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Phenytoin Treatment Report

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21 patient evaluations for Phenytoin taken for the purpose of 'Epilepsy'

Purpose: Epilepsy (Started Apr 27, 1994)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 12, 2013 50 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Jan 03, 2013 600 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Jul 17, 2012 600 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Apr 28, 2012 600 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Apr 28, 2012
Advice & Tips
Phenytoin is an Osteoclast drug, that is the effects on my body make my osteoporosis worse, I do take a 1050mg codliver oil/vit D capsule as recomended by the neurologist as he is conversant with my osteoporosis. Furher to that my appointment with his clinic in May will be looking to reducing the dose further which at present is 200mg daily.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
Purposes: Epilepsy and Ringing in ears (tinnitus) (Started Jul 01, 1992)
Date Dosage Epilepsy Perceived effectiveness Ringing in ears (tinnitus) Perceived effectiveness Side Effects Adherence Burden
Jan 26, 2013 800 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
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Purpose: Epilepsy (Started May 15, 2012)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Aug 23, 2012 400 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
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Purpose: Epilepsy (Started Jun 15, 2002)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 28, 2012   Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
May 28, 2012
Advice & Tips
I got sick, I stayed sick, low T-cell count, low white blood cell count. I know very few people have this problem with this medication, but this is far and away the one of the two worst treatments I endured for my epilepsy.
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Purpose: Epilepsy (Started Apr 12, 1994)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 22, 2012 800 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Jan 22, 2012
Advice & Tips
I dont know how I would fall asleep without it. I dont like it in the morning.
Cost
< $25 monthly
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  • mpatient
    Data Quality: 2 stars
    • Sex: F
    • Age: 66y
    • Duration: 65 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    Surgery type: Left Temporal Lobectomy, Right Temporal Lobe Resection
    0 seizures
    16 weeks ago
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  • by mpatient
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Purpose: Epilepsy (Started Mar 01, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 30, 2011 150 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Dec 30, 2011
Advice & Tips
I had surgery 8/27/11, and they said it cured me. Started getting all toxic effects from dilantin. It never worked and just makes me sick. If I take with food, it seems to help block it a bit.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • WEZIE
    Data Quality: 1 star
    • Sex: F
    • Age: 51y
    • Duration: 5 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    0 seizures
    98 weeks ago
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  • by WEZIE
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Purpose: Epilepsy (Started May 15, 1961)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 04, 2011 300 mcg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Side effects:
Daytime sleepiness
Date
Jan 04, 2011
Advice & Tips
i just know i have to take this now in order to stay seizure free
Cost
< $25 monthly
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Purpose: Epilepsy (Started Sep 28, 2005)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 31, 2010 500 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Memory problems
Date
Dec 31, 2010
Advice & Tips
This is a strong medicine, wears on the memory after time, not to be on for a long time, I have been on it for 5 years, my memory is getting bad and was not aware that I should not take this, other meds dont work at all, if you dont persist that the doctors find a way, they wont work for you on their own. Look into the meds they prescribe and the side effects, if I go a day or more without taking this, it will induce a seizure, like it did this last 4wks when I was sick. I need to get off this med. so I dont loose anymore of my memory.
Cost
< $25 monthly
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Purpose: Epilepsy (Started Jun 29, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Sep 09, 2010 300 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Aug 09, 2010 300 mg Daily ?Can't tell ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Date
Aug 09, 2010
Advice & Tips
Believe this was reason last seizure lasted longer then usual, it may prevent how often I have them
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  • JJWJ
    Data Quality: 1 star
    • Sex: M
    • Age: 56y
    • Duration: 47 yrs
    PRO survey: PRO 3
    Quality of Life:
    • Mental: Mild
    • Physical: None
    2 seizures
    92 weeks ago
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Purpose: Epilepsy (Started Feb 14, 1966)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 03, 2010 300 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Swollen gums
Date
Jul 03, 2010
Advice & Tips
1) If one evening you forget whether you have already taken Dilantin, don't take any. Better to take too little than too much. 2) Keep the Dilantin bottles when they have been emptied and use them to place one full day's worth of your medications in. Memory is not necessary with this. 3) I have never noticed side effects (save larger gums). 4) Do not think that taking more medication is going to help your life. In 1995, over seventy percent of neurologists said "reduce seizures" was the primary goal when treating a person with epilepsy. Over seventy-five percent in the same survey (conducted by Epilepsy Foundation) said the primary goal is to "avoid side effects from medications".
Cost
< $25 monthly
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