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Naltrexone Treatment Report

Category: Prescription Drugs

Most Popular Types: Low Dose Naltrexone (LDN), ReVia

See patients taking Naltrexone

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11 patient evaluations for Naltrexone taken for the purpose of 'ALS (Amyotrophic Lateral Sclerosis)'

jennikb

Sex: F

Data Quality: 1 star

ALS: 6 yrs

Wheelchair

Bulbar: mild

Arms: severe

Chest: mild

Legs: severe
by jennikb
See jennikb's full Naltrexone history

**Purpose:** ALS (Amyotrophic Lateral Sclerosis) *(Started Feb 10, 2010)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Apr 22, 2013	4.5 mg Daily	Major	None	Always	A little
Mar 26, 2012	4.5 mg Daily	Moderate	None	Always	Not at all
Dec 14, 2011	4.5 mg Daily	Moderate	Mild	Always	Not at all

Date: Apr 22, 2013
Advice & Tips: 9 months after being dx with ALS, I noticed that my voice in 2009 stabilized. In 2013, my voice and swallowing are basically the same. I give most credit to taking LDN.
Cost: $25-49 monthly

Date: Mar 26, 2012
Advice & Tips: I am seeing many ALS patients loosing their voice. I am convinced that LDN is what prevented me from loosing mine. I started on the drug a couple years ago, noticed an immediate impact, and have not gotten off. My voice is still around which was contrary to my original progression. I still struggle, but most people can understand what I am saying with very little repeating. Please consider using just to see if it works for you.
Cost: < $25 monthly

Date: Dec 14, 2011
Advice & Tips: This seemed to be the reason why I was able to keep my voice. No proof of this fact, but it certainly is the appearance from my perspective.
Cost: < $25 monthly

1 helpful mark

binet

Sex: M

Data Quality: 2 stars

ALS: 7 yrs

Wheelchair

Bulbar: moderate

Arms: severe

Chest: mild

Legs: moderate
by binet
See binet's full Naltrexone history

**Purposes:** ALS (Amyotrophic Lateral Sclerosis) and Immune system weak *(Started Mar 22, 2012)*
Date	Dosage	ALS (Amyotrophic Lateral Sclerosis) Perceived effectiveness	Immune system weak Perceived effectiveness	Side Effects	Adherence	Burden
May 25, 2012	5 mg Daily	Slight	Slight	None	Always	Somewhat
May 20, 2012	5 mg Daily	Slight	Moderate	None	Always	A little

Date: May 20, 2012
Advice & Tips: 14days 1,5mg 14 days 3mg after 4,5mg tremblements et asphyxie les 10e jours arreter puis repre ndre

0 helpful marks

cinéphile 94

Sex: M

Data Quality: 3 stars

ALS: 4 yrs

Bi-Pap Wheelchair

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe
by cinéphile 94
See cinéphile 94's full Naltrexone history

**Purposes:** ALS (Amyotrophic Lateral Sclerosis) and Support immune health *(Started Sep 24, 2011)*
Date	Dosage	ALS (Amyotrophic Lateral Sclerosis) Perceived effectiveness	Support immune health Perceived effectiveness	Side Effects	Adherence	Burden
May 21, 2012	4.5 mg Daily	Slight	Moderate	None	Always	Not at all
Apr 19, 2012	4.5 mg Daily	Moderate	Moderate	None	Always	Not at all

Date: May 21, 2012
Advice & Tips: I had to stop in order to begin normast. Because LDN blocks opioid receptors throughout the body for three or four hours, people using medicine that is an opioid agonist, i.e. narcotic medication — such as Ultram (tramadol), morphine, Percocet, Duragesic patch or codeine-containing medication — should not take LDN until such medicine is completely out of one's system.
Cost: $25-49 monthly

Date: Apr 19, 2012
Advice & Tips: Less yawning,less saliva. Part of my regimen along with detoxifier and antioxydants. Thanks to this combination some of my muscles are coming back to life! furthermore no cold, no flu. I'll tell you you have to 'take LDN.
Cost: $25-49 monthly

0 helpful marks

Boo Boo

Sex: F

Data Quality: 1 star

ALS: 4 yrs

Bi-Pap Wheelchair Feeding tube

Bulbar: severe

Arms: moderate

Chest: mild

Legs: moderate
by Boo Boo
See Boo Boo's full Naltrexone history

**Purposes:** hopeful that it slows progression, Support immune health, and ALS (Amyotrophic Lateral Sclerosis) *(Started Mar 24, 2010)*
Date	Dosage	hopeful that it slows progression Perceived effectiveness	Support immune health Perceived effectiveness	ALS (Amyotrophic Lateral Sclerosis) Perceived effectiveness	Side Effects	Adherence	Burden
Oct 01, 2010	4.5 mg Daily	?	?	?
Apr 09, 2010	2 mg Daily	?	?	?

