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Efficacy for Slow my ALS progress

How much of an effect does this treatment have on: Slow my ALS progress?

Moderate 5% 2
Slight 5% 2
None 27% 10
Can't tell 62% 23

Adherence

In general, do you take this treatment as prescribed?

Always 84% 53
Usually 16% 10
Sometimes 0% 0
Never 0% 0

Burden

How much of a burden is it for you to be on this treatment?

Major 3% 2
Moderate 21% 13
Slight 25% 16
None 51% 32

Side-effects

Overall, how much of a problem are the side-effects from this treatment?

Severe 11% 7
Moderate 21% 13
Mild 30% 19
None 38% 24

Specific Side Effects

Weight gain 19% 12
tremors in hands 17% 11
Nausea 14% 9
overall weakness 13% 8
thirst 10% 6
Acne 8% 5
Joint pain, stiffness 6% 4
Diarrhea 6% 4
trembling hands 6% 4
crying and rage 3% 2
toroid 2% 1
stomach upset 2% 1
Decreased sex drive 2% 1
Drowsiness 2% 1
sleepiness 2% 1
tired 2% 1
Skin irratation 2% 1
nausea, vomiting, site irritation 2% 1
Change in Taste 2% 1
Brain fog 2% 1
Fatigue 2% 1
hair loss 2% 1
Weight loss 2% 1
Tremors 2% 1
dry mouth 2% 1
lazyness 2% 1
derealization/depersonalization 2% 1
lack of appetite 2% 1
Fatigue 2% 1
Frequent urination 2% 1
Slurred speech 2% 1
Emotional Numbness 2% 1
  • Severe
  • Moderate
  • Mild

Cost

Approximately how much do you pay out of pocket for this treatment?

$200+ 0% 0
$100-199 0% 0
$50-99 5% 3
$25-49 6% 4
less than $25 68% 43
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