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Naltrexone Treatment Report

Category: Prescription Drugs

Most Popular Types: Low Dose Naltrexone (LDN), ReVia

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See also: Hydrocodone-Acetaminophen-Naltrexone SR Capsule

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30 patient evaluations for Naltrexone taken for the purpose of 'MS (Multiple Sclerosis)'

  • CURLYWINGS
    Sex: M
    Data Quality: 3 stars
    MS: 10 yrs
    Type: Primary Progressive
    Sensation: None
    Overall: None
    Cognition: none
    Vision: none
    Speech: none
    Swallowing: none
    Upper limb: moderate
    Walking: moderate
  • Portrait_default_thumb
  • by CURLYWINGS
  • See CURLYWINGS's full Naltrexone history
Purpose: MS (Multiple Sclerosis) (Started Jun 01, 2013)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jun 01, 2013 4.4 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Jun 01, 2013
Advice & Tips
I take it in liquid form. Pill form is also available. My speech has improved. No more slurring or mumbling. Bladder has shown significant improvement. Bowel has shown improvement. Stamina is much better. This drug works for me and makes the other drugs work better. Not an approved MS drug by my doctor or the hospital (Mellon Center)
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • slowrambler
    Sex: M
    Data Quality: 1 star
    MS: 37 yrs
    Type: Secondary Progressive
    Relapse: Moderate
    Sensation: Severe
    Overall: Mild
    Cognition: none
    Vision: none
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: severe
  • Portrait_default_thumb
  • by slowrambler
  • See slowrambler's full Naltrexone history
Purpose: MS (Multiple Sclerosis) (Started Sep 01, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Sep 07, 2012 4.5 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Feb 09, 2009 4.5 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Sep 07, 2008 4.5 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Sep 07, 2012
Advice & Tips
This medication's given me some very un-expected increase in heat tolerance.
Cost
$50-99 monthly
Date
Sep 07, 2008
Advice & Tips
This medication is FDA approved for MS in "compounded" form only. If an MS patient can obtain a prescription for this medication (many neurologists won't consider writing a script for this), they'll need to have access to a "compounding" pharmacy. As with all medications, success rates appear to vary. Many people who I know that are using LDN have realized dramatic, if not astonishing symptomatic relief in addition to less disease activity. Some that I know tried it for a period of time without any noticible relief or change & thus stopped using it. Success rates have seemed to depend on dosage level, at least from my observations. Some using LDN notice change almost immediately at the lower dosage levels. Others, as noted above, realize no change at any dosage level. Personally, the symptom relief that I've noticed most is an increase in heat tolerance. As far as my overall success rate, I'd say this medication has done very well in slowing the progression. I've gone over 15 months without having an exacerbation or needing IV solu-medrol. 11 of those months have been since I began using LDN, & I'm not using highest dosage. Maintaining my mobility level & being essentially symptom free for this period of time is very unusual (& quite pleasant!) for me; especially over the last 3 yrs. Note: neurologists/MS specialists might recommend a dormant period of time between stopping a current medication (Beta-Seron, Avonex, etc.) & the beginning of LDN use.
Cost
$50-99 monthly
  • Icon_thumb_on 3 helpful marks
  • Thekla
    Sex: F
    Data Quality: 3 stars
    MS: 15 yrs
    Type: Secondary Progressive
    Sensation: Mild
    Overall: Mild
    Cognition: none
    Vision: none
    Speech: none
    Swallowing: none
    Upper limb: moderate
    Walking: moderate
  • 6186-thumb
  • by Thekla
  • See Thekla's full Naltrexone history
Purpose: MS (Multiple Sclerosis) (Started Feb 15, 2004)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Aug 01, 2012 2.5 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Sep 30, 2011 4 mg M,W,F Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Sep 30, 2011
Advice & Tips
It really seemed to help for years but we suspect that I have become sensitized to it. It was suggested that I drop my dosage to 2mg but it is very difficult to obtain here.
  • Icon_thumb_off 0 helpful marks
  • prettybabyu
    Sex: F
    Data Quality: 2 stars
    MS: 5 yrs
    Type: Primary Progressive
    Sensation: Mild
    Overall: Mild
    Cognition: mild
    Vision: none
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
  • 31329-thumb
  • by prettybabyu
  • See prettybabyu's full Naltrexone history
Purposes: Improve mobility and MS (Multiple Sclerosis) (Started May 17, 2010)
Date Dosage Improve mobility Perceived effectiveness MS (Multiple Sclerosis) Perceived effectiveness Side Effects Adherence Burden
Jan 06, 2012   Led_efficacy_1Led_defaultLed_defaultLed_defaultNone Led_efficacy_1Led_defaultLed_defaultLed_defaultNone NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Oct 12, 2011 4.5 mg Daily ?Can't tell ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Apr 22, 2011 4.5 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Jul 21, 2010 4.5 mg Daily ?Can't tell ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
May 21, 2010 4.5 mg Daily ?Can't tell ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Jan 06, 2012
Advice & Tips
Started again on January 5, 2012
Cost
$25-49 monthly
Date
Apr 22, 2011
Advice & Tips
I know that there are no treatments to stop the progression of ppms, but after reading about ldn I decided that it wouldn't hurt to try this for progression and and walking. I can't see that it hurts. I can't see that it really helps.