Side effects:: Difficulty sleeping through night

Date: Oct 01, 2010
Advice & Tips: Give it a try....nothing to lose
Cost: < $25 monthly

Date: Apr 09, 2010
Advice & Tips: I take it at about 11pm to midnight and regularly wake up around 3am for a short time. Seemed to have a drier mouth for a few days but didnt last unfortunately. I make up a solution from a 50mg tablet which is very easy to do and administer.

0 helpful marks

amma

Sex: F

Data Quality: 2 stars

ALS: 8 yrs

Ventilator Wheelchair Feeding tube

Bulbar: moderate

Arms: severe

Chest: severe

Legs: severe
by amma
See amma's full Naltrexone history

**Purpose:** ALS (Amyotrophic Lateral Sclerosis) *(Started Feb 24, 2010)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jul 02, 2010	0.3 mg Daily	None	None	Always	Not at all

1 helpful mark

ireckon

Sex: M

Data Quality: 1 star

ALS: 5 yrs

Bi-Pap Wheelchair Feeding tube

Bulbar: severe

Arms: severe

Chest: moderate

Legs: severe
by ireckon
See ireckon's full Naltrexone history

**Purpose:** ALS (Amyotrophic Lateral Sclerosis) *(Started Mar 29, 2010)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jun 09, 2010	4.5 mg Daily	?Can't tell	None	Always	Not at all
Jun 07, 2010	2.25 mg Daily	None	None	Always	Not at all

Side effects:: Vivid dreams, Self confidence

Date: Jun 09, 2010
Advice & Tips: when upgrading from 2.25 to 4.5mg i started breathing through nose better at night and get up fewer times at night. this was observed by myselff and wife i also have more vivid dreams
Cost: $25-49 monthly

Date: Jun 07, 2010
Advice & Tips: i took 2.25 ml now going up to 4.5 ml . i tried 4.5 before but made me tired during dAy but i also wasnt gettjmg enough water so i am upping now that i got water under control
Cost: $25-49 monthly

0 helpful marks

ireckon

Sex: M

Data Quality: 1 star

ALS: 5 yrs

Bi-Pap Wheelchair Feeding tube

Bulbar: severe

Arms: severe

Chest: moderate

Legs: severe
by ireckon
See ireckon's full Naltrexone history

**Purpose:** ALS (Amyotrophic Lateral Sclerosis) *(Started Jan 26, 2010)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Feb 18, 2010	4.5 mg Daily	None	Mild	Always	A little

Side effects:: Sleepiness

Date: Feb 18, 2010
Advice & Tips: going to try lower dose
Cost: $25-49 monthly

0 helpful marks

akita

Sex: M

Data Quality: 2 stars

ALS: 9 yrs

Wheelchair

Bulbar: moderate

Arms: moderate

Chest: mild

Legs: moderate
by akita
See akita's full Naltrexone history

**Purpose:** ALS (Amyotrophic Lateral Sclerosis) *(Started Sep 24, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Dec 16, 2009	3 mg Daily	Slight	None	Always	Not at all

0 helpful marks

clippedwings

Sex: M

Data Quality: 1 star

ALS: 3 yrs

Wheelchair

Bulbar: moderate

Arms: severe

Chest: mild

Legs: moderate
by clippedwings
See clippedwings's full Naltrexone history

**Purpose:** ALS (Amyotrophic Lateral Sclerosis) *(Started May 13, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Sep 24, 2009	4.5 mg Daily	Moderate	None	Always	Not at all
May 30, 2009	4.5 mg Daily	Slight	None	Always	Not at all

Date: Sep 24, 2009
Advice & Tips: My chain yawning has been a thing of the past, and I am starting to experience an easier time when food is concerned. There is a noticeable reduction in the number of choking/coughing episodes. My FRS is stable, but this may result from some other aspect of my treatment protocol.
Cost: < $25 monthly

Date: May 30, 2009
Advice & Tips: At the three week stage, I am sleeping much better and my ALS chain yawning has ceased. All other ALS symptoms appear stable, but at least three months will have to pass for meaningful results to become evident. My 4.5mg dose is derived from the standard 50mg tablet.
Cost: < $25 monthly

6 helpful marks

SParker

Sex: F

Data Quality: 2 stars

ALS: 5 yrs

Bulbar: none

Arms: mild

Chest: none

Legs: moderate
by SParker
See SParker's full Naltrexone history

**Purpose:** ALS (Amyotrophic Lateral Sclerosis) *(Started Nov 05, 2008)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Aug 28, 2009	4.5 mg Daily	Slight	None	Always	Not at all
May 14, 2009	4.5 mg Daily	?Can't tell	None	Always	Not at all

Date: Aug 28, 2009
Advice & Tips: I have been on LDL for almost 10 months now - every time I go to the neurologists - he says if there is any change - he can't tell - and to keep doing what I'm doing. So with that said - I will always take LDN -
Cost: $25-49 monthly

7 helpful marks

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