41 patient evaluations for Carbidopa-Entacapone-Levodopa

229 members have decided to share their profiles only with other members of PatientsLikeMe.

Sep 15, 2016 (Started Mar 05, 2005)

  • Effectiveness
    Can't tell (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Cost: $25-49 monthly

Apr 14, 2015 (Started Mar 05, 2005)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 5 x 50-200-200 mg Daily
Advice & Tips: Stalevo did a great job for me for a very long time. After all these years it just wasn't working well.
Cost: $25-49 monthly

Apr 13, 2015 (Started Mar 05, 2005)

  • Effectiveness
    Slight (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5 x 50-200-200 mg Daily
Cost: $25-49 monthly

Jun 29, 2014 (Started Mar 05, 2005)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Five times daily
Advice & Tips: NOT WORKING SO WELL AFTER ALL THESE YEARS.
Cost: $25-49 monthly

Jul 14, 2012 (Started Mar 05, 2005)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Five times daily
Cost: $25-49 monthly

Sep 4, 2010 (Started Mar 05, 2005)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Five times daily
Cost: $25-49 monthly

Dec 13, 2009 (Started Mar 05, 2005)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Five times daily
Advice & Tips: Since the addition of Azilect 1mg, I have been able to lower my Stalevo dosing again. I now take Stalevo 100mg every 4 hours instead of every 3 1/2. Stalevo & Azilect have been a dream come true for me. My mobility has increased, and my dosage has gone down. What more could anyone ask for?!!!!
Cost: $25-49 monthly

Oct 1, 2009 (Started Mar 05, 2005)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Twice daily
Advice & Tips: I take Stalevo 100mg every 3 1/2 hours throughout the day which adds up to normally 500-600mg a day. I was taking Stalevo 150mg 4 times a day, but after getting some "wearing off" effects, my doctor added Azilect 1mg in the am and dropped my Stalevo down to 100mg every 3 1/2 hours. Now, I can normally go 3 1/2 hours without feeling the "wearing off" effect. Sometimes, I can push it to 4 hours, but under doctor's orders, I take it every 3 1/2 hours to keep the stability of being "on".
Cost: $25-49 monthly

Aug 23, 2009 (Started Mar 05, 2005)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Twice daily
Advice & Tips: Stalevo was the first drug that I could tolerate in my first two years after my PD diagnosis. My neurologist and gastroenterologist worked together to find out why, trying Mirapex twice and Requip twice, that I would get severe abdominal pain, vomiting, dry heaves & migraines after titrating up to the six week point; then wound up in the hospital twice. I spent the first two years like this to the point that I lost 35 pounds in a year taking me down to 105 lbs. and could barely get out of bed. My doctor was waiting for the release of Stalevo, thinking it would be the only drug that I could tolerate at this point. I started taking 50mg and titrated to 150mg four times a day. It gave me my life back again. I finally started to feel better.
Cost: $25-49 monthly

  • 5 helpful marks

Mar 21, 2010 (Started Mar 05, 2009)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: I had a very positive experience with this treatment. The reason I am off this medication is that I am starting a clinical trial and need to stay on sinemet. I am not doing as well as I was when I was taking Stalevo plus Sinemet. Walking, cramps on my right calf and foot to the point I cannot take a step without pain

Feb 25, 2010 (Started Mar 05, 2009)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 4 x 37.5 mg-200 mg-150 mg Daily

May 16, 2009 (Started Mar 05, 2009)

  • Effectiveness
    Moderate (for Other)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 4 x 37.5 mg-200 mg-150 mg Daily
Advice & Tips: Some not all of my symptons are improved. Worth the change for me. Better balance, easier to manover in bed, generally feel better. Has not helped my right leg as far as walking goes.

Mar 25, 2009 (Started Mar 05, 2009)

  • Effectiveness
    None (for Other)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 4 x 37.5 mg-200 mg-150 mg Daily
Advice & Tips: I noticed after a week or so that I was feeling better.Improvements in walking, balance, and stifness. Easyier to manover in bed. Very pleased with Stalevo and hope the improvements last.

  • 2 helpful marks

Aug 11, 2009 (Started Oct 23, 2007)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (nausea, jerky movements)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 6 x 12.5 mg-200 mg-50 mg Daily
Advice & Tips: Take it on time, in general, but you can adjust the timing a little bit now and then to cover special occasions. For instance, I take my last dose about a half an hour later than usual on the nights that I have my dance class.
Cost: $25-49 monthly
Side effects: nausea, jerky movements

Jan 30, 2009 (Started Oct 23, 2007)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (nausea, jerky movements)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 300 mg Daily
Cost: $25-49 monthly
Side effects: nausea, jerky movements

Sep 24, 2008 (Started Oct 23, 2007)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (nausea)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg Daily
Cost: $50-99 monthly
Side effects: nausea, jerky movements

  • 1 helpful mark

Sep 7, 2009 (Started May 01, 2009)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Sometimes
  • Burden
    Not at all hard to take
Dosage: 2 x 12.5 mg-200 mg-50 mg Daily
Advice & Tips: It makes the symptons of Parkinson go away and gives one a whole new lease on life. I had it with chemo treatment and for four years thought it was the chemo and arthristis and spinal stenosis, etc., stalevo made all the side effects go away. I pray it doesn't wear off or I become conditioned to it. At 76 now it really doesn't matter, but sure has made my life so much better.
Cost: < $25 monthly

  • 1 helpful mark

Aug 20, 2008 (Started Sep 22, 2006)

  • Effectiveness
    Major (for Other)
  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 250 mg Daily
Advice & Tips: Longer lasting then the PARCOPA but much slower to take effect. About 45minutres to an hour. But last up to 3hours where the PARCOPA lasts only an hour or a little more.
Cost: < $25 monthly

  • 1 helpful mark

Apr 22, 2009 (Started Aug 21, 2009)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Severe (for Overall)
  • Adherence
    Sometimes
  • Burden
    Very hard to take
Advice & Tips: I absolutely cannot take more than half the prescribed lowest dosage due to projectile vomiting. I was given this in replacement of Carabadopa Levidopa combo which is a medication that should be removed from the market. The side effects of the caridopa-levidopa were worse than I could have ever imagined.. My on of time went for 6 hours down to less than half an hour with a week. I was constantly falling whille walking.

