PatientsLikeMe : Minocycline Treatment Report

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Taking Minocycline
45 Patients currently take Minocycline
45 Patients stopped taking Minocycline
tom Mouth/throat: none Arms: mild Chest: none Legs: moderate See profile tom 100 mg daily since Jul 16, 2007
Tnkrbell Sensation: none Overall: mild Cognition: moderate Vision: moderate Speech: moderate Swallowing: mild Upper limb: none Walking: none See profile Tnkrbell 200 mg daily since Mar 07, 2008
G. Roberts Mouth/throat: severe Arms: severe Chest: severe Legs: severe See profile G. Roberts 20 mg daily since May 15, 2006

What is Minocycline? Minocycline is a second-generation, long-acting tetracycline. It is indicated in the treatment of a variety of bacterial infections, including brain and meningeal infections; it is ten times better able to enter the brain than other tetracycline antibiotics. A European trial in ALS starts in 2007. Read more...

What we've learned

Why Patients Take Minocycline

slow my disease's progress	29
Other	10
Not indicated	4
Fatigue	1
Disease-related symptoms	1

Patient Dosages


20 mg daily	50 mg daily	100 mg daily	200 mg daily	400 mg daily	N/A
1	3	16	19	1	8

How Long Current Patients Have Been Taking Minocycline

< 1 month	> 1 month	> 3 months	> 6 months	> 1 year	> 2 years
0	2	2	3	0	9

Why Patients Stopped Taking Minocycline (multiple reasons could be selected)

Did not seem to work	18
Doctor's advice	16
Side effects too severe	11
Other	11
Personal research	6
Course of treatment ended	4
Not indicated	2
Expense	1

How Long Patients Took Minocycline Before Stopping

< 1 month	> 1 month	> 3 months	> 6 months	> 1 year	> 2 years
4	6	5	15	6	11

Average: Minocycline Ratings

	1

PatientsLikeMe ™

Minocycline Treatment Report