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13 patient evaluations for Vitamin E taken for the purpose of 'ALS (Amyotrophic Lateral Sclerosis)'

Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Oct 07, 1980)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 01, 2012 2000 intl units Daily ?Can't tell ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Feb 01, 2012
Advice & Tips
This is a vitamin supplement which I easily swallowed as gel capsules, with milk. I stopped only because I suspect it contributes to my itchiness.
Cost
< $25 monthly
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Feb 20, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 01, 2011 800 intl units Daily ?Can't tell NoneNoneNoneNoneNone SometimesSometimesSometimesSometimesSometimes Not at allNot at allNot at allNot at allNot at all
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Mar 03, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Apr 11, 2011 800 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Feb 28, 2002)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 12, 2011 5000 mg Daily ?Can't tell MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Jan 21, 2010 5000 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Mar 12, 2011
Advice & Tips
I have ALS with both upper and lower neurone damage yet my progression has been slow having survived 10 years from first symptoms and still have qualty of life. The only side effect is occasional diahoria which I think is natures way of saying you have taken a bit too much. I would recommend people to take it as soon as possible after diagnosis. It needs to be natural vitamin-E. Look at Dr Carsten Hager and vitamin E on the internet to find out why I take it.
Cost
< $25 monthly
Date
Jan 21, 2010
Advice & Tips
Build up to the full dose over 2-3 weeks. The only side effect I have had is occasional diahorea which seems to be the body's way of telling you you have taken too much. I would advise plwMND to take it as early as possible (two thirds dose mid am and remaining 1/3 mid p.m)
Cost
< $25 monthly
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Mar 01, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 01, 2011 1200 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Jan 01, 2011
Advice & Tips
I took this vitamin in various dosages for 10 years and did not see any benefit. After doing personnel research on the internet and seeing the result of clinical trials finding it doesn't have any therapeutic value I decided to discontinue usage.
Cost
< $25 monthly
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jul 16, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 31, 2010   Led_efficacy_1Led_defaultLed_defaultLed_defaultNone NoneNoneNoneNoneNone UsuallyUsuallyUsuallyUsuallyUsually Not at allNot at allNot at allNot at allNot at all
Nov 20, 2010 2000 intl units Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Dec 09, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 11, 2010 Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone NoneNoneNoneNoneNone NeverNeverNeverNeverNever Not at allNot at allNot at allNot at allNot at all
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jun 01, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Nov 15, 2010 2800 intl units Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Aug 04, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 26, 2010 Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jul 08, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Sep 23, 2009 2400 intl units Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
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