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Dalfampridine (4-AP extended release) Treatment Report

Category: Prescription Drugs

Most Popular Types: Ampyra

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See also: Fampridine (4-AP immediate release)

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15 patient evaluations for Dalfampridine (4-AP extended release) taken for the purpose of 'MS (Multiple Sclerosis)' with a side effects rating of NoneNoneNoneNoneNone

Purpose: MS (Multiple Sclerosis) (Started May 20, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 15, 2013 10 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
Purposes: Improve mobility and MS (Multiple Sclerosis) (Started Dec 21, 2012)
Date Dosage Improve mobility Perceived effectiveness MS (Multiple Sclerosis) Perceived effectiveness Side Effects Adherence Burden
Jan 09, 2013 20 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Jan 09, 2013
Advice & Tips
So I could not sleep at all the first nigh but that improved every day. My sleep is totaly back to normal now. I am walking MUCH better and have been playing Hacky Sack with my two sons! I'm no where near 100% but my balance have really improved and I feel much better going up and down stairs. I would deffinetly ask you Dr. about this med and give it a try.
Cost
$25-49 monthly
  • Icon_thumb_off 0 helpful marks
Purposes: Walking problems and MS (Multiple Sclerosis) (Started Dec 15, 2010)
Date Dosage Walking problems Perceived effectiveness MS (Multiple Sclerosis) Perceived effectiveness Side Effects Adherence Burden
Oct 22, 2012 20 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone Led_efficacy_1Led_defaultLed_defaultLed_defaultNone NoneNoneNoneNoneNone UsuallyUsuallyUsuallyUsuallyUsually A littleA littleA littleA littleA little
Mar 28, 2012 20 mg Daily ?Can't tell ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Oct 14, 2011 20 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
May 16, 2011 20 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Feb 07, 2011 20 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight NoneNoneNoneNoneNone UsuallyUsuallyUsuallyUsuallyUsually A littleA littleA littleA littleA little
Jan 24, 2011 20 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Oct 22, 2012
Advice & Tips
No change really
Date
Mar 28, 2012
Advice & Tips
I have been having low back probbles that is affecting my left leg and hip from nerve compression in L4 and L5 . This has caused a lot of pain and makes walking a real challenge.
Date
Oct 14, 2011
Advice & Tips
Not as stiff, but still do not walk very well. Working to improve right leg stength aaitnd gait
Date
May 16, 2011
Advice & Tips
I find I have less stiffness, and leg pain. My foot drop is slightly improve. Doing a little more exercise, on Recumbent bike.
Date
Jan 24, 2011
Advice & Tips
I seem to be more achy in lowr back and legs, but am walking faster
  • Icon_thumb_on 2 helpful marks
Purposes: Also increase in energy and MS (Multiple Sclerosis) (Started May 01, 2010)
Date Dosage Also increase in energy Perceived effectiveness MS (Multiple Sclerosis) Perceived effectiveness Side Effects Adherence Burden
Sep 27, 2012 10 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Jun 14, 2012 10 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Jun 23, 2010 10 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Jun 09, 2010 10 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Lightheadedness, Constipation, Dizziness, Insomnia
Date
Sep 27, 2012
Advice & Tips
It is immediately obvious when I have gone too long without taking a pill - my leg drags and my foot drops. Sometimes I can't wait the full 12 hours and I have a very tough time if I sleep too late and too much time goes by.
Cost
< $25 monthly
Date
Jun 14, 2012
Advice & Tips
I started on 5/1/10 and had immediate benefits. However, after about a year it stopped working for me and things became worse. I stopped the pill on 12/13/11 and things went rapidly downhill. I started again 5/13/12 and immediately things improved. It seems to work if you take breaks from it.
Cost
< $25 monthly
Date
Jun 23, 2010
Advice & Tips
The prescribed dosage is two 10 mg tablets per day, spaced 12 hours apart. This is too much for most people, and the second tablet is wasted because you're mostly sleeping at that time, so most people I know take one tablet daily and do fine with that. Even that is two much for some, so they have gone to a compounding pharmacy where they can get ground to their specification, ie just 5 mg. This is a time released drug, so it cannot be cut in half.
Cost
< $25 monthly
Date
Jun 09, 2010
Advice & Tips
It's great - I love it.
Cost
< $25 monthly
  • Icon_thumb_on 3 helpful marks
Purposes: MS (Multiple Sclerosis), Improve mobility, and Improve flexibility/strength (Started Mar 31, 2010)
Date Dosage MS (Multiple Sclerosis) Perceived effectiveness Improve mobility Perceived effectiveness Improve flexibility/strength Perceived effectiveness Side Effects Adherence Burden
Jun 24, 2012 20 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_default Led_efficacy_1Led_defaultLed_defaultLed_default Led_efficacy_1Led_defaultLed_defaultLed_default NoneNoneNoneNone NeverNeverNeverNever Not at allNot at allNot at allNot at all
Mar 04, 2011 20 mg Daily ? ? ? ? MildMildMildMild UsuallyUsuallyUsuallyUsually Not at allNot at allNot at allNot at all
Feb 02, 2011 10 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_default ? Led_efficacy_1Led_defaultLed_defaultLed_default SevereSevereSevereSevere UsuallyUsuallyUsuallyUsually SomewhatSomewhatSomewhatSomewhat