Cost
$25-49 monthly
Date
Jul 21, 2010
Advice & Tips
Maybe this is helping me to take less of the other medications? I have seen an improvement with balance. Bladder and bowel incontinence seem to be abating. However, difficulty walking (gait) is still a big issue-nothing has changed there.
Cost
$25-49 monthly
  • Icon_thumb_off 0 helpful marks
Purpose: MS (Multiple Sclerosis) (Started Apr 01, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Sep 09, 2011 4.5 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Sep 09, 2011
Advice & Tips
I get back my reflexes in a very short period of time, and I'm happy because there are no side effects and it is cheap
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • Cara
    Sex: F
    Data Quality: 2 stars
    MS: 7 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
  • 14170-thumb
  • by Cara
  • See Cara's full Naltrexone history
Purposes: Transverse Myelitis, Fibromyalgia, and MS (Multiple Sclerosis) (Started Jul 01, 2008)
Date Dosage Transverse Myelitis Perceived effectiveness Fibromyalgia Perceived effectiveness MS (Multiple Sclerosis) Perceived effectiveness Side Effects Adherence Burden
May 17, 2011 4.5 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_default Led_efficacy_1Led_defaultLed_defaultLed_default Led_efficacy_2Led_efficacy_2Led_defaultLed_default NoneNoneNoneNone AlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at all
Oct 25, 2008 3 mg Daily ? NoneNoneNoneNone AlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at all
Date
Oct 25, 2008
Advice & Tips
It has helped decrease my heat sensitivity and fatigue.
Cost
< $25 monthly
  • Icon_thumb_on 2 helpful marks
  • pilot
    Sex: F
    Data Quality: 0 stars
    MS: 38 yrs
    Type: Primary Progressive
    Sensation: None
    Overall: None
    Cognition: none
    Vision: none
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: severe
  • 13928-thumb
  • by pilot
  • See pilot's full Naltrexone history
Purpose: MS (Multiple Sclerosis) (Started May 13, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 13, 2011 4.5 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
May 13, 2011
Advice & Tips
since I started LDN I have noticed more and more positive benefits. No, I haven't got up and walked but my legs are so muchbetter, no spasticity, no pain, no nothing! I think because I haven't walked for so long, that will not realistically happen at all. Another very big positive is that I no longer have to wear pads to protect dribbles of urine, yes I do like to be within easy reach of a toilet but..hey.. that is also my age I'm sure. I had a wonderful 3 weeks in France with my Sister and all went superbly. I now want to go and live in Paris!!!! only joking! So I am totally hooked on LDN, why isn't everyone with MS on it?
Cost
$50-99 monthly
  • Icon_thumb_off 0 helpful marks
  • stevo450
    Sex: M
    Data Quality: 3 stars
    MS: 9 yrs
    Type: Primary Progressive
    Sensation: None
    Overall: None
    Cognition: none
    Vision: none
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
  • 19856-thumb
  • by stevo450
  • See stevo450's full Naltrexone history
Purpose: MS (Multiple Sclerosis) (Started Jun 06, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Apr 29, 2011 50 mg Monthly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
May 31, 2010 50 mg Monthly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Apr 04, 2010 50 mg Monthly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Mar 04, 2010 50 mg Monthly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Jun 08, 2008 50 mg Monthly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Apr 29, 2011
Advice & Tips
LDN - Naltrexone has helped me with Fatigue problems and slowing down the progression in Multiple Sclerosis
Cost
< $25 monthly
Date
May 31, 2010
Advice & Tips
I take it in liquid form
Cost
< $25 monthly
Date
Apr 04, 2010
Advice & Tips
GREAT i take 1ml per night, major FATIGUE problems have gone !!!
Cost
< $25 monthly
Date
Mar 04, 2010
Advice & Tips
It has helped me with the MAJOR fatigue problems i did have before !!! Now since using LDN for nearly two years and one of the first males to try this drug in Australia for M.S, i no longer have these fatigue problems WOW !!! please send me a email before you try this drug and i can explain how i take it.
Cost
< $25 monthly
  • Icon_thumb_on 11 helpful marks
  • tiredand sick
    Sex: F
    Data Quality: 0 stars
    MS: 9 yrs
    Type: Secondary Progressive
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
  • 7329-thumb
  • by tiredand sick
  • See tiredand sick's full Naltrexone history
Purpose: MS (Multiple Sclerosis) (Started Apr 02, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Apr 29, 2011 2 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Apr 19, 2011 2 mg Daily ?Can't tell ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Difficulty waking up
Date
Apr 19, 2011
Advice & Tips
I take my pill at bedtime, usually 9pm. I cannot wake up at 8am when my husband comes in to wake me. I am still in a very deep sleep, still dreaming. It is so difficult to wake up.
Cost
$100-199 monthly
  • Icon_thumb_on 1 helpful mark
  • trpaquinn
    Sex: F
    Data Quality: 3 stars
    MS: 16 yrs
    Type: Secondary Progressive
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
  • 8659-thumb
  • by trpaquinn
  • See trpaquinn's full Naltrexone history
Purpose: MS (Multiple Sclerosis) (Started Jul 31, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 24, 2011 4 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
May 25, 2010 4 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
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