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Ropinirole Treatment Report

Category: Prescription Drugs

Most Popular Types: Requip, Requip XL, Requip Depot (Show all)

See patients taking Ropinirole

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74 patient evaluations for Ropinirole taken for the purpose of 'Parkinson's Disease'

Kinney

Sex: F

Data Quality: 3 stars

Parkinson's: 7 yrs

Hoehn-Yahr 3 Type: Inherited (genetic) Parkinson's disease On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild
by Kinney
See Kinney's full Ropinirole history

**Purpose:** Parkinson's Disease *(Started Sep 01, 2008)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
May 14, 2013	10 mg Daily	None	Severe	Always	Not at all
Apr 29, 2013	10 mg Daily	Slight	Severe	Always	Somewhat
Mar 03, 2013	10 mg Daily	Moderate	Severe	Always	Not at all
Mar 07, 2009	6 mg Daily	Major	Moderate	Always	A little

Side effects:: Muscle cramps, Swelling in feet, Swelling in ankles

Date: May 14, 2013
Advice & Tips: The generic of REquip is Ropinirole, affected me in a different way than Requip XL. My drug plan refused to return to the brand name drug. This was Express Scripts. I am now trying the Neupro patch which seems to have its share of side effects.
Cost: < $25 monthly

Date: Apr 29, 2013
Advice & Tips: Express Scripts switched to generic and I have had sever side effects ever since.
Cost: < $25 monthly

Date: Mar 03, 2013
Advice & Tips: Recently my drug provider changed from the name brand Requip to the generic brand. I have had numerous side effects: dizziness, low blood pressure, balance problems, stiffness in my body, just about impossible to get the company to change.

0 helpful marks

holmesa

Sex: F

Data Quality: 2 stars

Parkinson's: 16 yrs

Hoehn-Yahr 3 Type: Parkinson's disease On

Mouth/throat: none

Arms: mild

Chest: mild

Legs: mild
by holmesa
See holmesa's full Ropinirole history

**Purpose:** Parkinson's Disease *(Started Oct 06, 2004)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Feb 26, 2013	8 mg Daily	Major	None	Always	Not at all
Nov 25, 2012	8 mg Daily	Moderate	None	Always	A little
Sep 23, 2012	8 mg Daily	Slight	Mild	Always	Not at all
Mar 22, 2012	16 mg Daily	Major	Mild	Always	Not at all
Dec 10, 2011	16 mg Daily	Major	None	Always	Not at all
Nov 22, 2011	16 mg Daily	Major	Mild	Always	A little
Sep 28, 2011	16 mg Daily	Major	Moderate	Always	Not at all
Aug 15, 2011	16 mg Daily	Major	Moderate	Always	Not at all
Jun 09, 2009	12 mg Daily	Major	Mild	Always	Not at all

Side effects:: Swelling in ankles, Muscle cramps, Pain, Fatigue, Indigestion, Lack of concentration, Swelling in feet, Nausea

Date: Sep 23, 2012
Advice & Tips: I have titrated down from 16mg to 12mg to 8mg to 4mg BUT had to go back to 12mg due to pain, cramp, clawing etc however my binge eating has stopped & my ankles & feet are not swollen.
Cost: < $25 monthly

Date: Sep 28, 2011
Advice & Tips: It is the mainstay PD treatment. Lowering the dose by 25% caused cramping & tremor.
Cost: < $25 monthly

Date: Aug 15, 2011
Advice & Tips: Difficult to titrate down - possibly due to it being slow-release
Cost: < $25 monthly

1 helpful mark

SCRABBLE37

Sex: M

Data Quality: 2 stars

Parkinson's: 28 yrs

Hoehn-Yahr 3 Type: Inherited (genetic) Parkinson's disease On

Mouth/throat: mild

Arms: mild

Chest: none

Legs: mild
by SCRABBLE37
See SCRABBLE37's full Ropinirole history

**Purpose:** Parkinson's Disease *(Started Nov 22, 2005)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Feb 11, 2013	18 mg Daily	Moderate	Severe	Always	Somewhat
Jan 20, 2010	12 mg Daily	Major	Mild	Always	A little
Nov 19, 2009	0.5 mg Daily	Major	Moderate	Always	A little
Nov 22, 2008	6 mg Daily	Major	Moderate	Always	Not at all

Side effects:: Tiredness, Fatigue, Daytime sleepiness, Pain, Nausea

Date: Jan 20, 2010
Advice & Tips: I have found the increased dosage has brought back the initial sleepiness problems first encountered during my first few months taking Requip. I am sure it will fade into a mild side effect (hopefully).
Cost: < $25 monthly

0 helpful marks

Christina22222

Data Quality: 2 stars
- Sex: Female
- Age: 41y
Condition: TBI 1 additional condition(s)
Quality of Life:
- Social: None
- Mental: None
- Physical: None
I am: Very good
by Christina22222
See Christina22222's full Ropinirole history

**Purpose:** Parkinson's Disease *(Started Nov 07, 2008)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Dec 14, 2012	4 mg Daily	Slight	Moderate	Sometimes	Not at all

0 helpful marks

Shakin

Sex: M

Data Quality: 2 stars

Parkinson's: 7 yrs

Hoehn-Yahr 2 Type: Parkinson's disease On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild
by Shakin
See Shakin's full Ropinirole history

**Purposes:** Tremor(s) and Parkinson's Disease *(Started Nov 07, 2009)*
Date	Dosage	Tremor(s) Perceived effectiveness	Parkinson's Disease Perceived effectiveness	Side Effects	Adherence	Burden
Aug 10, 2012	8 mg Daily	Major	Moderate	Severe	Always	A little
Aug 04, 2010	24 mg Daily	Slight	Slight	Moderate	Always	A little
Apr 28, 2010	24 mg Daily	?Can't tell	?Can't tell	Mild	Always	Not at all
Apr 17, 2010	24 mg Daily	None	None	Moderate	Always	Not at all
Apr 09, 2010	24 mg Daily	None	Slight	Mild	Always	Not at all
Apr 03, 2010	24 mg Daily	None	None	Mild	Always	Not at all
Jan 27, 2010	24 mg Daily	?Can't tell	?Can't tell	Mild	Always	Not at all
Jan 16, 2010	20 mg Daily	?Can't tell	?Can't tell	Mild	Always	Not at all
Jan 15, 2010	20 mg Daily	?Can't tell	?Can't tell	Moderate	Always	Not at all
Jan 09, 2010	18 mg Daily	None	?Can't tell	Moderate	Always	Not at all
Jan 01, 2010	16 mg Daily	Slight	?Can't tell	Moderate	Always	Not at all
Dec 27, 2009	16 mg Daily	?Can't tell	?Can't tell	Moderate	Always	Not at all
Dec 20, 2009	14 mg Daily	?Can't tell	?Can't tell	Mild	Always	Not at all
Dec 12, 2009	10 mg Daily	None	?Can't tell	Moderate	Always	Not at all
Dec 11, 2009	10 mg Daily	?Can't tell	?Can't tell	Moderate	Always	Not at all
Dec 06, 2009	8 mg Daily	?Can't tell	?Can't tell	Moderate	Always	Not at all
Nov 29, 2009	6 mg Daily		None	Mild	Always	Not at all
Nov 14, 2009	2 mg Daily		?Can't tell	Moderate	Always	Not at all

Side effects:: Cramps in legs, Tiredness, Somnolence, Headaches, Nausea, Dizziness, Daytime tiredness, Back pain, Insomnia, Excessive daytime sleepiness (somnolence), Insomnia, Anxious mood

Date: Aug 04, 2010
Advice & Tips: Well I'll be switched! I took this crap (carba/leva) a couple of years ago with NO positive result. Needless to say I was not very open to the idea that we try it again. "You have not had it the way I prescribe it" I just did not see how that crap could work! I decided when I started going to DR Dewey I said I would give his treatments an honest try. I told the Doc that I would follow his advice and try it added to the Requip. DadGUM! He is on to something! Im on 24mg Requip XL + 6 mg Carba/Leva. He built me up to these very slowly, NO Really SLOWLY! Months to get to full dose. I dont sleep good at night. Want to stay up all night and watch movies with sex scenes. Other than that and being EXHAUSTED all the time, I am doing very well! Reduced but not gone is the shaking. Sometimes I go 30 minutes without shaking! I do NOT like being so heavily drugged! I can type and ten-key by touch again with good accuracy! I thought those days were gone! Still difficult putting a small nut on a bolt, or holding a drill without shaking. I have a dr appt Friday 8/6/2010 What will he say this time I REALLY want to reduce the dose of Requip and STOP the Carba/Leva
Cost: $25-49 monthly

Date: Apr 28, 2010
Advice & Tips: HAS NOT BEEN WORTH TAKING IN MY OPINION.
Cost: $25-49 monthly

Date: Apr 17, 2010
Advice & Tips: My doctor switched me from Requip XL to Mirapex ER April 9,2010. He gave me some samples until my prescription was filled.. Our Insurance company refused the the prescription, saying it was too large of a dose. My samples ran out and I had to go back on Requip XL. Now he wants me to try Levadopa for a month to see if it will help. I cannot wait to get off Requip. We are starting to consider DBS, truthfully I am very apprehensive.
Cost: $25-49 monthly

Date: Apr 09, 2010
Advice & Tips: April 9, 2010 Dr. Dewey switched me from 24mg Requip XL to 3mg Mirapex ER titrating up to 6 mg. I am to take for one month to see if it is any more effective in treating my tremors than the Requip. He says the next thing to consider is DBS. He was able to show me that the Requip has helped with my minor symptoms, it just did not help the tremor.
Cost: $25-49 monthly

Date: Apr 03, 2010
Advice & Tips: My personal experience is that Requip XL has been a waste of time and money. I guess we had to try it to know if it would help or not. I shake worse today than when I started the Requip XL, go figure! I am afraid of the withdrawals when coming off the med.
Cost: $25-49 monthly

Date: Jan 27, 2010
Advice & Tips: Last week when I went to 22mg there was no noticeable change. Did not get sick. Dry eyes are better since switching to taking in the evening. I still sleep better with Benadryl. This past Saturday (1/23/2010) I increased to my maximum dose of 24mg. Slight upset stomach the next afternoon. I don't think I would have noticed it if I had been busy doing something. I was encouraged by talking to another PWP who told me that he did not experience any benefit for the first 5 months. He is now happy with the results. Since I am at full dose I will report less often unless I experience a change. Good Luck to all, keep your head up! February 27, 2010 - Still on full dose of 24mg daily. No noticeable improvement, side affects have faded except POOR SLEEP and desire to eat all evening. Feb 12, 2010 Index finger on LEFT hand was shaking a lot. Feb 16 left hand slight tremor.
Cost: $25-49 monthly

Date: Jan 16, 2010
Advice & Tips: I am now taking my daily dose at 6:30pm. I then take Benadryl as I go to bed. Last night for the first time I got 5.5 hrs then 2.5 hrs sleep. What a good change. Still no benefit in treatment of tremors. Jan 21 update I have been on the evening schedule about a week now. I tried going without Benadryl 3 days, my sleep was very fitful. Last night I took 1x10mg Benadryl and slept 5.5 hours got up for restroom and went right back to sleep for 3 hours. Ii do think taking Requip XL in the evening has reduced the severity of the late afternoon sleepiness. However the Bennadryl helps more!
Cost: $25-49 monthly

Date: Jan 15, 2010
Advice & Tips: This week has been interesting. 1/9/10 increased dose to 20mg, no nausea, headache or sickness. Getting more sleep since starting anti-hystamines last Wednesday actually got 7 hours good sleep Wed 1/13/10. The same day my neuro insists that Requip XL is not cause of interrupted sleep patterns. He told me to start taking Requip XL in the evenings... so I did. BACK to TERRIBLE sleep. I saw the clock every hour of the night. Hope tonight is better!
Cost: $25-49 monthly

Date: Jan 09, 2010
Advice & Tips: ADVICE - Try taking 1 Benadryl tablet each evening to help with sleep interruption. EXPERIENCE - Jan 2, I increased dose to 18 mg daily. I take my daily dose at 6:30 am. About 8:30 I started feeling a slight nausea which lasted about three hours. Jan 6, I added the evening dose of Benadryl (Diphenhydramine). It has made all the difference in the world. I have gone from seeing the clock every hour of the night to actually sleeping 3 and even 5 hours at a time which feels sooooooo good! Today, Jan 9 I have increased to 20 mg, I don't expect much change. I'll let you know what happens.
Cost: $25-49 monthly

Date: Jan 01, 2010
Advice & Tips: This week on 16mg, slight upset stomach 3 days, some leg cramps, continuing with interrupted sleep each night, most nights I see the clock every hour, have started going to bed about 8:30 to try and get more sleep. Get VERY TIRED between 4 and 6pm, cannot drive more than 20 minutes without dosing off. MUST BE VERY CAREFUL! Headaches are mostly gone. As for treating symptoms - well I can't see any great improvement! I still shake like crazy, still get multiple letters when typing, have to run ten key numbers 3 or 4 times too be sure of the total.
Cost: $25-49 monthly

Date: Dec 27, 2009
Advice & Tips: Well, I got through last week with virtually no sickness. I did start having leg cramps this past week. No nausea, only very mild headache a few days. No noticeable improvement in tremor. I have noticed an improvement in use of calculator and typing (Controlled motor skills). Daytime sleepiness has worsened, 3:30 to 6:30 pm is the worst. I can only drive about twenty minutes without getting to the point of dosing off. Wednesday, I had to drive an hour to make a delivery and dosed off 6 or 7 times. Was happy to get home and realized that I must now make another change in life. Yesterday I increased to 16mg (2x 8mg XL). Mild upset stomach a couple of hours after taking, lasted less than an hour. This morning mild upset stomach about two hours after taking. I'll let you know how this week goes.
Cost: $25-49 monthly

Date: Dec 20, 2009
Advice & Tips: I do not know what it is with this medication, one week it hits me hard another week it is easy to take. I had gotten used to it "I thought" until last week going from 10 to 12 mg daily. I felt sick all day the first day, mildly sick the second and had mild head ache for 4 days. Then yesterday I increased to 14 mg, had mild sick feeling two hours after taking that lasted for about 3 hours then I was fine the rest of the day. Although I was very tired! I just took my 2nd dose at 14mg will see how it goes this week. I must say that yesterday was the first time I think I have noticed a reduction in my hand tremor. I hope this drug is actually starting to work.
Cost: $25-49 monthly

Date: Dec 12, 2009
Advice & Tips: Increased my dose from 10 to 12mg this am, Three hours later started feeling bad now 10 hours later still feel like crap! Nausea, headache general sick feeling.
Cost: $25-49 monthly

Date: Dec 11, 2009
Advice & Tips: Dec 7 increased to 10mg, Wednesday evening felt sick for about 2.5~3 hours. Other than that no difference to previous evaluations.
Cost: $25-49 monthly

Date: Dec 06, 2009
Advice & Tips: Nov 29 increased from 3 tabs 2mg to 4 tabs 2mg each, Mon 30th about two hours slight nausea. Thursday & Friday slight headache and nausea. Saturday Dec 6th felt bad all day. Nausea and headache. Sunday 7th felt ok all day. Increasing dose to 10mg tomorrow 7th. Experiencing Insomnia nights and daytime tiredness especially afternoon.
Cost: $25-49 monthly

Date: Nov 29, 2009
Advice & Tips: As with previous doses one day after increasing from 2 tabs 2XL to 3 tabs 2XL, I got Nausea, Headache and Tired. MUST eat with medication. If I eat when I get Nausea during the day it helps. Mild Headaches seem to come with this medication for me. I have not had as many headaches in 53 years as in the past 3 weeks. Still no apparent benefits, increasing to 4 tabs today will update next week.
Cost: $25-49 monthly

Date: Nov 14, 2009
Advice & Tips: Start up evaluation: First day - no effects. Second Day - very tired mild nausea. Third day - Nausea, Achy back and muscles, major dizziness (every time I got up got dizzy). Fourth day - mild nausea and head ache, Fifth day - mostly normal. Today 7th day, added second tablet waiting to see what tomorrow will bring.
Cost: $25-49 monthly

2 helpful marks

RVPAPPY

Sex: M

Data Quality: 2 stars

Parkinson's: 10 yrs

Hoehn-Yahr 3 Type: Parkinson's disease On

Mouth/throat: moderate

Arms: mild

Chest: mild

Legs: mild
by RVPAPPY
See RVPAPPY's full Ropinirole history

**Purposes:** Improve mobility and Parkinson's Disease *(Started Apr 23, 2010)*
Date	Dosage	Improve mobility Perceived effectiveness	Parkinson's Disease Perceived effectiveness	Side Effects	Adherence	Burden
Jul 11, 2012	6 mg Daily	?Can't tell	?Can't tell	Moderate	Usually	Not at all

Date: Jul 11, 2012
Advice & Tips: On days where I may be forced to drive I may skip a dose of this med. My attacks of sudden fatigue and sleepines have been positivly linked to taking this med
Cost: < $25 monthly

0 helpful marks

jeanp

Sex: F

Data Quality: 0 stars

Parkinson's: 7 yrs

Hoehn-Yahr 3 Type: Parkinson's disease On

Mouth/throat: none

Arms: mild

Chest: mild

Legs: mild
by jeanp
See jeanp's full Ropinirole history

**Purpose:** Parkinson's Disease *(Started Sep 11, 2010)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
May 09, 2012		None	Severe	Never	Not at all

Date: May 09, 2012
Advice & Tips: By day 9 of beginning Ropinerol I was totally incapacitated, mentally and physically. I was walking stooped over and shuffling. My head cleared within days of cold-turkey stopping. Gradually got my energy and posture back as well. My tremors were unremitting.

0 helpful marks

Cabinonalake

Sex: M

Data Quality: 0 stars

Parkinson's: 8 yrs

Hoehn-Yahr 2 Type: Parkinsonism (unknown cause) On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild
by Cabinonalake
See Cabinonalake's full Ropinirole history

**Purpose:** Parkinson's Disease *(Started Feb 07, 2011)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Mar 08, 2012	4 mg Daily	Moderate	None	Always	Not at all

Date: Mar 08, 2012
Advice & Tips: Works best when taken with first Stelevo dose
Cost: < $25 monthly

0 helpful marks

seryah

Sex: M

Data Quality: 1 star

Parkinson's: 15 yrs

Hoehn-Yahr 1 Type: Inherited (genetic) Parkinson's disease On

Mouth/throat: mild

Arms: mild

Chest: none

Legs: mild
by seryah
See seryah's full Ropinirole history

**Purposes:** Parkinson's Disease and for symptomatic relief *(Started Jan 19, 2010)*
Date	Dosage	Parkinson's Disease Perceived effectiveness	for symptomatic relief Perceived effectiveness	Side Effects	Adherence	Burden
Jan 01, 2012		None	None	Mild	Usually	Not at all
Aug 03, 2010	0.75 mg Daily		Slight	Moderate	Usually	A little
Apr 27, 2010	0.75 mg Daily		Major	None	Always	Not at all

Date: Aug 03, 2010
Advice & Tips: Did not like it. The pain was worse than the gain
Cost: < $25 monthly

Date: Apr 27, 2010
Advice & Tips: I have been very fortunate to have few side effects.
Cost: < $25 monthly

0 helpful marks

Girly49

Sex: F

Data Quality: 0 stars

Parkinson's: 5 yrs

Hoehn-Yahr 1 Type: Parkinsonism (unknown cause) On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild
by Girly49
See Girly49's full Ropinirole history

**Purpose:** Parkinson's Disease *(Started Jun 17, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Oct 31, 2011	1 mg Daily	Moderate	Severe	Always	Very

Date: Oct 31, 2011
Advice & Tips: I was fine on the requip xl but the generic makes me really sick and my insurance refuses with "no exceptions to cover it"

0 helpful marks

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