Nov 08, 2010 10 mg Daily ? Led_efficacy_2Led_efficacy_2Led_defaultLed_default Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_default ModerateModerateModerateModerate AlwaysAlwaysAlwaysAlways VeryVeryVeryVery
Sep 16, 2010 20 mg Daily ? Led_efficacy_2Led_efficacy_2Led_defaultLed_default Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_default ModerateModerateModerateModerate UsuallyUsuallyUsuallyUsually SomewhatSomewhatSomewhatSomewhat
Apr 27, 2010 20 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 NoneNoneNoneNone AlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at all
Side effects:
Balance problems
Date
Mar 04, 2011
Advice & Tips
After a four week break I started on Ampyra again. When I did not take the meds I slowly got weaker, and tired more quickly. Now I have more energy and strength. I'll see how it goes ....
Cost
< $25 monthly
Date
Feb 02, 2011
Advice & Tips
I stopped taking Ampyra for now to see how I will do without. The compromised balance that I have when using it became more of a problem as time went on. The increased stamina and energy did no longer outweigh my balance problems.
Cost
< $25 monthly
Date
Nov 08, 2010
Advice & Tips
I felt that I was overmedicated with 2 doses of Ampyra per day. I tended to forget the evening dose 3-5 evenings per week. I talked to my neuro and she advised to experiment with 1 dose a day. I did that slowly, alternating 20 with 10 mg for a few weeks. Now I use 10mg/day and doing better. My balance has improved, and my fatigue is still gone.
Cost
< $25 monthly
Date
Sep 16, 2010
Advice & Tips
The summer wiped out most of the effects of Ampyra. Some of the effects of the drug that arestill there are: My fatigue symptoms have practically disappeared. My balance has worsened quite a lot, however. I am trying to find the right dosage of ampyra. Twice a day seems to be too much - at least twice a week I forget the evening dose, because I feel well. Now that the summer heat and humidity are (ALMOST) behind us, I hope that the initial improvements I experienced will pick up again.
Cost
< $25 monthly
Date
Apr 27, 2010
Advice & Tips
I have been on Ampyra for 4 weeks now, and the effects are stunning. I am rediscovering sensations and make movements I forgot I could do. I walk much better, I can lift my knee, and my footdrop is less. My right hand does not get tired as soon as before. And, for the first time in years I have sensation in the soles of my feet!! This is making a huge difference in my quality of life.
Cost
< $25 monthly
  • Icon_thumb_on 17 helpful marks
Purpose: MS (Multiple Sclerosis) (Started Sep 09, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jun 20, 2012 20 other Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
Purpose: MS (Multiple Sclerosis) (Started Jun 15, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jun 19, 2012 10 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Jun 19, 2012
Advice & Tips
I set my alarm on my cell phone to make sure I take a pill every 12 hours. I walk much faster since I started taking Ampyra. It helps me.
  • Icon_thumb_off 0 helpful marks
Purposes: Walking problems, Improve mobility, and MS (Multiple Sclerosis) (Started )
Date Dosage Walking problems Perceived effectiveness Improve mobility Perceived effectiveness MS (Multiple Sclerosis) Perceived effectiveness Side Effects Adherence Burden
Feb 01, 2012   ? ? ? NoneNoneNoneNone AlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
Purposes: MS (Multiple Sclerosis) and Walking problems (Started Jan 28, 2011)
Date Dosage MS (Multiple Sclerosis) Perceived effectiveness Walking problems Perceived effectiveness Side Effects Adherence Burden
Dec 27, 2011 20 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone Led_efficacy_1Led_defaultLed_defaultLed_defaultNone NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Apr 22, 2011 20 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight NoneNoneNoneNoneNone UsuallyUsuallyUsuallyUsuallyUsually A littleA littleA littleA littleA little
Feb 01, 2011 20 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Dec 27, 2011
Advice & Tips
Walking is worsening over Holidays until now when I decided to stop taking it. It did give me funny smelling breath.
Cost
< $25 monthly
Date
Apr 22, 2011
Advice & Tips
A comment regarding unexpected positive effects: Numbness seems to be diminished, as well as tightness and stiffness in both ankles. Maybe it's the Spring weather, but I'm not needing to take afternoon naps because of being physically tired. I seem to have more energy. My walking ability and balance change throughout the day and from day to day.
Cost
< $25 monthly
Date
Feb 01, 2011
Advice & Tips
I set my cell phone alarm for 6am and 6pm so that I take Ampyra 12 hours apart on schedule. Don't hesitate to contact the Ampyra Assistance Program if cost is an issue-they are very helpful. Seem to walk a little faster and better.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
Purposes: Walking problems and MS (Multiple Sclerosis) (Started Jun 09, 2010)
Date Dosage Walking problems Perceived effectiveness MS (Multiple Sclerosis) Perceived effectiveness Side Effects Adherence Burden
Sep 17, 2011 20 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Sep 17, 2011
Advice & Tips
I highly reccomend it. It has improved my walking.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
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