108 patient evaluations for Riluzole

860 members have decided to share their profiles only with other members of PatientsLikeMe.

Feb 19, 2009 (Started Nov 19, 2007)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks

Feb 15, 2009 (Started Aug 30, 2007)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Cost: $25-49 monthly

  • 0 helpful marks

Feb 4, 2009 (Started May 08, 2008)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Severe (for Overall) (liver inflammation)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Have regular blood tests to moderate your liver function.
Cost: < $25 monthly
Side effects: liver inflammation

  • 0 helpful marks

Jan 15, 2009 (Started May 16, 2006)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks

Dec 13, 2008 (Started Jul 25, 2008)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: This doesn't seem to be doing anything for me. I am progressing rather quickly.
Cost: < $25 monthly

  • 0 helpful marks

Dec 11, 2008 (Started Oct 11, 2008)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks

Oct 20, 2008 (Started Feb 11, 2008)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 1 helpful mark

Oct 7, 2008 (Started Oct 01, 2007)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Sep 14, 2008 (Started Sep 13, 1995)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take

  • 0 helpful marks

Jul 2, 2008 (Started Jun 01, 2008)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Severe (for Overall) (nausea, stomach pain, abdominal pain)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 50 mg Daily
Cost: $50-99 monthly
Side effects: abdominal pain, stomach pain, nausea

Jun 28, 2008 (Started Jun 01, 2008)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Severe (for Overall) (nausea, stomach pain, abdominal pain)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 50 mg Daily
Advice & Tips: Try it because it is the only treatment at this time.
Cost: $50-99 monthly
Side effects: abdominal pain, stomach pain, nausea

  • 0 helpful marks
Last updated:
Showing 10 of 108 patient evaluations for Riluzole