116 patient evaluations for Topiramate

1,051 members have decided to share their profiles only with other members of PatientsLikeMe.

Dec 31, 2009 (Started Oct 10, 2002)

  • Effectiveness
    Major (for pain)
  • Effectiveness
    Major (for migraine headaches)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 150 mg Daily
Advice & Tips: if I do not take this meds my head feels like it is going to short circut!
Cost: < $25 monthly

  • 0 helpful marks

Sep 25, 2009 (Started Aug 24, 2009)

  • Effectiveness
    Can't tell (for migraine headaches)
  • Side effects
    Moderate (for Overall)
  • Adherence
    Sometimes
  • Burden
    Not at all hard to take
Advice & Tips: I only took this medication for a few days. Once I realized that the side effects listed were the same problems I was having, like cog fog, I stopped taking it.
Cost: < $25 monthly

  • 0 helpful marks

Jan 13, 2010 (Started Nov 16, 2009)

  • Effectiveness
    None (for left side tingling)
  • Effectiveness
    Moderate (for migraine headaches)
  • Side effects
    Moderate (for Overall) (sleepiness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: Currently it makes me very sleeply. I fell asleep at my job today and it was very hard to drive home. I had to open up the window and play the music a little loud.
Side effects: sleepiness

  • 0 helpful marks

Feb 25, 2010 (Started Feb 11, 2010)

  • Effectiveness
    Moderate (for tremor(s))
  • Side effects
    Severe (for Overall) (mood swings)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: Did not expect to experience any nasty side effects on 50mg per day. But, after only being on it from Feb. 11-25 it became apparent it can cause severe mood swings (anger to crying spells). The doctor has given me orders to stop taking it immediately.
Cost: < $25 monthly
Side effects: mood swings

Feb 24, 2010 (Started Feb 11, 2010)

  • Effectiveness
    Moderate (for tremor(s))
  • Side effects
    Moderate (for Overall) (mood swings)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: Just came to the realization Topiramate (Topomax) may be causing some mood swings, increased anxiety and slight increase in depression.
Cost: < $25 monthly
Side effects: mood swings

  • 0 helpful marks

Feb 27, 2010 (Started Feb 22, 2010)

  • Effectiveness
    None (for facial tics)
  • Side effects
    Severe (for Overall)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 50 mg Daily
Advice & Tips: This prescription made me feel awful the first day. My symptoms seemed to worsen when taking the prescription. By the six day it was obvious to me that I would not take it another day and stopped it at once without contacting the neurologist.

  • 0 helpful marks

Mar 1, 2010 (Started Jul 08, 2009)

  • Effectiveness
    Moderate (for migraine headaches)
  • Side effects
    Mild (for Overall) (shivering, whole body shaking)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg Daily
Advice & Tips: When you 1st start taking it you may feel a little foggy for a week or two until it gets in your system. It does go away. This helped my nueropathy type symptoms, fire shooting through my toes etc. Tingly limbs etc. I would take @exact same time every day. It is very uncomfortable when it wears off. feels like you are having spasm all through your body, internal shaking. A good side effect of this medication is it will help control weight gain and you may even lose weight from it.
Side effects: whole body shaking, shivering

  • 0 helpful marks

Mar 9, 2010 (Started Jan 09, 2005)

  • Effectiveness
    Moderate (for epilepsy)
  • Side effects
    Moderate (for Overall) (body hair loss)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg Daily
Advice & Tips: All Foods will Taste Different If you Drink Colas You might switch ti Dr Pepper for awhile
Side effects: body hair loss

  • 0 helpful marks

Mar 23, 2010 (Started Feb 01, 2006)

  • Effectiveness
    Moderate (for bipolar disorder)
  • Effectiveness
    Moderate (for epilepsy)
  • Side effects
    Moderate (for Overall) (memory problems, rhinitis (nasal inflammation))
  • Adherence
    Usually
  • Burden
    Very hard to take
Dosage: 200 mg Daily
Side effects: rhinitis (nasal inflammation), memory problems

  • 0 helpful marks

Mar 27, 2010 (Started Aug 01, 2007)

  • Effectiveness
    Major (for Chronic Daily Headaches and Migraines)
  • Side effects
    Moderate (for Overall)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 50 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Apr 8, 2009 (Started May 01, 2005)

  • Effectiveness
    Moderate (for migraine headaches)
  • Side effects
    Moderate (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 500 mg Daily
Advice & Tips: The reason for taking this medication in the beginning was to prevent/treat migraine headaches...I was taking topamax. Then the dosage was was increased gradually by my neurologist until I reached the 500mg I am on today to also treat the seizures. I was admitted to the hospital for testing in November 09 and released with a prescription that it could be filled with the generic and I have had headaches, break through seizures and literally felt as though I have had "bugs" crawling in my head!! I and my epileptologist have tried to work with my insurance company to get me back on the brand name topamax but obviously they aren't budging on this one so I guess I will be taking generic and dealing with the side effects of this... anyone have any suggestions I would love to hear from you . I don't understand how they can approve me taking the brand before I went in the hosital and because the prescription was signed in the wrong blank they won't approve it now...!!

  • 0 helpful marks
Last updated:
Showing 10 of 116 patient evaluations for Topiramate