27 patient evaluations for Interferon beta-1a SubQ injection taken for the purpose of 'Multiple Sclerosis' with a side effects rating of Severe

JoeC
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JoeC
Sex: M
Data Quality: 1 star
Relapse: Mild
Sensation: None
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: vg
I have:
MS

See JoeC's full Interferon beta-1a SubQ injection history

Apr 24, 2014 (Started Feb 14, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Perceived effectiveness for General health: Slight
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Somewhat
Dosage: 44 mcg 3 times a week
Cost: $50-99 monthly
Side effects: Dizziness, Injection site itching, Generalized muscle aches, Injection site redness, Injection site burning, Headaches, Injection site pain, Optic nerve inflammation (Optic neuritis)

Jan 9, 2013 (Started Feb 14, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Perceived effectiveness for General health: Slight
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Somewhat
Dosage: 44 mcg 3 times a week
Advice & Tips: I'm so over these shots but Don't think I can get into anything else any time soon. My goal is to be off Rebif in 2013... I hope.
Cost: $50-99 monthly
Side effects: Dizziness, Injection site itching, Generalized muscle aches, Injection site redness, Injection site burning, Headaches, Injection site pain, Optic nerve inflammation (Optic neuritis)

Jul 27, 2009 (Started Feb 14, 2008)

  • Perceived effectiveness for General health: Slight
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 44 mcg 3 times a week
Cost: $50-99 monthly
Side effects: Dizziness, Injection site itching, Generalized muscle aches, Injection site redness, Injection site burning, Headaches, Injection site pain, Optic nerve inflammation (Optic neuritis)

Apr 7, 2009 (Started Feb 14, 2008)

  • Perceived effectiveness for General health: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 44 mcg 3 times a week
Advice & Tips: Looking back over the last year I have had some ups and downs but over all I feel very lucky to have started treatment so quickly. I feel better everyday and if I have to deal with minor dizzy spells from time to time, so be it. I hope next year when I update my profile and can report even more progress.
Cost: < $25 monthly
Side effects: Dizziness, Injection site itching, Generalized muscle aches, Injection site redness, Injection site burning, Headaches, Injection site pain, Optic nerve inflammation (Optic neuritis)

  • 0 helpful marks
Les1952
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Les1952
Sex: M
Data Quality: 2 stars
Sensation: None
Overall: None
Cognition: none
Vision: moderate
Speech: none
Swallowing: mild
Upper limb: moderate
Walking: none
I am: vg
I have:
MS

See Les1952's full Interferon beta-1a SubQ injection history

Apr 13, 2014 (Started Feb 07, 2004)

  • Perceived effectiveness for Multiple Sclerosis: None
  • Side Effects: Severe
  • Adherence: Never
  • Burden: Very
Advice & Tips: After 10 years of positive results, I had to discontinue Rebif. Soon will be taking Tecfidera.
Cost: < $25 monthly

Apr 7, 2014 (Started Feb 07, 2004)

  • Perceived effectiveness for Multiple Sclerosis: None
  • Side Effects: Severe
  • Adherence: Never
  • Burden: Very
Dosage: 44 mcg/0.5 mL 3 times a week
Cost: < $25 monthly

Mar 27, 2014 (Started Feb 07, 2004)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 44 mcg/0.5 mL 3 times a week
Cost: < $25 monthly

May 22, 2012 (Started Feb 07, 2004)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Usually
  • Burden: A little
Dosage: 44 mcg/0.5 mL 3 times a week
Cost: < $25 monthly

  • 0 helpful marks
shayla034
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shayla034
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: moderate
I am: n
I have:
MS

See shayla034's full Interferon beta-1a SubQ injection history

Feb 25, 2014 (Started Sep 15, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Severe
  • Adherence: Always
  • Burden: A little
Cost: < $25 monthly

Mar 4, 2012 (Started Sep 15, 2011)

  • Perceived effectiveness for Multiple Sclerosis: None
  • Side Effects: Severe
  • Adherence: Sometimes
  • Burden: Very
Dosage: 44 mcg/0.5 mL 3 times a week

  • 0 helpful marks
florije
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florije
Sex: F
Data Quality: 0 stars
Sensation: Mild
Overall: None
Cognition: mild
Vision: mild
Speech: none
Swallowing: none
Upper limb: none
Walking: none
I am: vg
I have:
MS

