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Glatiramer acetate Treatment Report

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227 patient evaluations for Glatiramer acetate taken for the purpose of 'MS (Multiple Sclerosis)'

  • trpaquinn
    Sex: F
    Data Quality: 3 stars
    MS: 16 yrs
    Type: Secondary Progressive
    Sensation: Moderate
    Overall: Moderate
    Cognition: none
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
  • 8659-thumb
  • by trpaquinn
  • See trpaquinn's full Glatiramer acetate history
Purpose: MS (Multiple Sclerosis) (Started Jul 15, 1997)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 15, 2013   ?Can't tell MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
Purpose: MS (Multiple Sclerosis) (Started Jan 25, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Apr 10, 2013 20 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
  • Icon_thumb_off 0 helpful marks
Purpose: MS (Multiple Sclerosis) (Started Sep 04, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 30, 2013 20 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Oct 18, 2009 20 mg Daily ?Can't tell MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Side effects:
Dizziness, Nausea, Injection site pain
  • Icon_thumb_off 0 helpful marks
  • maryloo
    Sex: F
    Data Quality: 0 stars
    MS: 7 yrs
    Type: Primary Progressive
    Sensation: Moderate
    Overall: Mild
    Cognition: none
    Vision: mild
    Speech: none
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
  • Portrait_default_thumb
  • by maryloo
  • See maryloo's full Glatiramer acetate history
Purpose: MS (Multiple Sclerosis) (Started Nov 19, 2007)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 01, 2012 20 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Dec 01, 2012
Advice & Tips
Very isolated condition that varies with individuals.
  • Icon_thumb_off 0 helpful marks
Purpose: MS (Multiple Sclerosis) (Started Nov 15, 2000)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Nov 10, 2012 20 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Nov 10, 2012
Advice & Tips
Self-injecting is MUCH easier than you think it will be ahead of time. Because I am extremely lean, I find it's more comfortable to insert the needle at a shallow angle. Definitely rotate injection sites daily.
Cost
$25-49 monthly
  • Icon_thumb_off 0 helpful marks
Purpose: MS (Multiple Sclerosis) (Started Sep 01, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 24, 2012 20 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
  • Sagen
    Sex: F
    Data Quality: 2 stars
    MS: 38 yrs
    Mentor
    Type: Progressive Relapsing
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
  • 11716-thumb
  • by Sagen
  • See Sagen's full Glatiramer acetate history
Purposes: MS (Multiple Sclerosis) and MS (Multiple Sclerosis) (Started Feb 17, 2009)
Date Dosage MS (Multiple Sclerosis) Perceived effectiveness MS (Multiple Sclerosis) Perceived effectiveness Side Effects Adherence Burden
Oct 14, 2012   Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate SevereSevereSevereSevereSevere UsuallyUsuallyUsuallyUsuallyUsually SomewhatSomewhatSomewhatSomewhatSomewhat
Sep 29, 2012 20 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate SevereSevereSevereSevereSevere UsuallyUsuallyUsuallyUsuallyUsually SomewhatSomewhatSomewhatSomewhatSomewhat
Apr 14, 2010 20 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Breathing difficulty
Date
Oct 14, 2012
Advice & Tips
Was having horrible reaction like a heart attack more an more often.
Date
Apr 14, 2010
Advice & Tips
I think it has slowed prgression. Shots are a pain, and bother. Injections burn sometimes and leave redness, bruising, and a lump. Itches.
  • Icon_thumb_off 0 helpful marks
Purpose: MS (Multiple Sclerosis) (Started May 21, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Sep 15, 2012 20 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone MildMildMildMildMild UsuallyUsuallyUsuallyUsuallyUsually A littleA littleA littleA littleA little
Jun 20, 2012 20 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone UsuallyUsuallyUsuallyUsuallyUsually A littleA littleA littleA littleA little
Nov 22, 2009 20 mg Daily ?Can't tell MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Side effects:
Redness, Lumps and bumps, Injection site itching, Injection site pain
Date
Sep 15, 2012
Advice & Tips
You get used to the daily injection. Not really a big deal after a couple of months.
Cost
< $25 monthly
Date
Jun 20, 2012
Advice & Tips
Warm up the shot first for a couple minutes on your belly. Help to stop radiating pain.
Cost
< $25 monthly
Date
Nov 22, 2009
Advice & Tips
I take this right before I go to bed at night. Moving around helps - if I sit still right after, the pain is worse. I just read some advice on this site to warm the needle to body temperature - I did it last night and the pain was much less intense! The pain stayed localized at the injection site instead of spreading a foot from the site as it usually does. I put the needle against my stomach for 2 minutes. You get used to the pain thought - if these meds work it's totally worth it.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • TomR
    Sex: M
    Data Quality: 3 stars
    MS: 25 yrs
    Type: Secondary Progressive
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
  • 18887-thumb
  • by TomR
  • See TomR's full Glatiramer acetate history
Purpose: MS (Multiple Sclerosis) (Started May 01, 1997)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Aug 01, 2012 20 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Jul 31, 2011 20 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Feb 01, 1997   Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Date
Aug 01, 2012
Advice & Tips
I think it really helped for 14 years. My MS changed from RRMS to SPMS. Because the effectiveness for secondary progressive is not known I stopped treatment to start a study.
Cost
< $25 monthly
Date
Jul 31, 2011
Advice & Tips
QUIT TAKING TO PARTICPATE IN NIH STUDY.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
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