Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
784
Tried for
Multiple Sclerosis (784)
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
681
Tried for
Multiple Sclerosis (681) Stiffness/Spasticity (5)
1 more
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Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
475
Tried for
Multiple Sclerosis (475) Depressed mood (1)
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Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
418
Tried for
Multiple Sclerosis (340) Stiffness/Spasticity (216)
2 more
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Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
386
Tried for
Multiple Sclerosis (386) Fatigue (1)
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Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
254
Tried for
Multiple Sclerosis (254) Fatigue (2)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
223
Tried for
Multiple Sclerosis (221) Fatigue (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
222
Tried for
Multiple Sclerosis (222) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
179
Tried for
Multiple Sclerosis (179) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
147
Tried for
Multiple Sclerosis (107) Fatigue (82)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (638 evaluations)
Side effects
Flushing Facial flushing 192 more
How many evaluations
636
Tried for
Multiple Sclerosis (784)
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (452 evaluations)
Side effects
Injection site pain Injection site itching 149 more
How many evaluations
453
Tried for
Multiple Sclerosis (681) Stiffness/Spasticity (5)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (323 evaluations)
Side effects
Headaches Elevated liver enzymes 128 more
How many evaluations
329
Tried for
Multiple Sclerosis (475) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for Multiple Sclerosis (157 evaluations)
Side effects
Drowsiness Tiredness 62 more
How many evaluations
229
Tried for
Multiple Sclerosis (340) Stiffness/Spasticity (216)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (276 evaluations)
Side effects
Fatigue Headaches 93 more
How many evaluations
279
Tried for
Multiple Sclerosis (386) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (154 evaluations)
Side effects
Flu like symptoms Headaches 94 more
How many evaluations
154
Tried for
Multiple Sclerosis (254) Fatigue (2)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (146 evaluations)
Side effects
Insomnia Nausea 43 more
How many evaluations
171
Tried for
Multiple Sclerosis (221) Fatigue (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (162 evaluations)
Side effects
Flu like symptoms Fever/chills 91 more
How many evaluations
162
Tried for
Multiple Sclerosis (222) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Aubagio)
Perceived effectiveness
for Multiple Sclerosis (141 evaluations)
Side effects
Hair loss Diarrhea 53 more
How many evaluations
142
Tried for
Multiple Sclerosis (179) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Multiple Sclerosis (51 evaluations)
Side effects
Anxious mood Dizziness 33 more
How many evaluations
89
Tried for
Multiple Sclerosis (107) Fatigue (82)
3 more

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 41
20s 1,529
30s 7,502
40s 13,757
50s 13,246
60s 6,511
70+ 1,030

Sex

Distribution of sex

82% Female
18% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,679
20-29 years 8,748
30-39 years 9,149
40-49 years 5,459
50-59 years 1,333
60-69 years 115
70+ years 17

Types
Condition Types Proportion # of patients
Primary Progressive 3,101
Progressive Relapsing 1,821
Relapsing-Remitting 29,730
Secondary Progressive 4,650
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 30,583
Not Diagnosed 1,303

These charts show data from MS patients who have completed their condition history
Last updated: