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16 patient evaluations for Deep Brain Stimulation (DBS) taken for the purpose of 'Parkinson's Disease'

Purpose: Parkinson's Disease (Started May 10, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 27, 2012 One time Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Oct 27, 2012
Advice & Tips
DO IT!!! Find an excellent Movement Disorder Specialist go through all the evaluation process and get the implants. It will change your life. Very little and mostly no shaking any more. I am completely off the medications (I insisted). I can now sleep again (that is the best benefit) although my body is still trying to catch up for all the nights that I only got 2~3 hours sleep.
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Purpose: Parkinson's Disease (Started Mar 01, 2012)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 01, 2012 One time ?Can't tell NoneNoneNoneNoneNone NeverNeverNeverNeverNever Not at allNot at allNot at allNot at allNot at all
Date
Mar 01, 2012
Advice & Tips
I just had the surgery a little over a month. The Honeymoon only lasted a week for me. I get the DBS turned on and first programming on April 19, 2012. I can't wait.
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Purposes: Parkinson's Disease and Dystonia (Started Jun 28, 2010)
Date Dosage Parkinson's Disease Perceived effectiveness Dystonia Perceived effectiveness Side Effects Adherence Burden
Jan 12, 2012 One time Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Nov 18, 2010 One time ?Can't tell ?Can't tell MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Dizziness, Neck and Shoulder muscle soreness
Date
Jan 12, 2012
Advice & Tips
My DBS Neurostimulator FINALLY kicked in after close to one year of monthly programming visits to the DBS clinic at Robert Wood Johnson medical center. I am doing MUCH better now. I have not reduced my meds but that's OK. It has brought me back to life and some days I almost feel like my old self.
Cost
$25-49 monthly
Date
Nov 18, 2010
Advice & Tips
AS OF 11/2010: Right now I am in the middle of programming sessions for the IPG battery in my chest. I go once a month to a "DBS clinic" Robert Wood Johnsohn Medical Center in New Brunswick NJ, USA. I see the DBS programmer and a neurologist. Even though I only have PD on my left side, it is quite severe. Unfortunately, the neuro has INCREASED my meds and the DBS programming has been very very slow - each time I get the voltage increased the PD seems to "compensate" It has been 5 months since the surgery and so far the benefits have been minimal. One unexpected positive effect has been reduced sense of bladder urgency. The surgery itself was not bad since they only had to install the wire lead on the right side of my brain.
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Purpose: Parkinson's Disease (Started May 17, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 17, 2011 One time ?Can't tell ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways VeryVeryVeryVeryVery
Side effects:
Word fishing
Date
May 17, 2011
Advice & Tips
Still take meds q 2hrs--must increase volts slowly over time to improove this ; one month later, meds still the same. I'm nauseated --is this related?
Cost
< $25 monthly
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Purpose: Parkinson's Disease (Started Mar 07, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 07, 2011 One time Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Mar 07, 2011
Advice & Tips
DBS is not for everyone. Talk to your MDS to see if you are a candidate. Don't put off checking into this because you think your condition is not "bad enough". Putting off this therapy IF you are a good candidate could end up speeding progression of the disease. There is a different target for PD DBS with different potential benefits and side effects.
Cost
< $25 monthly
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Purposes: Parkinson's Disease and Tremor(s) (Started Oct 08, 2008)
Date Dosage Parkinson's Disease Perceived effectiveness Tremor(s) Perceived effectiveness Side Effects Adherence Burden
Dec 21, 2010 Monthly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Feb 16, 2010 Monthly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Problems with focusing eyes, Excess saliva, Dependent on doctor
Date
Dec 21, 2010
Advice & Tips
no problem at all EVERY THING ; TREMORS; PHISICAL ; THINKING WORKING:DRIVING I AM FREE AGAIN 100%
Cost
$200+ monthly
Date
Feb 16, 2010
Advice & Tips
I have all ready explain this, i am more or absoluty streight, much more alert , less depresion,i am working in nano technologic and electronic, i have already practicing golf again, reading much more. beter position and beter balance out side off home i don´t know wy probabily because i tray harder. and my steps are more longer and slower. The impact was all ,to my family and me i am a more hapier person i have a new pet that it is a cokerspaniel blcak who i take hin out every day to play at a park
Cost
$200+ monthly
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Purposes: Improve mobility, Parkinson's Disease, and Tremor(s) (Started Jun 19, 2009)
Date Dosage Improve mobility Perceived effectiveness Parkinson's Disease Perceived effectiveness Tremor(s) Perceived effectiveness Side Effects Adherence Burden
Nov 10, 2010   Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 ModerateModerateModerateModerate AlwaysAlwaysAlwaysAlways A littleA littleA littleA little
Apr 14, 2010   Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 MildMildMildMild AlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at all
Feb 02, 2010   Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 ModerateModerateModerateModerate AlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at all
Side effects:
Loss of balance
Date
Nov 10, 2010
Advice & Tips
increase mobility, no tremors at alll,filing beter
Cost
$200+ monthly
Date
Apr 14, 2010
Advice & Tips
every day i improve more, and i feel better and my motion is faster
Cost
$200+ monthly
Date
Feb 02, 2010
Advice & Tips
Personally it was me very easy to make the decision since i had the opportunity to know a patient that had been already operated and my only question to him was it is that he had to be operate again and he told me that If without doubting it one minute. also i had the opportunity to know a youth from another social stratum to which they operated very recently for the epilepsy to the day that we saw each other and it was one of people that more push myself to operate me. Regarding other benefits I consider that the benefit is to have recovered the initiative of finishing quick very fast anything that I start. What also produces certain frustration for what the last 10 years of my illness I cannot recover it in 6 months
Cost
$200+ monthly
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Purposes: Parkinson's Disease and Stiffness/Spasticity (Started Jul 12, 2010)
Date Dosage Parkinson's Disease Perceived effectiveness Stiffness/Spasticity Perceived effectiveness Side Effects Adherence Burden
Oct 07, 2010   Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Jul 12, 2010 One time Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
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Purpose: Parkinson's Disease (Started Apr 17, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 15, 2010   Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Mar 10, 2010   Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Sep 14, 2008   Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Mobility decreased
Date
Mar 15, 2010
Advice & Tips
DBS is the new technology that alleviates all shaking and dykinesia and allow almost full body functionality. My DBS surgery is performed improperly. The leads were too close together, placed at a bad angle 35 degrees from the "floor" and the sutures were on top of the hardware
Cost
$200+ monthly
Date
Mar 10, 2010
Advice & Tips
Have DBS performed by a knowledgeable surgeon. It works!
Cost
$200+ monthly
Date
Sep 14, 2008
Advice & Tips
The best solution for PDers.
Cost
$200+ monthly
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Purpose: Parkinson's Disease (Started Feb 08, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 08, 2010 One time Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
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