What is Ventilator?

An example of Ventilator

A ventilator is a machine designed to move breatheable air into and out of the lungs, to provide respiration for a patient who is physically unable to breathe, or breathing insufficiently due to illness such as ALS, acute respiratory distress; often used in some surgical procedures and in the ICU.

Reported Purpose & Perceived Effectiveness

Reasons and Perceived effectiveness
Perceived Effectiveness
Purpose # of patients # of patients with evaluations
Major
Moderate
Slight
None
Can’t tell
ALS (Amyotrophic Lateral Sclerosis) 26 0
General health 18 1 Efficacy_major
Breathing difficulty 15 2 Efficacy_major
Shallow breathing 4 1 Efficacy_major
Mitochondrial Myopathy 1 0
Fatigue 1 0

See all 71 patients currently using Ventilator

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Reported Side Effects

Side effects as an overall problem

Severe
0
Moderate
2
Mild
0
None
5

Commonly reported side effects, conditions, and hospitalizations associated with Ventilator

Hospitalization 3
Abdominal bloating 1

Reported Stop Reasons

Why Patients Stopped Using (multiple reasons could be selected)
Reason # Patients Percentage of patients
Course of treatment ended 5   Course of treatment ended: 100%
Other 1   Other: 20%

See all 5 patients who’ve stopped using Ventilator

How Long Current Patients Have Been Using Ventilator

A bar graph

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
0
0

How Long Patients Used Before Stopping

A bar graph

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
0
0
0
0

Reported Adherence, Burden & Cost See details from patient evaluations

Adherence

Taking treatment as prescribed

Adherence of Ventilator

Always
7 100%
Usually
0 0%
Sometimes
0 0%
Never
0 0%

Burden

Difficulty being on treatment

Burden of Ventilator

Very
1 14%
Somewhat
3 43%
A little
0 0%
Not at all
3 43%

Cost

Paid out of pocket

Cost of Ventilator

$200+
1 100%
$100-199
0 0%
$50-99
0 0%
$25-49
0 0%
< $25
0 0%

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2 patient evaluations for Ventilator

Purpose: General health (Started Feb 04, 2004)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Nov 09, 2010 As needed Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
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Purpose: specific symptom (Started Aug 06, 2007)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Aug 17, 2010 24 hr All the time (24/7) Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Aug 17, 2010
Advice & Tips
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5 additional evaluations for Ventilator are not currently shared publicly.

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