Share Your Health Profile

By openly sharing your health profile with the community, you can learn more about yourself while helping other patients like you.

  1. Take simple surveys about your condition, treatments & symptoms…
  2. to create a profile charting your health over time…
  3. so you can see how you’re doing, and compare yourself to others like you.

Why share?

“I filled out all the questions. I got my rating of where I was. I had no idea, what level I was… it allowed me to start tracking my improvements, my medications… It’s a great tool for your own health.”
—Parkinson’s Disease member
pdrsParkinson’s Disease Rating Scale (PDRS) Surveymood-mapMood Map SurveynmorsNMO Rating Scale (NMORS) SurveypfrsPain and Fatigue Rating Scale (PFRS) SurveyfrsALS Functional Rating Scale (ALS-FRS) SurveymsrsMultiple Sclerosis Rating Scale (MSRS) Surveyseizure-meterEpilepsy Seizure MeterqolQuality of Life SurveymdrsMovement Disorders Rating Scale (MDRS) Survey
pdrsWant to have a complete picture of your Parkinson’s symptoms over time? By taking the PDRS survey once a month, you can measure the impact of Parkinson’s disease to help improve the quality of your day-to-day life, and share that experience with other patients like you.mood-mapWant to have a complete picture of the factors affecting your mood? By taking the Mood Map survey once a week, you will get a rich, well-rounded portrait of your condition to help improve the quality of your day-to-day life, and share that experience with other patients like you.nmorsWant to have a complete picture of your NMO symptoms and relapses over time? By taking the NMORS survey once a month, you can measure the impact of NMO to help improve the quality of your day-to-day life, and share that experience with other patients like you.pfrsWant to have a complete picture of your condition over time? How are factors like pain, fatigue, and sleep disturbances affecting your overall health? By taking the PFRS survey once a week, you can measure the impact of your condition to help improve the quality of your day-to-day life, and share that experience with other patients like you.frsWant to have a complete picture of your ALS progression? By taking the ALS-FRS survey once a month, you can measure the impact of your ALS to help improve the quality of your day-to-day life, and share that experience with other patients like you.msrsWant to have a complete picture of your MS symptoms and relapses over time? How are your treatments working? By taking the MSRS survey once a month, you can measure the impact of MS to help improve the quality of your day-to-day life, and share that experience with other patients like you.seizure-meterHave you had any seizure lately? Each week, answer some quick questions about the number of seizure you've had and their severity. No seizure this week? Congrats! Tell us that, too.qolWant to have a complete picture of the impact of your condition on your physical, mental, and social quality of life? Answer our QOL survey once a week to learn more about the whole you!mdrsWant to have a complete picture of your symptoms over time? By taking the MDRS survey once a month, you can measure the impact of your condition to help improve the quality of your day-to-day life, and share that experience with other patients like you.
Sample survey for pdrsParkinson’s Disease Rating Scale (PDRS) Surveymood-mapMood Map SurveynmorsNMO Rating Scale (NMORS) SurveypfrsPain and Fatigue Rating Scale (PFRS) SurveyfrsALS Functional Rating Scale (ALS-FRS) SurveymsrsMultiple Sclerosis Rating Scale (MSRS) Surveyseizure-meterEpilepsy Seizure MeterqolQuality of Life SurveymdrsMovement Disorders Rating Scale (MDRS) Survey