CCSVI Chronic Cerebro-Spinal Venous Insufficiency Therapy Treatment Report

Category: Procedures

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What is CCSVI Chronic Cerebro-Spinal Venous Insufficiency Therapy?

An example of CCSVI Chronic Cerebro-Spinal Venous Insufficiency Therapy

Chronic cerebro-spinal venous insufficiency (CCSVI) is a syndrome in which the flow of blood in the cervical (neck) and thoracic (chest) veins is compromised and less efficient. It is proposed that insufficient venous blood flow promotes development of brain dysfunction.

Reported Purpose & Perceived Effectiveness

Reasons and Perceived effectiveness
Perceived Effectiveness
Purpose # of patients # of patients with evaluations
Major
Moderate
Slight
None
Can’t tell
MS (Multiple Sclerosis) 62 33 Efficacy_major Efficacy_moderate Efficacy_slight Efficacy_none Efficacy_cant_tell
CCSVI (Chronic Cerebrospinal Venous Insufficiency) 36 17 Efficacy_major Efficacy_moderate Efficacy_slight Efficacy_none
Support circulatory health 2 2 Efficacy_major Efficacy_moderate
General health 2 1 Efficacy_major
Internal Jugular Vein Stenosis 2 2 Efficacy_major
Stiffness/Spasticity 1 1 Efficacy_cant_tell

See all 7 patients currently having CCSVI Chronic Cerebro-Spinal Venous Insufficiency Therapy

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Reported Side Effects

Side effects as an overall problem

Severe
 0
Moderate
 2
Mild
 11
None
 49

Commonly reported side effects, conditions, and hospitalizations associated with CCSVI Chronic Cerebro-Spinal Venous Insufficiency Therapy

Hospitalization 7
Neck pain 2
Hospitalization 2
Cold legs 1
Pain in lower back 1
Muscle spasms 1
See all 18 reported side effects ▼ See top 6 reported side effects ▲

Reported Adherence, Burden & Cost See details from patient evaluations ▼

Adherence

Taking treatment as prescribed

Adherence of CCSVI Chronic Cerebro-Spinal Venous Insufficiency Therapy

Always
 29 47%
Usually
 4 6%
Sometimes
 4 6%
Never
 25 40%

Burden

Difficulty being on treatment

Burden of CCSVI Chronic Cerebro-Spinal Venous Insufficiency Therapy

Very
 1 2%
Somewhat
 7 11%
A little
 13 21%
Not at all
 41 66%

Cost

Paid out of pocket

Cost of CCSVI Chronic Cerebro-Spinal Venous Insufficiency Therapy

$200+
 21 64%
$100-199
 1 3%
$50-99
 0 0%
$25-49
 0 0%
< $25
 11 33%

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9 patient evaluations for CCSVI Chronic Cerebro-Spinal Venous Insufficiency Therapy

Purpose: MS (Multiple Sclerosis) (Started Jul 01, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 26, 2012   Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate NeverNeverNeverNeverNever Not at allNot at allNot at allNot at allNot at all
May 07, 2012 Yearly Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
  • Icon_thumb_off 0 helpful marks
Purpose: help ms symptoms (Started Aug 13, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 23, 2011 As needed Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Jul 23, 2011
Advice & Tips
This treatment totally eliminated cogfog and fatigue. My bladder function is dramatically improved, but not 100%. My spasticity is better. If my legs would work, I would be unstoppable, I don't 'feel' like I have ms anymore---my head feels normal. I can see improvements with physical therapy and expect to do better in the future. I was treated twice, the first time was not very thorough and missed major valvular blockages, so I went for a second round in NYC which cost $10,000 and was worth every penny.
  • Icon_thumb_on 2 helpful marks
Purpose: MS (Multiple Sclerosis) (Started Apr 12, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Apr 12, 2011 One time Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Apr 12, 2011
Advice & Tips
4 days after i have more energy, my throat was sore, i'm warmer, i can feel a strong pulse in my limbs and neck, and my senses are heightened.. my balance, bowel and bladder, dizziness, tinnitus, sinusitis, left-sided numbness, and cognition have all improved some, but wanes back and forth depending on what i'm doing.. my legs still tingle when i'm sitting for too long..
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
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