiple Sclerosis (927) Stiffness/Spasticity (6)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Mylan Baclofen)
Perceived effectiveness
for Multiple Sclerosis (161 evaluations)
Side effects
Drowsiness Tiredness 68 more
How many evaluations
226
Tried for
Multiple Sclerosis (563) Stiffness/Spasticity (251)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (378 evaluations)
Side effects
Headaches Elevated liver enzymes 153 more
How many evaluations
382
Tried for
Multiple Sclerosis (611)
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (382 evaluations)
Side effects
Headaches Fatigue 106 more
How many evaluations
384
Tried for
Multiple Sclerosis (546) Stiffness/Spasticity (2)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (232 evaluations)
Side effects
Insomnia Dizziness 59 more
How many evaluations
286
Tried for
Multiple Sclerosis (502) Stiffness/Spasticity (5)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (351 evaluations)
Side effects
Flushing Facial flushing 150 more
How many evaluations
349
Tried for
Multiple Sclerosis (501)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (225 evaluations)
Side effects
Flu like symptoms Headaches 122 more
How many evaluations
226
Tried for
Multiple Sclerosis (415) Stiffness/Spasticity (5)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (202 evaluations)
Side effects
Flu like symptoms Fever/chills 106 more
How many evaluations
202
Tried for
Multiple Sclerosis (309) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Multiple Sclerosis (65 evaluations)
Side effects
Anxious mood Insomnia 33 more
How many evaluations
106
Tried for
Multiple Sclerosis (228) Fatigue (109)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Betaseron)
Perceived effectiveness
for Multiple Sclerosis (114 evaluations)
Side effects
Flu like symptoms Injection site reaction 54 more
How many evaluations
114
Tried for
Multiple Sclerosis (181) Fatigue (1)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 28
20s 1,205
30s 5,694
40s 10,183
50s 9,814
60s 4,505
70+ 671

Sex

Distribution of sex

80% Female
20% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,235
20-29 years 7,590
30-39 years 7,904
40-49 years 4,754
50-59 years 1,146
60-69 years 96
70+ years 14

Types
Condition Types Proportion # of patients
Primary Progressive 2,440
Progressive Relapsing 1,197
Relapsing-Remitting 21,986
Secondary Progressive 3,831
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 26,424
Not Diagnosed 1,121

These charts show data from MS patients who have completed their condition history
Last updated: