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What is Arimoclomol?

Arimoclomol is an experimental drug trial in Phase II, thought to increase levels of "molecular chaperones". SOD1 mice treated with the drug had a longer lifespan, even when treatment started after the onset of motor symptoms.

Reported Purpose & Efficacy

Reasons and Efficacy
Purpose # of patients
# of patients with evaluations Efficacy
Major
Moderate
Slight
None
Can’t tell
ALS (Amyotrophic Lateral Sclerosis) 6 1 Efficacy_cant_tell
Other 2 0

See all 4 patients currently taking Arimoclomol

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Reported Side Effects

Side effects as an overall problem

Severe
0
Moderate
0
Mild
0
None
1

Reported Dosages

  300 mg daily 600 mg daily
  3 Number of Patients: 3 2 Number of Patients: 2  

Reported Stop Reasons

Why Patients Stopped Taking Arimoclomol (multiple reasons could be selected)
Reason # Patients Percentage of patients
Course of treatment ended 2   Course of treatment ended: 50%
Personal research 1   Personal research: 25%
Other 1   Other: 25%

See all 4 patients who’ve stopped taking Arimoclomol

Currently Taking Arimoclomol

A bar graph

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
0
0
0
0
0

Stopped Taking Arimoclomol

A bar graph

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
0
0
0

Reported Adherence, Burden & Cost See details from patient evaluations

Adherence

Taking treatment as prescribed

Adherence of Arimoclomol

Always
1 100%
Usually
0 0%
Sometimes
0 0%
Never
0 0%

Burden

Difficulty being on treatment

Burden of Arimoclomol

Very
0 0%
Somewhat
0 0%
A little
0 0%
Not at all
1 100%

Cost

Paid out of pocket

Cost of Arimoclomol

$200+
0 0%
$100-199
0 0%
$50-99
0 0%
$25-49
0 0%
< $25
1 100%

Report created on May 28, 2012.