Purposes:Fatigue and Improve mobility(Started Feb 01, 2012)
Date
Dosage
Fatigue
Perceived effectiveness
Improve mobility
Perceived effectiveness
Side Effects
Adherence
Burden
Nov 25, 2012
As needed
Major
Major
None
Sometimes
Not at all
Date
Nov 25, 2012
Advice & Tips
I love this. I was hesitant to start using a wheelchair (because darn it, I can walk!), but my son loves to spend a few hours at the mall with me and I'm lucky if I can get 15 minutes before I'm exhausted and wrecked for the rest of the day. With a wheelchair, I can stay for a few hours with him pushing me around, and I haven't ruined the rest of my day. Looking at getting a better chair (currently using Granddaddy's old transport chair), and plan on using it any time we go somewhere that would involve extended walking.
I had to have someone with me because I didn't have strength to push myself. So it had it's blurps. I have my power chair and ramp on van, so I can go and do alone.
Purposes:Fatigue, Mobility limited by distance, and Ataxia (lack of coordination)(Started Oct 27, 2010)
Date
Dosage
Fatigue
Perceived effectiveness
Mobility limited by distance
Perceived effectiveness
Ataxia (lack of coordination)
Perceived effectiveness
Side Effects
Adherence
Burden
May 12, 2011
12 hr
Daily
Side effects:
Scraped knuckles
Date
May 12, 2011
Advice & Tips
Driving my TiLite AeroZ is actually fun! It's so friendly, superbly engineered, fitted well, easy to propel, sturdy, and maneuverable. Before the chair, I used a very nice rollator, but I discovered that walking was very fatiguing even when assisted. The TiLite chair gives me so much more freedom.
Purposes:Fatigue and Weakness in legs(Started Jul 01, 2010)
Date
Dosage
Fatigue
Perceived effectiveness
Weakness in legs
Perceived effectiveness
Side Effects
Adherence
Burden
Feb 07, 2011
Major
Moderate
None
Usually
Very
Date
Feb 07, 2011
Advice & Tips
Don't leave it too late. I found it very difficult to start off, I was reluctaant even to let my children see me in it. In fact my 15 year old son used to roll around the house in it long before I had the couage to use it. The benefit that was unexpected is arriviing at a destination without, what has become for me, the associated fatigue of the journey.
Purposes:Fatigue, Walking problems, and Mobility limited by distance(Started Jun 21, 2010)
Date
Dosage
Fatigue
Perceived effectiveness
Walking problems
Perceived effectiveness
Mobility limited by distance
Perceived effectiveness
Side Effects
Adherence
Burden
Oct 27, 2010
Daily
Jul 16, 2010
Daily
Side effects:
Scraped knuckles
Date
Oct 27, 2010
Advice & Tips
Standing and/or walking caused me serious fatigue. Using a chair really helps. I stopped using this borrowed chair because I got my permanent chair.
Cost
< $25 monthly
Date
Jul 16, 2010
Advice & Tips
Technically I am Kurtzke EDSS 5.5, so I am able to walk. But when I do, fatigue consumes my entire body. So I borrowed a K0005 wheelchair (Quickie 2) to try out. It has made a tremendous difference. Because it's helping reduce my secondary fatigue so much, the Veterans Admin has Rxd me a wheelchair. I get fit for it in 3 weeks. This borrowed chair, though helpful, is too wide, too heavy, and too tall for me. I am very excited to be getting my own custom-fit chair. The VA Doc was very glad to hear I was exercising at a gym (including my legs). I continue to walk a little so my legs won't atrophy.
Many folks seem to think using an electric wheelchair will limit activities. Au' contraire!
It improves mobility. A van is not necessary for transport. There are gadgets that go on the rear of the car which hold wheel chairs. City buses must now allow for the transport of wheelchairs, with canvas bags of various bags I can carry quite a lot. They cost between $5500 and $20,000 +, payable by insurance, medicare, medicaid.
Updating results…
0 helpful marks
