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Taking Riluzole
602 Patients currently take Riluzole
103 Patients stopped taking Riluzole
SLea
Mouth/throat: severe
Arms: moderate
Chest: moderate
Legs: moderate
SLea
50 mg daily since Jan 09, 2006
Hornet
Mouth/throat: moderate
Arms: moderate
Chest: mild
Legs: moderate
Hornet
200 mg daily since Dec 22, 2006
LoveBeingNana
Mouth/throat: mild
Arms: moderate
Chest: moderate
Legs: moderate
LoveBeingNana
100 mg daily since Jan 07, 2008

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What are people saying about Riluzole?

There are 797 posts in our forum about Riluzole. Join now and see what people are saying.

Brand Names: Rilutek

Riluzole is the first drug to be approved for the treatment of ALS. Riluzole does not cure the disease or improve symptoms, but may extend the survival of patients by approximately three months. Riluzole appears to be more effective in patients with bulbar-onset than for those with limb-onset. Read more...Click to read more below


What we've learned

Why Patients Take Riluzole

slow my disease's progress
slow my disease's progress: 100% 543
Not indicated
Not indicated: 3% 19
Disease-related symptoms
Disease-related symptoms: 3% 15
Other
Other: 2% 10
Don't know
Don't know: 1% 6
Stiffness/spasticity
Stiffness/spasticity: 1% 4
General health
General health: 1% 4
Fatigue
Fatigue: 1% 3
Anxiety
Anxiety: 0% 1
Bulbar symptoms
Bulbar symptoms: 0% 1
Fasciculations
Fasciculations: 0% 1

Patient Dosages

1 mg daily 2 mg daily 5 mg daily 20 mg daily 25 mg daily 30 mg daily 40 mg daily 50 mg daily 60 mg daily 75 mg daily 80 mg daily 100 mg daily 125 mg daily 150 mg daily 200 mg daily 300 mg daily 500 mg daily 512 mg daily N/A
3 Number of Patients: 3 1 Number of Patients: 1 1 Number of Patients: 1 6 Number of Patients: 6 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 74 Number of Patients: 74 1 Number of Patients: 1 2 Number of Patients: 2 1 Number of Patients: 1 440 Number of Patients: 440 1 Number of Patients: 1 6 Number of Patients: 6 8 Number of Patients: 8 2 Number of Patients: 2 2 Number of Patients: 2 1 Number of Patients: 1 81 Number of Patients: 81  

How Long Current Patients Have Been Taking Riluzole

< 1 month > 1 month > 3 months > 6 months > 1 year > 2 years
6
36
46
70
101
149

Why Patients Stopped Taking Riluzole (multiple reasons could be selected)

Side effects too severe
Side effects too severe: 100% 54
Did not seem to work
Did not seem to work: 59% 32
Other
Other: 35% 19
Doctor's advice
Doctor's advice: 31% 17
Not indicated
Not indicated: 26% 14
Personal research
Personal research: 22% 12
Expense
Expense: 20% 11
Course of treatment ended
Course of treatment ended: 2% 1

How Long Patients Took Riluzole Before Stopping

< 1 month > 1 month > 3 months > 6 months > 1 year > 2 years
13
26
14
13
12
24

Average: 1 star 2 star 3 star 4 star Riluzole Ratings

4 stars4 stars4 stars4 stars
4: 67% 6
3 stars3 stars3 stars
3: 44% 4
2 stars2 stars
2: 44% 4
1 star
1: 100% 9


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