34 patient evaluations for Fingolimod taken for the purpose of 'Multiple Sclerosis'

Jimmie
Portrait default thumb
Jimmie
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See Jimmie's full Fingolimod history

Jul 9, 2014 (Started Jan 07, 2014)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1 mg Daily
Advice & Tips: If it's working, and I don't know, it's great, no side effects
Cost: < $25 monthly

Jan 12, 2014 (Started Jan 07, 2014)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
JoeC
41029 thumb
JoeC
Sex: M
Data Quality: 1 star
Relapse: Mild
Sensation: None
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: vg
I have:
MS

See JoeC's full Fingolimod history

May 23, 2014 (Started Jul 01, 2014)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: Go for it! I'm so happy I went through the 5 months of test. I have not felt this good in years. I'm not 100% back to normal but I do feel so much better. Little on no foot drag. Almost no brain fog. Almost no hand tremble! Played my guitar again. I know I have a long way to go but playing made me feel really happy.
Cost: < $25 monthly

  • 0 helpful marks
Rick N
29865 thumb
Rick N
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: severe
I am: g
I have:
MS

See Rick N's full Fingolimod history

Mar 7, 2014 (Started Nov 11, 2011)

  • Perceived effectiveness for to slow down progression: Slight
  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: Moderate
  • Adherence: Usually
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: of course a pill is better than giving myself a shot, but that is not the full evaluation point that I would make. Gelenya messed up my thinking processes and threw me into the throe's of depression and anxiety issues. I would noo longer advise this treatment to anyone.
Cost: $25-49 monthly

Apr 7, 2012 (Started Nov 11, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Perceived effectiveness for to slow down progression: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: I hare found that Gilenya is convenient to adhere to and I have not side effects whatsoever. Ii have heard stories about sudden death from this treatment. Who knows why the deaths occured but 1000's of people are in this treatment. I tend to believe it is safe. One condition has been higher than normal colds and flu, Possibly dur to redused white cell / immunity
Cost: $25-49 monthly

Feb 6, 2012 (Started Nov 11, 2011)

  • Perceived effectiveness for to slow down progression: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: I like this treatment as opposed to daily shots.
Cost: $25-49 monthly

Jan 17, 2012 (Started Nov 11, 2011)

  • Perceived effectiveness for to slow down progression: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Cost: $25-49 monthly

  • 2 helpful marks
InIt4theParking
17112 thumb
InIt4theParking
Data Quality: 2 stars
  • Sex: F
  • Age: 33y
  • Duration: 6 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Mild
  • Physical: Mild
25 seizures
3 weeks ago
I am: g
I have:
Epilepsy

See InIt4theParking's full Fingolimod history

Feb 5, 2014 (Started Aug 28, 2013)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: Had to stop so I could get pregnant. 2 month wash-out period.

  • 0 helpful marks
Laura72
1382 thumb
Laura72
Sex: F
Data Quality: 1 star
Sensation: Severe
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See Laura72's full Fingolimod history

Oct 29, 2013 (Started Oct 17, 2013)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 tablet(s) Daily
Cost: < $25 monthly

Oct 28, 2013 (Started Oct 17, 2013)

  • Perceived effectiveness for Multiple Sclerosis: None
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 tablet(s) Daily

  • 0 helpful marks
aubri328
44032 thumb
aubri328
Sex: F
Data Quality: 3 stars
Sensation: None
Overall: None
Cognition: mild
Vision: none
Speech: none
Swallowing: mild
Upper limb: none
Walking: none
I am: vg
I have:
MS

See aubri328's full Fingolimod history

Aug 18, 2013 (Started Feb 15, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: Taking this with the rest of your medications is key. The biggest difficultly may be how you receive your medication. If you normally go to the pharmacy and pick up your prescriptions most insurance carries require this drug to be handled through "specialty" pharmacies and delivered by mail ordering can be automatic as long as you set it up and they allow it. The company has programs to help save on costs.
Cost: $25-49 monthly

  • 0 helpful marks
jmartell
28936 thumb
jmartell
Sex: F
Data Quality: 3 stars
Relapse: Moderate
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See jmartell's full Fingolimod history

Aug 17, 2013 (Started Jan 14, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Cost: < $25 monthly

Dec 22, 2011 (Started Jan 14, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Cost: < $25 monthly

Mar 24, 2011 (Started Jan 14, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Cost: < $25 monthly

  • 2 helpful marks
lenny034
12926 thumb
lenny034
Sex: M
Data Quality: 1 star
Sensation: None
Overall: None
Cognition: none
Vision: none
Speech: moderate
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See lenny034's full Fingolimod history

Jul 17, 2013 (Started Nov 15, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily

  • 0 helpful marks
IlliniMS
12481 thumb
IlliniMS
Sex: F
Data Quality: 2 stars
Relapse: Moderate
Sensation: Moderate
Overall: None
Cognition: none
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: mild
I am: b
I have:
MS

See IlliniMS's full Fingolimod history

Jul 16, 2013 (Started Jan 09, 2013)

  • Perceived effectiveness for Multiple Sclerosis: None
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 cap(s) Daily
Advice & Tips: I have had no improvement with Gilenya and one new lesion was identified on my July 2013 MRI. I am continuing Gilenya for 6 more months and will be reevaluated by my MS Neuro at that time. So far, I cannot decide if the negatives outweigh the positive of an oral medication, as it has been only 6 months of us.

Mar 4, 2013 (Started Jan 09, 2013)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 cap(s) Daily
Advice & Tips: At this point I am seeing no benefit to the medication, other than it is my only option for treatment. I feel very bad all of the time.

  • 0 helpful marks
helchr@hmnet.dk
Portrait default thumb
helchr@hmnet.dk
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: none
Speech: mild
Swallowing: mild
Upper limb: moderate
Walking: moderate
I have:
MS

See helchr@hmnet.dk's full Fingolimod history

Jun 22, 2013 (Started Oct 08, 2012)

  • Perceived effectiveness for Relapse MS (exacerbation): Can’t tell
  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1 capsule(s) Daily
Advice & Tips: I have been very happy taking the Gilenya, having absolute no negative side effects.
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 10 of 34 patient evaluations for Fingolimod