PatientsLikeMe ™

all
Join Now (It's free!)

Already a member? Log in

Select a community
All Communities

See full Riluzole Community Report

Efficacy for Slow my ALS progress

How much of an effect does this treatment have on: Slow my ALS progress?

Moderate 14% 5
Slight 5% 2
None 3% 1
Can't tell 78% 29

Adherence

In general, do you take this treatment as prescribed?

Always 82% 32
Usually 15% 6
Sometimes 3% 1
Never 0% 0

Burden

How much of a burden is it for you to be on this treatment?

Major 3% 1
Moderate 10% 4
Slight 15% 6
None 72% 28

Side-effects

Overall, how much of a problem are the side-effects from this treatment?

Severe 8% 3
Moderate 8% 3
Mild 5% 2
None 79% 31

Specific Side Effects

Fatigue 8% 3
Loose stools 5% 2
weakness in lips 3% 1
Muscle weakness 3% 1
Skin irratation 3% 1
Nausea 3% 1
Sensation in tongue 3% 1
  • Severe
  • Moderate
  • Mild

Cost

Approximately how much do you pay out of pocket for this treatment?

$200+ 3% 1
$100-199 3% 1
$50-99 5% 2
$25-49 15% 6
less than $25 41% 16
Back to top