  • 1 helpful mark

Sep 6, 2010 (Started Mar 16, 2010)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Severe (for Overall) (indigestion)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 4 x 37.5 mg-200 mg-150 mg Daily
Advice & Tips: After several months of use, I developed severe and ongoing diahorea.
Side effects: indigestion

Apr 16, 2010 (Started Mar 16, 2010)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (indigestion)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 4 x 37.5 mg-200 mg-150 mg Daily
Side effects: indigestion

  • 1 helpful mark

Jul 21, 2011 (Started Sep 06, 2010)

  • Effectiveness
    Major (for Increase effect of another treatment)
  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Moderate (for Overall) (fatigue, nausea, wearing off increased tremors, cramps in legs)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 4 x 37.5 mg-200 mg-150 mg Daily
Advice & Tips: I think taking Stavelo in conjunction with Azilect is working very well for me. I'm just not sure whether the other symptoms I have are due to the progression of PD or if they are side effects.
Cost: $50-99 monthly
Side effects: nausea, wearing off increased tremors, cramps in legs, fatigue

Aug 21, 2009 (Started Sep 06, 2010)

  • Effectiveness
    Major (for Increase effect of another treatment)
  • Side effects
    Mild (for Overall) (fatigue, nausea, wearing off increased tremors, cramps in legs)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: I think it is very effective. If you forget to take them, the tremors start quicker and the foot cramps can be quite severe at times. NOTE: Regarding the cost below: I live in Canada and as such our system covers approx 75% of all medications.
Cost: $50-99 monthly
Side effects: nausea, wearing off increased tremors, cramps in legs, fatigue

Mar 9, 2009 (Started Sep 06, 2010)

  • Effectiveness
    None (for Increase effect of another treatment)
  • Side effects
    Mild (for Overall) (fatigue, nausea, wearing off increased tremors, cramps in legs)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: I am not quite sure, but I think numbness in the feet and ankles hasw been affected. To be re-evluated this week. (PS. For mthose in the US, our govt pays a good portion if we do not have Ins. Normalyy it would be appx.$550.00)
Cost: $100-199 monthly
Side effects: nausea, wearing off increased tremors, cramps in legs, fatigue

Oct 2, 2008 (Started Sep 06, 2010)

  • Effectiveness
    Major (for Increase effect of another treatment)
  • Side effects
    Moderate (for Overall) (nausea, wearing off increased tremors, cramps in legs)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Advice & Tips: It works very well, with exception to the numbness.
Cost: $200+ monthly
Side effects: nausea, wearing off increased tremors, cramps in legs, fatigue

  • 1 helpful mark

Jun 1, 2010 (Started Jun 08, 2006)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (discoloration of body fluids (ie sweat, urine), cramps in legs, jerky movements)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg-200 mg-100 mg Daily
Advice & Tips: take it on time,build up to higher doses gradually
Cost: $25-49 monthly
Side effects: jerky movements, discoloration of body fluids (ie sweat, urine), cramps in legs

Feb 18, 2009 (Started Jun 08, 2006)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 250 mg Daily
Cost: < $25 monthly
Side effects: jerky movements, discoloration of body fluids (ie sweat, urine), cramps in legs

Jan 17, 2009 (Started Jun 08, 2006)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (discoloration of body fluids (ie sweat, urine), cramps in legs, jerky movements)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 250 mg Daily
Cost: < $25 monthly
Side effects: jerky movements, discoloration of body fluids (ie sweat, urine), cramps in legs

Dec 20, 2008 (Started Jun 08, 2006)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (discoloration of body fluids (ie sweat, urine), cramps in legs)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 250 mg Daily
Advice & Tips: n/a
Cost: < $25 monthly
Side effects: jerky movements, discoloration of body fluids (ie sweat, urine), cramps in legs

Aug 19, 2008 (Started Jun 08, 2006)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (for Overall) (discoloration of body fluids (ie sweat, urine), cramps in legs)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 250 mg Daily
Cost: $25-49 monthly
Side effects: jerky movements, discoloration of body fluids (ie sweat, urine), cramps in legs

  • 1 helpful mark

Dec 23, 2008 (Started Feb 12, 2007)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Moderate (for Overall) (wearing off increased tremors, cramps in legs)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 3 x 25 mg-200 mg-100 mg Daily
Advice & Tips: time dosages to assure no "off" periods or "whiteouts"
Side effects: wearing off increased tremors, cramps in legs

Sep 10, 2008 (Started Feb 12, 2007)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Moderate (for Overall) (wearing off increased tremors, cramps in legs)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 3 x 25 mg-200 mg-100 mg Daily
Advice & Tips: No cure, treatments are improving but not yet perfected
Side effects: wearing off increased tremors, cramps in legs

  • 1 helpful mark
Last updated:
Showing 10 of 41 patient evaluations for Carbidopa-Entacapone-Levodopa