PatientsLikeMe ™

all
Skip over navigation
Join Now (It's free!)

Already a member? Log in

Share your real-world treatment experience
with patients just like you.
Filter page content by community
All Communities

See More Treatments

See all treatments in the PatientsLikeMe system shared by patients just like you.


What is Cellcept? Cellcept is a brand name for the drug mycophenolic acid, an immunosuppressant used with other medicines to prevent organ rejection following kidney, liver, or heart transplants. It may also be used off-label for immune-modulated conditions such as lupus. Read more...Click to read more below

See more information, including instructions, precautions, side effects, and interactions.

Roche's Cellcept site


Reasons Taken

51 patients in the community are taking or have taken Cellcept.

Reason # Patients Percentage of patients
Slow my MS progress 32 62%
Other 6 11%
Slow my Devic's progress 4 7%
Stiffness/spasticity 1 1%
Don't know 1 1%
Slow my ALS progress 1 1%

Dosages

Based on the patients currently taking Cellcept.

  0 mg day 500 mg day 1000 mg day 1500 mg day 2000 mg day 2500 mg day 3000 mg day
  4 Number of Patients: 4 6 Number of Patients: 6 12 Number of Patients: 12 2 Number of Patients: 2 14 Number of Patients: 14 3 Number of Patients: 3 1 Number of Patients: 1  

Duration

How long current patients have been taking Cellcept or how long patients were taking Cellcept before stopping.

Currently taking Cellcept

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
1
3
6
5
1
11

Stopped taking Cellcept

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
1
1
3
1
1
2
Why Patients Stopped Taking Cellcept (multiple reasons could be selected)
Reason # Patients Percentage of patients
Doctor's advice 5 56% Doctor's advice: 56%
Other 2 22% Other: 22%
Side effects too severe 1 11% Side effects too severe: 11%
Not indicated 1 11% Not indicated: 11%

Patient Reported Evaluations

Results from 6 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Major 25% 1
Can't tell 75% 3

Slow my MS progress

Side-effects (as an overall problem)

Severe 0% 0
Moderate 0% 0
Mild 33% 2
None 67% 4

Top reported side-effects include:

Summary results are based on 6 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (1 of 6)

  • loisa
    Sensation: Mild
    Overall: None
    Cognition: mild
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: mild
    Walking: mild
    See profile
  • loisa
  • by loisa
    Sep 19, 2008
  • EfficacyCan't tell
  • Side-effectsNone
  • Slow my MS progress
Advice/Tips
my advice is... well I don't know. I felt nothing to be honest, and as I was getting out from a clinical trial because I had a relapse and felt scared, Cellcept didn't make me feel secure. For me, Cellcept didn't help because I felt... nothing at all only fear of getting worse!

See all evaluation results for Cellcept



Back to top