Radioactive iodine (I-131) Report for Patients Like You

What is Radioactive iodine (I-131)?

An example of Radioactive iodine (I-131)

Radioactive iodine, also known as radioiodine, Iodine-131 and I-131, is selectively used for certain conditions including thyroid cancer and thyrotoxicosis (excessive levels of thyroid hormone in the blood).

Reported Purpose & Perceived Effectiveness

Reasons and Perceived effectiveness
			Perceived Effectiveness
Purpose	# of patients	# of patients with evaluations	Major	Moderate	Slight	None	Can’t tell
Graves Disease	21	4
Thyroid Cancer	10	0
Papillary Thyroid Carcinoma	8	2
Hyperthyroidism	8	2
Follicular Thyroid Cancer	4	0
Hyperthyroidism (Overactive thyroid)	2	1

See all 7 reasons taken ▼

See 1 patient currently taking Radioactive iodine (I-131)

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Reported Side Effects

Side effects as an overall problem

Severe	2
Moderate	1
Mild	0
None	4

Commonly reported side effects, conditions, and hospitalizations associated with Radioactive iodine (I-131)

See all 14 reported side effects ▼ See top 6 reported side effects ▲
Hospitalization	4	4
Dry mouth (xerostomia)	2	2
Hospitalization	2	2
Sex drive (libido) decreased	1	1
Dry skin	1	1
Taste changed	1	1
Nausea	1	1
Reaction to medication	1	1
Enlarged or swollen parotid gland	1	1
Parotid gland hypotrophy	1	1
Hypothyroidism	1	1
Pain in throat	1	1
Hair loss	1	1
Muscle pain	1	1

Reported Dosages

	1 other weekly
	1

Reported Stop Reasons

Why Patients Stopped Taking Radioactive iodine (I-131) (multiple reasons could be selected)
Reason	# Patients	Percentage of patients
Course of treatment ended	30
Other	10
Doctor's advice	5
Not indicated	3
Did not seem to work	1

See all 46 patients who’ve stopped taking Radioactive iodine (I-131)

Reported Duration See details about how long patients take this treatment ▼ Reported Duration Hide details ▲

Stopped Taking Radioactive iodine (I-131)

A bar graph

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
1	1	2	2	0	1

Reported Adherence, Burden & Cost See details from patient evaluations ▼

Adherence

Taking treatment as prescribed

Adherence of Radioactive iodine (I-131)

Always	4	57%
Usually	0	0%
Sometimes	0	0%
Never	3	43%

Burden

Difficulty being on treatment

Burden of Radioactive iodine (I-131)

Very	3	43%
Somewhat	1	14%
A little	1	14%
Not at all	2	29%

Cost

Paid out of pocket

Cost of Radioactive iodine (I-131)

$200+	1	50%
$100-199	0	0%
$50-99	0	0%
$25-49	0	0%
< $25	1	50%