See florije's full Interferon beta-1a SubQ injection history

Jun 4, 2011 (Started Jan 10, 2007)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Severe
  • Adherence: Never
  • Burden: Somewhat
Dosage: 44 mcg/0.5 mL Weekly
Side effects: Generalized muscle aches, Injection site redness, Chills/fever, Headaches, Injection site pain

Oct 1, 2008 (Started Jan 10, 2007)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 44 mcg/0.5 mL Weekly
Advice & Tips: After you had an injection it is important not to wake up in the middle of the night and to sleep 7 or 8 hours not less. The side -effects can carry through out the following day.
Side effects: Generalized muscle aches, Injection site redness, Chills/fever, Headaches, Injection site pain

  • 0 helpful marks
arthurj
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arthurj
Sex: M
Data Quality: 3 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: moderate
I am: b
I have:
MS

See arthurj's full Interferon beta-1a SubQ injection history

Feb 2, 2011 (Started Dec 22, 2010)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 times a week
Cost: $100-199 monthly
Side effects: Fatigue

  • 0 helpful marks
JnSma6
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JnSma6
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See JnSma6's full Interferon beta-1a SubQ injection history

Jan 30, 2011 (Started Oct 15, 2010)

  • Perceived effectiveness for Stiffness/Spasticity: Moderate
  • Perceived effectiveness for Improve mobility: Moderate
  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: Severe
  • Adherence: Always
  • Burden: A little
Dosage: 44 mcg/0.5 mL 3 times a week
Advice & Tips: In taking this expect to feel awful for at least 24 hours as i have trouble waking up walking in balance and every bone, muscle and nerve aches, i also receive a temp with in 45 minutes of taking it but i also hadnt taking anything for a while so who knows if its stopped progression as i still am not able to function on this drug for days iam not use to this. of course the wheather has alot to do with it as well.
Cost: $200+ monthly
Side effects: Muscle weakness, Fever, Cramps in calf muscles, Body tremor, Fatigue

  • 0 helpful marks
the_lorelei
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the_lorelei
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See the_lorelei's full Interferon beta-1a SubQ injection history

Mar 8, 2010 (Started Sep 14, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Severe
  • Adherence: Usually
  • Burden: Somewhat
Dosage: 3 times a week
Advice & Tips: Everyone's different but for me, Rebif caused extremely painful side effects. Excessive bone pain, neuropathic pain, brain fog, fatigue. It basically caused a very bad MS flare up everytime I took it.
Side effects: Flu like symptoms, Bone Pain, Skin pain

  • 0 helpful marks
Seussical
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Seussical
Sex: F
Data Quality: 1 star
Sensation: Mild
Overall: None
Cognition: mild
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: mild
I am: n
I have:
MS

See Seussical's full Interferon beta-1a SubQ injection history

Feb 4, 2010 (Started Jul 01, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 44 mcg/0.5 mL 3 times a week
Advice & Tips: Pre-medicate 1 hour before taking shot; take before bed time so you sleep through any discomfort.
Cost: $25-49 monthly
Side effects: Raynaud's phenomenon

  • 0 helpful marks
Justin Adams
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Justin Adams
Sex: M
Data Quality: 0 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See Justin Adams's full Interferon beta-1a SubQ injection history

Jan 25, 2010 (Started Feb 25, 2010)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Somewhat
Advice & Tips: to be honest i must admit rebif is working a little BUT in saying that my severe side effects that i do get from taking rebif makes me wonder am i really any better off
Cost: $50-99 monthly
Side effects: Chills/fever, Sweating, Sleeplessness, Night sweats

  • 0 helpful marks
Cassiopeia
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Cassiopeia
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: moderate
I have:
MS

See Cassiopeia's full Interferon beta-1a SubQ injection history

Oct 16, 2009 (Started Oct 06, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Severe
  • Adherence: Usually
  • Burden: Very
Dosage: 3 x 44 mcg/0.5 mL Weekly
Side effects: Injection site itching, Generalized muscle aches, Injection site redness, Injection site burning, Headaches

Oct 13, 2008 (Started Oct 06, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 3 x 44 mcg/0.5 mL Weekly
Side effects: Injection site itching, Generalized muscle aches, Injection site redness, Injection site burning, Headaches

  • 0 helpful marks
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Showing 10 of 27 patient evaluations for Interferon beta-1a SubQ injection