PatientsLikeMe ™

all
Skip over navigation
Join Now (It's free!)

Already a member? Log in

See More Treatments

See all treatments in the PatientsLikeMe system shared by patients just like you.

Research:
Lithium & ALS

See how ALS patients taking lithium are doing in real-time by viewing FRS scores before and after starting lithium. Easily compare individual dosages and blood levels, and filter results by a rich set of patient characteristics.

Icon_bullet_arrow Research: Lithium & ALS


Brand Names: APO-Lithium, Carbolithium, Eskalith, Licarb, Lithane, Lithicarb, Lithionate, Lithionit, Lithium Carbonicum, Lithium ER, Lithobid, Lithosun, Maniprex, Plenur, Priadel, Quilonum SR, Roxane, Teralithe
Generic Name: Lithium Carbonate
See also: Lithium

What is Lithium Carbonate? Lithium Carbonate is used to treat and prevent episodes of mania in people with bipolar disorder (manic depressive disorder). Lithium is in a class of medications called antimanic agents, which work by decreasing abnormal activity in the brain. Read more...Click to read more below


Reasons Taken

381 patients in the community are taking or have taken Lithium Carbonate.

Reason # Patients Percentage of patients
Slow my ALS progress 239 65%
Treat my mood condition(s) 87 23%
Other 22 6%
Mood swings 3 <1%
bipolar disorder 3 <1%
Depression 2 <1%
disease-related symptoms 2 <1%
Dissociation 1 <1%
Fasciculations 1 <1%
Atrophy, upper body muscles 1 <1%
Impulsive behavior 1 <1%
Hyperventilation 1 <1%
Anxiety 1 <1%
Problems concentrating 1 <1%

Dosages

Based on the patients currently taking Lithium Carbonate.

Top 10 (Show all)

All (Show Top 10)

  0 mg day 10 mg day 20 mg day 50 mg day 150 mg day 84 mg day 100 mg day 126 mg day 150 mg day 168 mg day 200 mg day 210 mg day 225 mg day 250 mg day 300 mcg day 300 mg day 400 mg day 450 mg day 500 mg day 600 mg day 750 mg day 800 mg day 900 mg day 950 mg day 1000 mg day 1050 mg day 1125 mg day 1200 mg day 1350 mg day 1500 mg day 1800 mg day
  15 Number of Patients: 15 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 10 Number of Patients: 10 1 Number of Patients: 1 2 Number of Patients: 2 3 Number of Patients: 3 1 Number of Patients: 1 3 Number of Patients: 3 1 Number of Patients: 1 59 Number of Patients: 59 4 Number of Patients: 4 29 Number of Patients: 29 10 Number of Patients: 10 60 Number of Patients: 60 13 Number of Patients: 13 2 Number of Patients: 2 43 Number of Patients: 43 2 Number of Patients: 2 1 Number of Patients: 1 3 Number of Patients: 3 1 Number of Patients: 1 11 Number of Patients: 11 4 Number of Patients: 4 6 Number of Patients: 6 2 Number of Patients: 2  

Duration

How long current patients have been taking Lithium Carbonate or how long patients were taking Lithium Carbonate before stopping.

Currently taking Lithium Carbonate

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
9
42
104
70
11
49

Stopped taking Lithium Carbonate

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
14
27
33
3
3
5
Why Patients Stopped Taking Lithium Carbonate (multiple reasons could be selected)
Reason # Patients Percentage of patients
Did not seem to work 40 47% Did not seem to work: 47%
Side effects too severe 40 47% Side effects too severe: 47%
Personal research 10 12% Personal research: 12%
Doctor's advice 9 10% Doctor's advice: 10%
Other 9 10% Other: 10%
Not indicated 4 5% Not indicated: 5%

Patient Reported Evaluations

Results from 20 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Moderate 15% 2
Slight 8% 1
None 23% 3
Can't tell 54% 7

Slow my ALS progress

Side-effects (as an overall problem)

Severe 15% 3
Moderate 20% 4
Mild 35% 7
None 30% 6

Top reported side-effects include: tremors in hands, Nausea, Weight gain

Summary results are based on 20 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (2 of 20)

  • dbl30569
    Mouth/throat: moderate
    Arms: moderate
    Chest: mild
    Legs: moderate
    See profile
  • by dbl30569
    Aug 18, 2008
  • EfficacyNone
  • Side-effectsMild
  • Slow my ALS progress

  • mountabora
    Depression: 1
    Emotional: 1
    Compulsion: 0
    Anxiety: 0
    Mania: 0
    Physical: 0
    External Stress: Moderate
    24 F
    Function: High
    Distress: Low
    See profile
  • mountabora
  • by mountabora
    Aug 18, 2008
  • EfficacyMajor
  • Side-effectsMild
  • Treat my mood condition(s)

See all evaluation results for Lithium Carbonate



Back to top